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Sailing Girl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Sailing Girl

  1. Sailing Girl
    Thanks for the responses on the cocoa -- chocolate coconut ice cream is on the menu this coming weekend! I had another puzzle: Both my DD and I reacted after eating stir-fried vegetables at my friend's house. The only ingredients were: olive oil, salt, snow pea pods, onion and mushrooms. I trust my friend to cook gluten-free, and his house is almost completely...
  2. Sailing Girl
    JerseyAngel, thanks! I love it when the solution is to buy a simple, mainstream, available-anywhere product. Swansong, I too believe the issue is your non-gluten-free house, not the fact that you make sandwiches for your DH (I'm sure you're really careful about washing your hands afterward!). There's lots of debate on this forum about whether a "mixed...
  3. Sailing Girl
    Hello fellow super-sensitives, Anyone know of a completely safe cocoa powder? Even the one sold on celiac.com (Shiloh's) is processed on shared lines. I want to make chocolate ice cream (with coconut milk), but need some cocoa powder. Any help would be much appreciated!
  4. Sailing Girl
    You likely will find that the hypoglycemia improves markedly or goes away completely on a gluten-free diet. I used to be horribly hypoglycemic -- turns out it was just one of my many gluten symptoms. I'm self-diagnosed, but there's little doubt I have Celiac based on my lifelong medical history (IBS, mouth sores, depression, DH, etc., etc. etc.). But...
  5. Sailing Girl
    Hi LilFrenchie, I used to have the same exact problem, right down to the scabs from scratching too much. I couldn't wear anything dark in color or I'd look like I'd been out in the snow! I tried virtually every shampoo on the market, and none of them helped (plus some of them smelled so medicine-y that I could hardly stand to be around myself!). I never...
  6. Sailing Girl
    Mike, thank you so much -- that's great to know!
  7. Sailing Girl
    Does anyone have a recommendation for a "super-sensitive safe" brand of sugar? I don't normally use sugar (I mostly follow SCD), but I plan to make a flourless chocolate cake for my friend's birthday this weekend. Somehow, the mainstream sugar brands just frighten me -- perhaps I'm being paranoid? Does anyone use a specific brand of sugar regularly and find...
  8. Sailing Girl
    Just placed an order for the Eden tamari -- thanks for the recommendation! I called Eden first, and the customer service rep said it was manufactured in a wheat-free facility. I checked out the San-J website -- their tamari is NOT made in a wheat-free facility (as I suspected, given that they're a small operation and most of their products contain wheat...
  9. Sailing Girl
    This might be better placed in the "Products" section, but I'm really only looking for super-sensitive Celiac feedback . Have any of you reacted to San-J wheat/gluten free soy sauce? I'm having what feels like a mild gluten reaction, and the only possible culprit is that sauce (everything else completely unprocessed). The reaction brings to mind a couple...
  10. Sailing Girl
    My best ally IS my DD -- she really knows her stuff when it comes to gluten free. She, too, forces her father to brush his teeth before giving her any kisses! But she didn't know about the toaster -- we don't have one at home, and never use them elsewhere, so it's a new thing to her. I'll talk to her about it when she gets home tomorrow. Poor kid. She...
  11. Sailing Girl
    It does sound as if he's getting glutened every couple of days. Is Grandma doing the cooking? If so, it could be bad CC (as opposed to actual gluten ingredients). I find that when DD and I spend time at my parents' house, we do best if I make gluten-free breakfasts and lunches for the two of us, and then "help" my mother (which basically means standing...
  12. Sailing Girl
    Thank you all for your kind thoughts. It's horrible when you realize something is harming your child and you're basically powerless to do anything about it. And that's the situation I've been in -- on and off -- since DD's father and I split. I may try meeting with him again, and I may point out that he's hurting her, which he will deny. The meeting...
  13. Sailing Girl
    Thanks, Momma Goose!
