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lob6796

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lob6796

  1. lob6796
    Doctors frustrate me so much! They know so little about Celiac disease that they give people mixed signals and WRONG information. If your biopsy was positive, you HAVE celiac disease. There is no reason to do blood work. In fact, alot of people who have celiac disease have negative blood work for various reasons. One of which is that the IgA test (which is...
  2. lob6796
    You can go ahead and go gluten free. If you had a biopsy that came back positive, you HAVE celiac disease. Why he would do blood tests afterwards is beyond me, especially because your blood tests can come back negative even if you have celiac. 3% of all celiac's are IgA deficient so it will come out negative instead of positive. The biopsy is usually the...
  3. lob6796
    I had been diagnosed with fibromyalgia by my doctor. This includes ALOT of severe muscle pain in my back, joints, you name it. Once he figured out I had celiac disease he told me that his diagnosis of fibro was probably wrong, and that once I went gluten free, all of my muscle pain in my back, etc might go away. I've read alot of posts on here about people...
  4. lob6796
    Awesome, thanks. I'll give them a call Monday morning then to double check their specific stuff. My mom has a colonoscopy the following day at the same place (lol) and the pre-op for that was really intense. I just have been waiting for this appt so badly that I didn't want to call on Monday and have them tell me that I screwed up somehow and they were rescheduling...
  5. lob6796
    I was supposed to have received forms from the doctor about my endoscopy and what pre-op steps I am supposed to take. Since I know with a colonoscopy, your pre-op starts 3 days out, I wanted to ask here - what pre-op did you have to do for your endoscopy? I don't want to call them Monday and have them say "oh well you were supposed to start doing this stuff...
  6. lob6796
    Hahaha! At about 2 months old my daughter had that done. You should have SEEN the look on my face when the tech handed me a bottle full of the stuff to feed her and said "don't get any on your skin".... It IS a very simple, easy procedure that does not do you any harm. If they do it routinely to a 2 month old, I'm sure it is just as safe for an adult...
  7. lob6796
    In 5 days I go for my biopsy. My blood tests already showed positive for celiac so as soon as I have the biopsy I am going gluten free (not waiting on results). I do NOT plan on ever cheating, so I would like to get in all my fav's before the 5 days are up. If you had 5 days to eat anything, what would you eat? What is just NOT the same once you go gluten...
  8. lob6796
    I wouldn't take it so hard. Everyone likes a cake on their birthday, it is an expected part of the birthday ritual. So having some tiny hurt feelings over not getting one is normal. It is also normal for you to feel hurt that they all went and had cake together after without telling you, but their reasoning could have been similar to yours - they didn't want...
  9. lob6796
  10. lob6796
    Yes definetly it can cause all of that. Celiac disease shows itself in a myriad of symptoms but if going gluten free seemed to help, I would first continue to eat gluten, and then go ask your doctor to run a celiac panel on you.
  11. lob6796
    My local health food place has a TON of gluten free cold cereals - lots of differnt kinds, kid flavors, ect.. you might try your local place for some more options.. good luck!
  12. lob6796
    My physician ran a few of the celiac blood tests and they came back positive, so he informed me that he believed I had celiac. he gave me a referral to a GI specialist and said I needed to have a consult with him, then he would do more blood work, then send me for an endoscopy for biopsies, then another consult, then I could go on the diet. I was looking...
  13. lob6796
    Unless you need the test to give yourself piece of mind, I wouldn't even bother. You have the evidence you need to keep being gluten free, so just stick with it. In the future you can tell doctors that you have either celiac or a gluten intolerance proven by an elimination diet. That should be good enough for their purposes. To be tested for celiac you would...
  14. lob6796
    Yep my dad says (I don't drink) that Redbridge tastes kind of like Corona to him. A few restaurants where I live offer Redbridge as a beer option.
  15. lob6796
    Yep. My mom said the other day "oh I got Emily some cookies - they are gluten free!" I was all happy and I went to check hte bag out.. and saw WHEAT FREE in big letters. Underneath in small letters it said NOT a gluten free product. Oh well, she tried!
  16. lob6796
    I wanted to post this separate because I think so many people are under the misconception that because their fries aren't coated, and because they are used in dedicated fryers that they are gluten free. They are NOT. Here are the ingredients.... French Fries: Potatoes, vegetable oil (partially hydrogenated soybean oil, natural beef flavor (wheat and milk...
  17. lob6796
    If her diet is that minimal, she might not be eating enough gluten to show up on the tests. Enough to make her feel like crap, but not in high enough doses for the tests. She might try eating alot of gluten and then getting the blood tests redone.
  18. lob6796
    I am updating my own question, lol but hopefully it will help others. I just called the makers of Rice Dream. They told me that the NFCA guide DOES say that Rice Dream is not gluten free, and at the time of publishing, it was (semi) true. He said that at the time of publication, their company was only able to test to .002% of gluten content. Because of that...
  19. lob6796
    I was reading the brochure that the celiac foundation put out and it said "*caution* Rice Dream contains gluten*. What??? I went to the Rice Dream website and the ingredients are: Ingredients: filtered water, organic brown rice (partially milled), expeller pressed high oleic safflower oil, tricalcium phosphate, sea salt, vitamin A palmitate, vitamin D2,...
  20. lob6796
    In a word - NO. You NEED to be on the gluten free diet. That means no cheating. You might not feel the symptoms so much, but the amount of damage you are doing to your intestines is enormous. It will make it hard for you to get pregnant, and there is a high risk of miscarriage and fetal injury if you are not gluten free. You are so young, and this is the...
  21. lob6796
    I agree. There are some cheapy walmart type ones that the teflon coating actually peels off after a long term use. Those pans I wouldn't trust. But the good kind where the metal itself is basically nonstick, are fine. Oh and for scrubbing the heck out of my nonstick pans - I use a choreboy scrub pad. It looks like a brillo pad but is made out of plastic....
  22. lob6796
    I hate to sink your ship there... but being overweight actually IS a symptom in a lot of people with Celiac disease. Your intestines become damaged from the gluten, and because they now have such a hard time absorbing nutrients, they are absorbing whatever they can and holding on for dear life - which alot of times includes fat and water. My daughter was...
  23. lob6796
    Just wanted to update you all on the letter I sent to Arby's. I received this tonight: Dear Ms._____: Your comments registered to our Guest Feedback system were forwarded to me, Charles Papa, Food Safety and Regulatory Affairs Compliance Officer for Arby
  24. lob6796
    I found this printable booklet that has so much great info in it, I thought I would share! Open Original Shared Link
  25. lob6796
    My daughter had a severe bout of constipation the last two days and it got so bad I called her pedi at 8pm last night. He saw her today and sent her up to the hospital for stomach xrays and blood work. the blood work he filed was a more comprehensive panel for Celiac than he first did (first was just IgA/IgG anti gliadin). The stomach xrays ended up showing...
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