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Lizz7711

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lizz7711

  1. Lizz7711
    NIght sweats and catching viruses easily makes me think thyroid/adrenals. I just found out i'm celiac and also hypothryoid and I have adrenal fatigue...so i'd get those checked out for sure. I'm no expert, but I believe the lymph system is a huge indicator of inflammation and the immune system going into action. If you have multiple inflamed lymph nodes...
  2. Lizz7711
    Hypothyroid and also low iron/ferritin, can cause hair loss. To check thyroid, ask for TSH, free T4, and freeT3 to be tested, and then have it interpreted by a holistic MD preferably. Anything over 2.0 TSH WITH hypothyroid symptoms can be hypothyroid and can be treated, prefereably with Armour which is dessicated pig thyroid and will give balanced T3 and...
  3. Lizz7711
    Done, sorry! I meant to delete it before I posted..
  4. Lizz7711
    That dogtor site looks interesting, i'll have to spend some time to read his articles. I never considered that the "gluiness" of these starches stayed gluey even after going through the stomach and that it was that aspect that damaged the villi. But, I'm sure i've been a celiac my whole life (i'm 42, just diagnosed), but although I didn't have a biopsy...
  5. Lizz7711
    LOL, that's hilarious! I think i will do that for my daughter so that she can hear what she sounds like. I think if she heard it when she was totally normal, she might realize the extent to which this stuff hurts her. Sometimes it seems like in her memory, she was just really mad at me...she doesn't remember the perseverative and repetitive talking or the...
  6. Lizz7711
    That's great that she's taking ownership of what she can and can't eat I know you just started the diet so you're in transition...but if you really want to go gluten free she can't have school lunches at all. Wheat is in so many ingredients, sauces etc, that there is no way to avoid it even if she sticks to meat and veggies...and the cross contamination...
  7. Lizz7711
    You're right there is not much info on casein out there...i've been wondering why as well. I think it's because it's still an unrecognized sensitivtiy by the scientific community. They are used to milk allergies to be in babies and grown out of. I did find a few articles when I searched "adult onset milk allergy"--my own reactions to dairy after being off...
  8. Lizz7711
    Wow, your daughter sounds just like my 8 year old..i've posted several times about her behavioral issues. I think if you're like me, you KNOW when it is food related behavior versus just regular bad behavior. The food related behavior is so overboard and irrational and uncontrollable. Before we diagnosed gluten problems, I took my daughter off all food...
  9. Lizz7711
    I would really advise against introducing gluten at 4-6 mnths! First of all...in general you're supposed to wait til 6 months for any solid foods. But more importantly, every recommendation i've seen (and i'm studying maternal nutrition right now) says to wait till 12 months to introduce any of the common food allergens such as wheat, nuts, eggs, soy etc...
  10. Lizz7711
    Someday they'll probably come up with some medication to "cure" celiac disease, but guaranteed it will come along with negative side effects that just screw up some other part of the body...being able to FIX celiac disease solely by diet makes it the most manageable disease on the planet when you think about it...the cure is easy and no side effects! (other...
  11. Lizz7711
    Hi Geoff! I just happened to check this forum today and noticed your post, good to hear from you again! You can take up to 5000mcg of B12 without problems, so don't worry about taking a couple of those a day. If you can get your doc to prescibe cortef for you that would be great...tell him you just want to try it for a month if he's unsure..and...
  12. Lizz7711
    Probably some withdrawal issues which should go away soon. Or maybe she's feeling better physically, more "chipper" and so less wanting to reign herself in. How old is she? I'm sure she'll settle down soon...i'd keep a food diary if you can though...then you can make associations in case there are any other foods causing problems. Liz
  13. Lizz7711
    No problem. I just learned in my maternal nutrition class that human milk is the opposite of cow's milk in that the majority of our milk is whey, with small amounts of casein. So it makes sense that our digestive systems would not handle it cow's milk very well--it simply wasn't designed for humans to consume! take care Liz
  14. Lizz7711
    Are you living in Pakistan still? I absolutely love Indian food as long as it's not too spicy. ok, I think based on your kids' issues, that you really may want to cut out ALL dairy..even the one glass a day and the yogurt. You can do it for 3 weeks, then reintroduce it and see what happens. The other thing is that your son might have a leaky gut...
