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newlyfree

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by newlyfree

  1. newlyfree
    Hi all - I know this is an old thread, but I found it when I was researching places to eat in MV and I thought anyone else who finds it should know... The Wharf in Edgartown has apparently changed hands and the new owner, well... he was quite rude and extremely annoyed that people have been calling him to ask about gluten-free dining. He even told my...
  2. newlyfree
    Speaking of - was thinking of trying to use the Namaste spice cake mix to come up with a version of the starbucks Pumpkin Scone (my favorite fall treat!) Anyone tried something like that?
  3. newlyfree
    Hey NoGluGirl, SO sorry to hear about your family's attitude. It's horrible to have to deal with that on a day-to-day basis. After reading some of the horror stories from other people on this board (family who won't accept it, friends who try to purposefully gluten you to prove you're 'faking', etc), I realize that I'm DAMN lucky hubby's handled this...
  4. newlyfree
    Thanks for the recipe, I've been REALLY wanting to make a sorghum bread! Question though - I have a problem with potatoes, anyone have recommendations for an alternate starch for the flour mix? Thanks!
  5. newlyfree
    I LOVE THIS THREAD!! I discovered my gluten problem when hubby and I decided to go on one of those "program' diets - the kind where all your meals come in tiny microwaveable packages. After a few months of eating only 1200 calories a day with some form of bread product for every meal AND starchy snacks AND cakey desserts, I'd gained 10 pounds and was...
  6. newlyfree
    So sorry to hear about the rollercoaster you're on! Question - you mentioned you have DH, have you gotten that biopsied? I've heard that if you have confirmed DH, you have celiac (you can have Celiac without DH, but can't have DH without Celiac). I think if you can get a real confirmation on that, you wouldn't need an endoscopic biopsy at all. Someone...
  7. newlyfree
    Hi DogtorJ, Just wanted to say I found your website a while back when I first went gluten-free and everyone was just starting to hear about the toxic gluten in dog foods. Our Shih Tzu mix (a rescue dog) has always had allergies, he would scratch himself bloody if he wasn't on his steroid medication. I'd been bugging Future-Hubby to try a gluten...
  8. newlyfree
    Thanks Burdee - looks like US BioTek really nailed it for you!! I'm going to ask my ND if she'd mind testing through them instead - I also like the amount of info they have online about their quality control process.
  9. newlyfree
    Hi Dahlia - I'm doing this right now as well, so you're not alone!! Currently I'm not eathing: beans, nuts, sugars, yeasts, nightshades, dairy and gluten. It's a lot to cut out. But I seem to be feeling much better for it. I think my body just really needed a break after 10 years of misdiagnosis. So, can you have honey? There are a few recipe...
  10. newlyfree
    Hi Dahlia - check out the Los Angeles Celiac yahoo group - I think they have a listing of support groups in their files section, if not someone from the list can tell you for sure.
  11. newlyfree
    bump -anyone?
  12. newlyfree
    My ND wants to test me through Meridian Valley, but I have to say I wasn't impressed with their website, so I'm a little worried. Not to say an uninformative website means they're a bad lab, but it doesn't really give one confidence. I know some labs have very low accuracy rates, and was just wondering where people in general got their tests done and...
  13. newlyfree
    Sweet - I have an alt undead mage, but she's only level 35 I'm on Shu'halo - you?
  14. newlyfree
    Hey Sweetfudge - there are a couple of online quizzes you can take to see if candida is a problem for you, but I think if you start an elimination diet you'll be pretty much on an anti-candida diet as well (someone correct me if I'm wrong there). I'm doing an elimination diet now, and it's helping me a LOT!! Doubt I would ever have realized that I have...
  15. newlyfree
    The sublinguals I use go under the tongue and dissolves there, getting absorbed right into the bloodstream. I am not sure, but if you're drinking a powder, I'd assume it goes straight into the damaged gut which can't really absorb anything right now. I know you feel crappy, but hang in there, some people (like me) just take longer to heal. I'd go with...
  16. newlyfree
    It took me a good 2 months to feel like my brain fog was REALLY gone. But it probably took me almost that long to REALLY get the diet right. Have you weeded out possibly hidden glutens in your home? Old cutting boards, wooden spoons, colanders, spice mixes, that sort of stuff? I made those mistakes for the first month and it was bad - the last thing...
  17. newlyfree
    Sorry I can't answer the how to know if you have a leaky gut question - I'd love to hear the answer, though! I suspect mine's pretty leaky. Also - ghee is casein-free? Is there a way to make it out of regular butter? I am diary-free now and would love something else to stick on my rice besides olive oil!! Thanks!
  18. newlyfree
    Hi Cody - it sounds like you are seeing improvements, which is a great thing! You say you don't feel any different, but getting rid of the reflux sounds huge - many people wouldn't need their fancy purple prescriptions if they could get results like that Don't expect it all to go away in a month. Many sources say the healing can take form 6 months...
  19. newlyfree

    ARCHIVED I Need To Find A Doctor In La

    newlyfree replied to Paloma's topic in Doctors

    Hi Paloma - you might want to check out the Los Angeles Celiac Yahoo group - they have a list of doctors in their Files section.
  20. newlyfree
    It's not, but she'll get better kickbacks from the prescriptions she can give you for the other problems (sorry, having a cynical day
  21. newlyfree
    That's how I understand it, yes. And that's why they're working on defining 'gluten-free' as a new label for next year, aside from the top 8.
  22. newlyfree
    Ouch - I'm sorry you've had to go through all that. Yeah, I got a similar blood test result - 1 of 10 tests they ran came back 'positive, possibly indicative of Crohn's' though i don't have any of the typical symptoms as far as I can tell. So weeks of stress until my colonoscopy (which I'm sure is doing it's share of badness for my intestinal healing...
  23. newlyfree
    Hey darkangel - sorry to hear you have no answers. That' s so frustrating. Question -what test exactly did your doc think would show accurate results without gluten ingestion? I'm asking 'cuz I've never heard of one Also - did the doc test you for Crohn's? The area of your pain sounds like where most Crohn's patients hurt - and I've heard many...
  24. newlyfree
    Yes, the addiction to gluten-filled goodies is tough to crack. It gets easier, but I'm sure as an ex-smoker you know, cheat once and it's back to a pack-a-day! But you CAN do it! And you'll feel so much better when it's all out of your system and you're healed!
  25. newlyfree
    Kassandra - I feel your pain! At various times over the last 10 years I've done the anti-candida diet and breaking the sugar habit at the beginning is a killer! I've just returned to dairy free as well (did it when I was first gluten-free, then let it back in while on the SCD, but I'm not sure I'm good with it so for now I'm taking it back out). I'm also...
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