jewi0008
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Latest Celiac Disease News & Research:
Everything posted by jewi0008
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Does anyone else get this?
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ARCHIVED Mouth Blood Blister
jewi0008 replied to whattodo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I get them, too! I don't know what from, though? They appear and then disappear quickly. They are painless. Does anyone that get them have an overall sore mouth, sore oral tissues, sore tongue or sensitive teeth? NOT canker sores...just sore...like irritated sore or burning sore? -
ARCHIVED Why Confirm With Biopsy
jewi0008 replied to bailey4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That is the best advice I've gotten with regards to this whole thing! I'm going crazy, but you're right...I need some sort of baseline. They already told me that they are also looking for UC and Chrons, in addition to Celiac. -
ARCHIVED Why Confirm With Biopsy
jewi0008 replied to bailey4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So if you didn't do it, did you still get the Colonoscopy/Endoscopy? And if so, what were the resutls? I'm so pissed off right now with Dr's. -
ARCHIVED Why Confirm With Biopsy
jewi0008 replied to bailey4's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am very concerned with what I'm reading on here! Someone please help!!! I got the Celiac Blood tests, which were negative. The same day as the GI requested I get the blood tests, they also scheduled me for an Endoscopy and colonoscopy. He said that as soon as my blood tests were done I could stop eating gluten (I was miserable!). So, I stopped eating all... -
So what would you eat on a daily basis? I think I may have this, too.
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Gemini - You said you have Sjogrens. Do you only have the oral part of Sjogrens or do you have the eye part as well? The reason I've never thought I have Sjogrens is because I don't have red, irritated eyes. My eye twitches a lot and I get floaters, but they don't hurt me or anything. It's just my tongue and mouth that feel dry/irritated. So, since you actually...
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TrillumHunter - how old are you? This sounds a lot like what I've had for the past 4 years. BUT...I don't think I have anemia, because all of my blood counts CBC come back within range. This is strange, though, because I'm always cold and bruise so easily? What gives?!
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Laura, The B12 and/or B Complex will definitely help him. I take the B Complex. You need to make sure the B12 is methylcobalamin, though, NOT cynocobalamin. I think I might need to up the dosage. I do not believe your son has that lichen p...I do not have that. You said he has nothing visible in his mouth, correct? Neither do I. That's one part that's...
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Laura... PLEASE feel free to PM me if you want to discuss more. But, I am a 25 yold female. I have had this mouth problem for 4 years now...it's so awful. I developed it right after I had my tonsils out. Then, people started telling me that perhaps I have food intolerances/allergies. I'm still not confirmed anything yet. My mouth constantly feels raw...
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In response to this...sounds a lot like me. How long do all of your periods last now that you are off BC? I feel like in addition to the abnormalities of their frequency, when they do come, they really only last for 2 days and then are pretty much nonexistant. They kind of trickle off for the next 3 - 5 days with nothing really there. Is that normal that...
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ARCHIVED What Is "the Basic Diet"
jewi0008 replied to Missouri Farmer's topic in Coping with Celiac Disease
Sidenote, though, I eat quinoa religiously and it is completely fine. There is no gluten in quinoa. And it tastes so good! -
I was not getting my period at all..then I went gluten-free. Then I started getting every 45 days about. Then last month it was like 36 days and now this month it came after 22 days? BUT, no real cramps or breast tenderness or anything. Is this normal to get your period this soon and feel this good?!
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ARCHIVED Positive Blood Test Result, Negative Biopsy, Geographical Tongue
jewi0008 replied to AJJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Does geographic tongue hurt or annoy you or burn or anything?! -
ARCHIVED How To Tell What The Reaction Is From?!
jewi0008 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Does anyone know the typical timeframe from when you ingest gluten to when the symptoms come? I have been gluten free for almost 2 weeks. I've been eating great. I've been feeling great. Then, all of the sudden on Monday I got sick. I had smelly silent gas all day, a growling stomach and then it was capped off at night by 2 bowel movements of "dark pile.... -
I have heard that most maltodextrin in the US is corn based. Therefore, no. That being said, BE VERY CAREFUL. Maltodextrin is not good for us to eat anyways...it's unnatural and I always react to it. I learned this from my overconsumption of Splenda..which, I have completely cut from my diet!
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ARCHIVED Need Some Input On Why This Enzyme Is Helping So Much
jewi0008 replied to shayesmom's topic in Related Issues & Disorders
Maybe you could put up a daily food journal for us. I take digestive enzymes and I know they help, but I'd be curious to see what you eat/others eat, as my problems have not completely gone away. -
I also had to get mine removed. I never really get sore throats anymore...it's great! However, after I got them out I started to develop other oral problems. Teeth pain, sore mouth, dry mouth, chronically irritated mouth. Hmmm....
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Does anyone know...if you buy a package of coffee and say it's vanilla coffee. The ingredients are 100% coffee and natural and artificial flavorings would this be gluten-free? I'm concerned my coffee is making me sick!
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...and what 4 fruits are these...the low sugar content ones? I need to start doing that!
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ARCHIVED My Eye Wont Stop Twitching!
jewi0008 replied to dksart's topic in Coping with Celiac Disease
The same thing happened to me, but I just got blood tests done for Celiac and they showed that I do NOT have it. Anyways, I agree with the B Deficiency as well as magnesium. I take a B Complex and Cal/Mag/Zinc vitamin every day now....my twitching has, for the most part, gone away..... But I wonder why, if I don't have Celiac, I am deficient?!? -
Can anyone tell me what blood tests you need for Sjogrens? My mouth drives me CRAZY! I don't know what's wrong with it. Been this way for 4 years. My oral tissues kill. My gums. My teeth. Under my jaw. Sides of tongue. I'm going crazy....
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Has anyone ever had a CBC done and it been completely NORMAL yet they still had Celiac?
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ARCHIVED Anyone Else Get Worn Out Or Sleepy Alot ?
jewi0008 replied to thumper's topic in Coping with Celiac Disease
Yes, I get this, too. I crash and I crash HARD! Valentines Day I was sleeping at 5:30pm...my fiance was excited about that one! ha ha. Anyways, does your body feel like a dead weight, too? Sometimes I feel like I'm floating when I'm sleeping and nothing can get me up! -
ARCHIVED Help, Is My Girlfriend Having Celiac Disease
jewi0008 replied to jf.houde's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Interesting. I have had it for so long. Then, I started with the B Complex and it pretty much disappeared, too. In addition, I have awful mouth problems. My mouth is constantly irritated. My oral tissues drive me crazy. NOT like canker sores or sores just an overall burning, annoying sensation, with occassional extreme teeth pain. This flair also goes down...