  15. Lizz7711
    Out of my own curiosity I looked up cow's milk on wikipedia and below is what they said. So i'm wondering if the allergist is just confused because they're not used to seeing casein sensitivity. I'm not sure what protein the "typical milk allergy" is related to, could be one of the whey proteins I guess. I don't think it's necessarily related to celiac...
  16. Lizz7711
    If you still have symptoms, i'd recommend cutting out all dairy and soy as they often cause problems for celiacs (the proteins are stucturally very similar so the body thinks they are the gliadin invader). You can try it for 3 weeks and then do a challenge by adding in some soy and waiting a few days to see how you react, then try dairy etc. I was vegan...
  17. Lizz7711
    I don't know if they are gluten-free for sure, but I had a TAzo tea last night and had no problems. Could be the natural flavoring though...everyone reacts differently to those, it could be that you reacted to an ingredient in that, not necessarly that it was gluten. I found that I react to the lemon flavoring in cArlson's fish oil...but I don't react to...
  18. Lizz7711
    Sensitivity and allergy are along the same continuum. These terms are often confused by most people, even medical personnel. The body is mounting an immune system reaction to the protein (casein). When people say you are allergic to somethign, that is usually equated with severe life threatening reactions that are obvious to everyone. These reactions are...
  19. Lizz7711
    BEing Asian, do you use alot of soy sauce and fish sauces? If he has any sensitivity to soy that could be a problem (and as you probably know you need to use tamari since soy sauce has wheat in it also). Another thing with the asian sauces to look for is MSG or hidden MSG and other food additives, also food colorings in candy. Many people with digestive...
  20. Lizz7711
    Technically my daughter shouldn't have milk chocolate due to milk protein...but since she hardly ever eats it, I haven't been too strict on it yet..but she knows the day is soon coming when we will eliminate it completely...we were waiting till after easter...pretty soon all the chocolate will be gone. I've been slowly introducing her to dark chocolate which...
  21. Lizz7711
    Sorry you're feeling so bad. My dad had shingles a year ago and is still suffering the nerve pain, it's horrible. Do you have any lab results you can post? i.e. thyroid, CBC, iron/ferritin, etc.? Also, have you eliminated any other foods like dairy or soy at all? And are you taking any vitamin supplements and what ones? Are you on hormones? Liz
  22. Lizz7711
    Yes, I think the correct term for what we are all dealing with is "gliadin sensitivity" rather than gluten sensitivity, since it really is the gliadin protein that is the problem. Liz
  23. Lizz7711
    We are dairy free also, and now if I have dairy, i have terrible almost allergic reactions (tight throat etc), and headaches/joint aches...so I don't touch it myself. But you could mix the cod liver oil in a smoothie or applesauce too! Lots of people have low vitamin D, not just celiacs...and it will take supplementing with 2000IU or more per day to...
  24. Lizz7711
    My daughter has not even been to a doctor about her gluten issues. I had her tested through enterolab.com, she was positive for gluten , casein, soy , and eggs...I was also positive through them and also through blood tests for celiac and I have the celiac gene DQ2 and gluten sensitive gene DQ3 (my daughter had genes dQ1 and dQ3). I opted not to have the...
  25. Lizz7711
    Hi Joni, With Carlson's, you have to get the lemon flavored one and mix it with something like yogurt. I often put it in with my smoothies, my daughter doesn't mind just drinking it off the spoon, but i have a hard time with the oil texture myself. Anyway, you can get Carlson's or NOrdic Naturals capsules, but you have to take more of them to equal the...
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