Jump to content

dadoffiveboys

Advanced Members
 View Profile  See their activity

  • Posts

    102

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by dadoffiveboys

  1. dadoffiveboys
    You need to talk to your doctor, but I don't believe Flonase is gluten-free!! I know that sounds crazy but if you are going gluten-free you definitely need to check all your medicine. My son on medications (in his case was on the nebulizer inhaled medication pulmicort)... his full effective lung was 420. Off medicine and with gluten it was 300. OFF...
  2. dadoffiveboys
    No that was the primary reason I stopped eating gluten - severe back pain. As a note, my dad (who has also stopped eating gluten) was diagnosed with Focal Segmental Glomerial Sclerosis (spelling?) (FSGS) and he was getting nearer to needed a kidney transplant. He went off gluten and his kidney numbers improved to the point where he may NEVER need the transplant...
  3. dadoffiveboys
    Bouts of constipation and diarreah can be signs of celiac or gluten intolerance. Some of your symptoms sound alot like my own - including severe constipation and back pain. So far anyone I've known that I've seen put on miralax ended up testing positive for some kind of gluten intolerance. Asthma can be caused by reflux, hence shown by your "gastritis...
  4. dadoffiveboys
    Just for those curious, here are the ingredients in the new gluten-free Cinnamon Chex: (Just found them YESTERDAY at our local Super Target) Whole grain rice, corn meal, sugar, fructose, corn starch, canola oil, rice flour, salt, cinnamon, brown sugar syrup, yellow corn flour, soy lecithin, color(Yellow 6/Blue2), Peanut Flour, nonfat milk, Vitamins and...
  5. dadoffiveboys
    I had the same reaction you did to the blood tests - only positive to Anti-Gliadin IGA. Every other test and Endoscopy negative. I tested positive for the DQ8 celiac gene and have been on a gluten-free diet for >2 years and feel great! If I eat gluten now though I get a typical 'celiac' reaction - abdominal pain, gas, bloating, diarrhea. #2 (gluten...
  6. dadoffiveboys
    My son tested negative to all the testing AND had the endoscopy and was still negative. He had all the same symptoms you described - below the 1th percentile in weight, diagnosed failure to thrive. He never had pain/diarrhea because he just stopped eating when he started to feel sick. Anyhow, he's now been gluten-free for 1-2 years. He gained 15 lbs since...
  7. dadoffiveboys
    I am also Catholic and since our church only gives out the Eucharist (and not the cup normally) I had to make special arrangements. The priest has a separate small chalice and keeps it separate. I tried the low-gluten hosts first even though I figured I would react.. and I did. If you react to very small amounts of gluten, then it is the wine (Precious...
  8. dadoffiveboys
    My fourth son (of 5) was gluten-free only starting at about 2. We were worried a little because he wasn't talking 'normally' it seemed. When we took him gluten-free, within about 2 weeks his speech picked up dramatically. I would say if you have a strong family history (like I do) of gluten issues, I would definitely keep them off gluten. A 'trial' of...
  9. dadoffiveboys
  10. dadoffiveboys
    I was IgA antibody equivocal only and never "positive" on any of the testing. Under age 3 the testing isn't very good either and my son was like your daughter and I went through it all - including the endoscopy - and got NOTHING from it except the doctor "ruling out" celiac in my case. We went gluten-free anyways and I saw a HUGE improvement and have been...
  11. dadoffiveboys
    Your daughter should go gluten-free too - she should NOT have to be on miralax all the time - that is ridiculous! If you feel better gluten-free you have a problem with gluten - testing results don't matter as much as how you feel. All of your symptoms are that of celiac disease - ESPECIALLY your daughters! BTW - all the supplements you add won't help...
  12. dadoffiveboys
    Only thing to watch for - if you have milk problems, Zyrtec (namebrand) has milk in it.. generic zyrtec does NOT have milk ingredients. (It's part of the inactive ingredients). Allegra I do believe has no allergens at all in the ingredients.
  13. dadoffiveboys
    I do believe the "malt vinegar" on Heinz 57 is made with barley malt - so it won't be labeled but it is NOT gluten-free. I think it is labeled as such but it is definitely NOT gluten-free
