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Lizz7711

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lizz7711

  1. Lizz7711
    Yes, positive Enterolab stool tests...positive blood tests, no biopsy...also have DQ2 gene.
  2. Lizz7711
    That's one of the reasons I thought it wouldn't be so bad to test now as the reaction may not kill me I'm not saying it's "smart", but I keep reading about people getting deathly ill...and I just want to know what MY body will do. Maybe my reaction will be more like I have with casein...it would just be nice to know ahead of time.
  3. Lizz7711
    I've been gluten-free and CF for two months now and I really haven't noticed any major changes. I was only experiencing minor digestive issues which are improved somewhat but not in a big way. When i've inadvertently gotten casein, i"ve noticed right away with body issues (headache, joint pain, sleepiness). Since i've been so good with the gluten, a...
  4. Lizz7711
    I agree with telling the doc. But i'm also wondering why others are not recommending a blood test. The IgG antibodies stay in the system up to 6 months I think... It won't change anything, but can't hurt either. But I totally agree with not eating gluten beforehand or anything. Glad to hear how good she is doing! Liz
  5. Lizz7711
    My 8 year old and I are both gluten and casein sensitive per entero lab. As others have said, getting used to non-dairy isn't so bad after a while. There are also some decent Rice Dream ice cream flavors! We use the earth balance butter also...it's soy but small amounts. Ghee would be better I guess but I haven't seen it yet to buy it. One thing i've...
  6. Lizz7711
    Hi Geoff, How did the biopsy go? Any results back yet? How was the experience? hoping all is well, Liz
  7. Lizz7711
    For those of you posting about being cold and having normal thyroid, check into your adrenals. They majorly impact body temp and are commonly fatigued/burnt out with people having food sensitivities. A good website is www.stopthethyroidmadness.com Lots of thyroid but also adrenal info. Here is a site that shows you the difference between adrenal/thyroid...
  8. Lizz7711
    If I was in your shoes i'd probably do the biopsy too...hope it goes well and let us know the results! Since I may still decide to do it too (i've only been gluten-free for 2 months), i'm curious as to what it's like! Kind of alarming his comment about 100 GI's. But I do think the regular med. establishment is starting to catch up with the realities of...
  9. Lizz7711
    I would go gluten-free, and probably casein(dairy) free also. The proteins are extremely similar which is why the body often has a problem with both...but some people report being able to add dairy back in later, not gluten though. The endoscopy is valuable to know how much damage to the villi you have, but there is alwasy a chance they will take the samples...
  10. Lizz7711
    Your regular doctor and GI guy most likely will now know much about adrenal testing (or think it's important). They will know about testing for hypothyroid--i'd be sure to ask for TSH, free T4 and free T3 for that. For more "unorthodox" but highly informative info on thyroid/adrenal issues go here: www.stopthethyroidmadness.com Click on the left of main...
  11. Lizz7711
    You might want to look into how your adrenals are doing....the extreme fatigue is probably due to them being totally fatigued after years of dealing with gluten coming into your system and immune system in active gear all the time. My doc prescibed cortef (low level hydrocortisone) for me based on symptoms (many) of adrenal fatigue and I felt so much better...
  12. Lizz7711
    My daughter has DQ1 and DQ3...can't remember the subtypes right now and am not at home to check, but I think it was 6,7. That's interesting that DQ1 are more sensitive initially. My daughter's reactions, while she does have some abdominal pain and hard stool issues...what is most pronounced are her behavior issues when she gets offending foods--she just...
  13. Lizz7711
    How did you figure out that you were also sensitive to nightshades and salicylates? I think I have a reaction to white potatoes (joint pain issues), but haven't noticed reaction to any other nightshades yet. I was trying to determine if my daughter has salicylate problems, initially that is what I looked at due to her terrible behavior issues (rage attacks...
  14. Lizz7711
    Thanks for the advice...I agree with you that it really is the same as far as seriousness...and I think the medical world is beginning to catch on to the whole non-celiac gluten sensitivity issue. I'm like you where i've had a whole lifetime of depression, adrenal and hypothyroid problems (undiagnosed), miscellaneous digestion issues...and now at the age...
  15. Lizz7711
    Hi, i'm just trying to clarify the difference in diagnosing gluten sensitivity versus celiac disease. I did entero lab first and these were the results: antigliadin IgA : 56 (normal <10) anti tTG IgA: 39 (normal <10) microscopic fecal fat score: <300 units (normal) anti-casein IgA antibody: 34 (normal <10) Gene test: HLA-DQ 2,1 ...
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