  14. Sailing Girl
    Thanks, Stephanie. I've been documenting everything, and even called a meeting with her father about 18 months ago to discuss diet specifically. Things improved for about a year after the meeting (DD's migraines and stomach aches disappeared). So I'm incredibly frustrated (although not surprised) that it's getting worse again. He doesn't believe he's poisoning...
  15. Sailing Girl
    I may be forced by circumstances to attempt to get an after-the-fact diagnosis for my eight-year-old DD (see "Toaster" thread on Parents forum). She's been gluten-free for five years, and I will not put her back on gluten for the sake of a diagnosis. She tested blood negative after she'd been gluten free for more than a year, but was diagnosed as "severely...
  16. Sailing Girl
    I'm about to blow my stack. Some background: My ex and I have been separated/then divorced for almost five years. We split, in part, because I recognized DD's issues with gluten and he ridiculed me for suspecting them and implementing a Gluten-free Casein-free diet over his protests. In the early days, he also deliberately sabotaged the diet (that's a...
  17. Sailing Girl
    DD and I go to Disney *frequently* (my parents live fairly nearby, and we visit Disney and then visit Grandma and Granddad). I agree -- Disney "gets it," and it's pure pleasure to go there. We've stayed both on property and off-site, and I much prefer to stay on property -- you get a variety of perks that way, including extra hours in the parks, free transportation...
  18. Sailing Girl
    Thanks very much for all your suggestions. I'm not sure I can use the Frank's hot sauce, as they do not identify the source of the vinegar. They can say "gluten free" for distilled vinegar even if it's derived from gluten grains, but that doesn't stop me from reacting to the tiny amount of gluten left after distillation. I also react to grain-based alcohol...
  19. Sailing Girl
    I second the vote for Disney Cruise Lines. DD and I have been on three Disney cruises so far (another planned for this summer), and they've been amazing. If you've been following the other recent thread on Disney World, you can tell I'm a big fan of Disney -- but the truth is, they do an *incredible* job of feeding us great gluten-free food, both in the...
  20. Sailing Girl
    Hi Sweetfudge, They'll always have an alternative to potatoes for you -- just ask. I'm not a big fan of potatoes (although I don't react to them), and they generally will have rice if you want. Many table service locations have gluten-free rolls for us, now, as well. If you want something else, call the restaurant ahead of time and they'll do their absolute...
  21. Sailing Girl
    Hi all, Can someone recommend a hot sauce that does NOT contain distilled vinegar? I react to vinegar and alcohol derived from gluten grains, and I would like very much to find a good hot sauce that uses apple cider vinegar -- but I haven't located one yet. Any suggestions would be very much appreciated! Thanks!
  22. Sailing Girl
    Hi Sweetfudge, I'm not sure what desserts are an option in the restaurants you'll be trying -- each restaurant is different. I have in my hand a pre-packaged brownie from the parks (we were just there) that appears to be casein- and lactose-free, but contains eggs (don't know if you can do eggs). You can check out the various pre-set menu options at...
  23. Sailing Girl
    Hi Sweetfudge, Sorry to be so long in replying. The first thing you want to do is get a list of gluten-free foods for all the parks (there are many, many options). Email specialdiets*at*disneyworld.com and ask for the gluten-free lists. Counter service special requests do take longer. When you first arrive in the restaurant, ask any cast member ...
  24. Sailing Girl
    DD and I go to Disney *frequently*, in large part because it's so easy to deal with food intolerance issues there and still feel normal. In general, almost any table-service restaurant (with the exception of some in Epcot and some in Downtown Disney) can handle any and all food restrictions -- you won't be limited to salads! (Many times, when we say the...
  25. Sailing Girl
    It's so, so frustrating -- sometimes family seems completely unable/unwilling to "get it." I feel like my daughter and I dodged a bullet on Christmas Eve. I'd spent the day preparing gluten-free food in my parents' gluteny kitchen, and was confident that everything (save for the awful pies) was safe for us. I left for the airport to pick up my brother...
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