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tom

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Everything posted by tom

  1. tom
    Hall's Sugar-free cough drops ARE gluten-free, tho the rest of their cough drops are not, per Open Original Shared Link Another good list is at Open Original Shared Link
  2. tom
    I think it's pretty typical of many things biological to have an increased sensitivity to a stimulus after that stimulus has been absent. I'm certain i became far more sensitive to gluten after a few weeks gluten-free. Maybe more so after months.
  3. tom
    Seems to me most of us know we "really have symptoms", biopsy or not. Whether or not a doc sees damaged villi won't change your behavior, right ? Re: DQ2 - My doc said that 90% of celiacs have DQ2( or DQ2 and DQ8), while the remaining 10% have only DQ8. One copy of either is enough to have the disease. The only difference in your having 2 copies of DQ...
  4. tom
    Hehe the LONG posts are PAGES long. I'm no expert, just a long-suffering celiac who's read a lot online, but i've never seen a situation where after the diarrhea begins, the person is able to do what u did. To me, the endoscopy test seems pretty subjective. Diff docs can interpret results differently. I've read how much a difference there can be in...
  5. tom
    I've seen some brands of Honey Roasted style nuts which had a bad ingred, tho i can't recall which ingred, or which brands. The xanthan gum isn't the problem tho. The Sep30-04 edition of the safe-list pdf i use has this for Planter's. Planters Nuts (roasted & salted only; no "flavors" except Honey Roasted) According to this, their Honey Roasted...
  6. tom
    The article at quackwatch.org is talking about a diff method, i think. Open Original Shared Link It's called ELISA/ACT, and is not the same as just ELISA. The last line of the paragraph about ELISA/ACT is : "[Note: This test should not be confused with the ELISA test, which is a standard test for certain infectious diseases.]" Admittedly, it doesn...
  7. tom
    I too was a ton better w/in just a few days of 100% gluten-free. Try it !
  8. tom
    I'd clean it and use it too. Maybe do the test-loaf throwaway idea also. The store-bought gluten-free breads just don't come close to gluten-free breadmaker bread.
  9. tom
    I just bought the Breadman TR2200C Ultimate Bread Machine ! Found that it IS programmable also. I just didn't want to end up wishing i had the versatility. Walmart.com actually has it online for $74 or so. (msrp $150 i think) I got it at Kohl's Dept Store for $120, but also got a 2nd for 1/2 price. Hehe since it was my sister that 1st made me the bread...
  10. tom
    WHy not stop the gluten, maybe feel a LOT better and do the genetic test.
  11. tom
    hehehehe i remember the realizations like this. It can be a pretty long list. I think the times i had a bone chipped when the docs expected to see a break were also somehow related to celiac disease, tho i haven't heard much about bonechips.
  12. tom
    Ahaaaa thank u Freya, i hadn't realized the quick-bake option could be single rise. That expands my selection greatly. Do you remember which store had Oster or any store u went to that had decent selection ?
  13. tom
    I thought there was a difference in the set of anti-bodies for celiac vs gluten-intolerance. There are ppl who frequent this forum who know the specifics. Or just search for IgA and/or some of the other terms. There is a genetic test. Either the celiac genes are there or they're not. If they are, you'll be glad u didn't wait for a positive biopsy. Your...
  14. tom
    I ended up making 2 gluten mistakes after starting gluten-free. At the beginning tho, i felt SO much better it didn't occur that gluten was still sneaking in. Then maybe 2 mos in, i'd realized that i'd plateaued and started rechecking EVERYTHING. Although i was sure i'd checked every ingred in every pill b4, i ended up finding that the Vit C i'd been...
  15. tom
    There is a PF Changs downtown. They even have a separate gluten-free menu. Also, a Phx celiac group has a website Open Original Shared Link and in it a page on restaurants. Open Original Shared Link My mom lives in Phx now and i'm looking fwd to trying some of these myself !
  16. tom
    The mix my sister used (Bob's Red Mill gluten-free bread) req'd that all ingred be at room temp b4 tossing it together in the machine. I remember eggs and some cider vinegar, but there may be another ingred. Ahh just looked - there's also milk (cow, rice, or soy) and oil. But once the ingred are ready it is just toss 'em in and push a button. Only some...
  17. tom
    Celiac will cause a multitude of gradually worsening symptoms, while an allergy will produce a temporary reaction to the allergen. The scope of celiac symptoms can be staggering. (literally for those of us affected by cerebellar ataxia - it becomes difficult to walk w/out some stumbling due to a loss of fine motor control) The disease has associated...
  18. tom
    I too am buying one very soon. (the loaf my sister sent me home w/ after thxgvg is almost GONE !!) I could barely believe gluten-free bread could feel like real bread, it was sooooooo good. It was from a mix - Bob's Red Mill gluten-free bread mix. Anyway - i've searched around and found that some celiacs like the $200 Zojirushi, while others prefer Salton...
  19. tom
    I couldn't believe the Dr i saw last week recommended that i eat a 1/2 slice of bread every day for a month, so he could get bloodtest results. I had specifically looked for a doc who wouldn't be so ignorant. I haven't had real bread in yrs, tho only 100% gluten-free for 11 mos. I thought i'd made it very clear to him that i will NOT be ingesting gluten...
  20. tom
    I'd been having rice bread for years. and found i liked the EnerG brand best. But it's not even CLOSE to how great breadmaker bread can be. Over thxgvg my sister showed me how easy it is and how great gluten-free bread CAN be. I'm getting a breadmaker very soon. Heck maybe today - the loaf i brought w/ me on the plane back from sis's is almost gone !
  21. tom
    The pills only provide the enzyme (lactase) needed to digest the lactose. The casein is a separate issue. I've found many lactose-free products which are not casein-free. Even the so-called "non-dairy" creamers typically have sodium caseinate and they even put in parenstheses on the label "(a milk derivative)". I still don't get how this came about that...
  22. tom
    Maggie, Many times i just eat before i go. I've found it far easier to not expect any suitable food at all, and i have a MUCH better time than reading all the ingred labels and having to decide whether to bother correcting person X's "so it's an allergy?" question and wondering whether any backseat chefs thought 'it needed a little more ______' and used...
  23. tom
    Mine's gone away enough i expect to get back to playing b-ball soon. 42 now, and haven't been able to play for 5 yrs. Started gluten-free (finally) 11 mos ago.
  24. tom
    I think most of the scoping is down the esophagus. It's an Upper Endoscopy. Open Original Shared Link Re: your sister's negative blood test. Earlier this year, a Columbia U study found an astounding percentage of false negatives in the classic celiac blood (serological) test. https://www.celiac.com/st_prod.html?p_prodid=1023 They started w/ 115...
  25. tom
    Before i started having the bone pain, i really didn't think of bone as HAVING the right nerves. Mine went away kinda slower than the other worst symptoms did, once i went 100% gluten-free. But it did go away for the most part. I remember fondly the 1st time i went 8 hrs w/out thinking "can i take more advil yet". I'd spent too many days waiting for the...
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