  14. dadoffiveboys
    Are you still on this after going gluten-free? One thing to remember is if you take medicine for a condition (say gluten causes it) and you go gluten-free then you need to re-evaluate ALL medications because you may not need them and taking them could actually put you at risk. My father stopped his antiacids a week after going gluten-free when he started...
  15. dadoffiveboys
    Yes - both myself and my oldest son had frequent nosebleeds. Now that he is gluten free, the nosebleeds stopped. He had such frequent nosebleeds he was referred to a specialist to test his sinus for abnormalities (etc..) and they all came back normal, negative, etc. This included tests of blood cell counts, etc because the doctors were extremely puzzled...
  16. dadoffiveboys
    DQ5 is a gluten sensitive gene, DQ8 is a celiac gene. Having both together is much worse than having a non-gluten gene (like I have the DQ4 with a DQ8.) That's all I mean.
  17. dadoffiveboys
    My third oldest (failure to thrive) son is DQ5/DQ8 and I am DQ4/DQ8. We both have 'celiac' in my opinion. My second oldest had severe Asthma and Chronic Fatigue (at 4 years old) and is DQ5/DQ8 as well - which completely went away on the gluten free diet and he is now 6. My oldest son is DQ4/DQ5 but still has gluten problems too. The younger two I haven...
  18. dadoffiveboys
    I use Allegra (available via prescription only) and it seemed to be more 'powerful' than claritin and zyrtec. HOWEVER, because of the new medical insurance rules, I had to TRY both claritin and zyrtec (that month SUCKED) before they allowed reimbursement for Allegra. However, you really need allergy testing because the antihistamines usually only work...
  19. dadoffiveboys
    I went down the same path - FORCING my son to eat gluten for the biopsy. In his case, he just wouldn't eat but one slice of bread every three days and then the pediasure stuff. When it came to the biopsy, it was negative and they had a really hard time waking him up due to his low body weight (took 3 HOURS to wake up). If I had a choice I would have just...
  20. dadoffiveboys
    I am DQ8 / DQ4 - I have problems with Gluten. Your asthma is probably caused by REFLUX from eating gluten. I would bet 6 months to 1 year gluten-free would relieve your Asthma. IBS is probably due to gluten too. You may not have full blown celiac, but you probably shouldn't ever eat it again. I get terrible back pain from gluten, my dad had 30 years...
  21. dadoffiveboys
    I have a DQ8 and DQ4 gene... and I have problems with gluten but was NEGATIVE on the testing. Maybe it's not celiac but a gluten-free diet has helped me tremendously. My wife has two copies of the DQ5 genes, so ALL of our children have problems with gluten. The DQ5/DQ8 ones have a much worse reactions - one had life-threatening Asthma (probably from GERD...
  22. dadoffiveboys
    Your son sounds EXACTLY like my son - same age same symptoms. He stopped eating and the only thing he wanted was to drink chocolate pediasure (it is gluten-free/CF too btw) or eat pure protein (unflavored meat). He was negative on all tests (TTG was 20 and <=20 was negative), including biopsy - but then again when we gave him a slice of bread he didn...
  23. dadoffiveboys
    Well I did the celiac blood tests for myself and gene tests for three of my kids. We all turned up negative on the TTG, IgA and some others. I was equivocal on one test so I decided to cut out gluten. One of my children (negative on those tests) had failure to thrive. So we cut out gluten anyways. All of the symptoms went away. No reflux, asthma problems...
  24. dadoffiveboys
    Yes it is my primary symptom. They were going to give me medicine for reflux but I refused and went gluten-free. I found I had to refrain (for a while) from both Gluten AND Diary to have the reflux go away.. but it went away almost immediately (few days). Asthma took 1-2 MONTHS to go away. My son had severe Asthma (3 yrs old) and we took him off gluten...
  25. dadoffiveboys
    What is the Consolidated Omnibus Budget Reconciliation Act (COBRA) ? COBRA is a federal law that serves two purposes. First, it can extend health care coverage for 18 months past the end of employment if an individual has had medical coverage with an employer. Second, it can help you qualify for a private health care policy. For example, if an individual...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.