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kejohe

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Latest Celiac Disease News & Research:

Everything posted by kejohe

  1. kejohe
    My husband works for social security and says that this kind of disability, if biopsy diagnosed, may be covered by SSI, because it's also covered under the Americans with Disabilities Act, especially if your husband has other disabilities and cannot work, and you are going to school to better yourself. The only way to find out would be to file a claim, but...
  2. kejohe
    Sarah, Your story breaks my heart, but at the same time I so know how you feel. I can say I'm at least a little luckier in that I only have 1 child to drive me nuts, but when he decides to be a brat, watch out! I think that temper tantrums come with children whether thay are celiac or not, but the common level of severity in celiac children seems to bear...
  3. kejohe
    I agree that the Kitchen-Aid will do the job and do it well, I have one myself. I am a chef and an instructor at a local cooking school, so I have had the opportunity to get to use every kind of mixer from the cheapies to the cadalliacs. And I can tell you this: Kitchen-Aid - (250$-300$) you get a great value for your money, large capacity, but it takes...
  4. kejohe
    Here goes! I like the idea of having brunch for valentines and my men (hubby and son) really enjoy this one! Crepes w/ warm apple compote: makes about 14 crepes 1
  5. kejohe
    Hi there, I posted in the sleep catagory not too long ago about my son's sleep issues. He's three now, and still has trouble sleeping through the night. He was diagnosed about two years ago, and since then it seems like his night time issues have lessened but he still wakes up 3 and 4 times a night with the occasional night terror as well. He used to have...
  6. kejohe

    ARCHIVED Choc Cake

    kejohe replied to a topic in Gluten-Free Recipes & Cooking Tips

    Jo Ann, Did you try this reicpe that I posted above or the one in the Bette Hagmans dessert book? Cuz I have never turned out a dry or heavy cake, it's actually very light, almost fluffy. I wonder what happened, I use this recipe in my gluten-free cooking class and it always went over really well, especially when I made it with the chocolate. Sorry...
  7. kejohe
    Hi all, just dropped by to add my two cents on reaction times. My son (celiac disease/gluten-free for 2 years) takes a while to have a reaction when he gets contamination, sometimes as much as three days. But he stays sick for a very long time, a couple of weeks usually. He gets the typical diarhea, and he gets moody, and towards the end he tends to suffer...
  8. kejohe
    Good question. I thought at first that it had something to do with the last dated posting on the topic, but if that was true, wouldn't they be shuffled to the back so the new ones are at the top of the list? Now that I know that the new data is on the bottom, I check them all, but I am concerned that the new folks will miss a lot on info if they can't see...
  9. kejohe
    That is so cool! It makes me remember the frst time I made my son his "special" cookies and he ate one right out of the oven, his million dollar words were "no touch daddy, it's mmmmyyyyyy cookie!" and now I've got a bag in the freezer all the time! I just ordered those cookies everyone suggested from mi-del, I hope they get here soon, Bryce starts a...
  10. kejohe

    ARCHIVED Choc Cake

    kejohe replied to a topic in Gluten-Free Recipes & Cooking Tips

    Hi Stacie, I have heard nothing but good things about hte recipe that Angel posted, though I have not tried it yet. But I also thought you might like to try this one too if you are looking for a chocolate cake, I made it it my last class and it was oh so yummy! Depending on your oven, you may need to bake it longer than the time written. I serve mine with...
  11. kejohe
    I was also told to stay away from all pre-shredded cheeses because they are tossed in flour to prevent tham from sticking together. I just buy blocks and shred my own, and my celiac disease baby has no problems. Also, the seasongs could be an issue too, I tend to stay away from any pre-seasoned meats, cheeses and spice mixes because they use wheat flour as...
  12. kejohe
    Last I saw MSG (monosodium glutamate) was ok for celiacs, or at least it was listed on safe list on this sites homepage. In any case, MSG is no good for you anyway, it's basically a chemical, and it's meant to bring out the flavor in foods, sort of the same as salt. It's very high in sodium, and can really comtribute to high blood pressure. Hope this...
  13. kejohe
    Thirds from me and THANKS to all the staff at Celiac.com!
  14. kejohe
    Wow, travelthomas, I had no idea that anyone would find this board that difficult, I happen to really like it. I realize that everyone has there own preferences and that for some change can be difficult, but I would hope that a chance for new and updated information would exite you. This board gives us a chance to really talk and help and ask questions...
  15. kejohe
    Lisa!! Hi I live in Anchorage and have a 3 y/o with celiac disease. He was diagnosed 2 years ago, and has a great ped, but I was really dissapointed with the gastroenteroligist that we were refered to. Michelle was good with contact information and I think she had some good website suggestions too. But I would suggest calling a diatician I know at Prov, e...
  16. kejohe
    Hi Stacie, I try to make my own bread when I have time, but I also like kinniknnick too. My son eats and loves both the white sandwich bread and the tapioca bread. There is a white Italian bread they sell that isn't too bad, I uses it for garlic toast when I make pasta. Both the white sandwich and the tapioca bread hold up ok when toasted for sandwiches...
  17. kejohe

    ARCHIVED Fast Food

    kejohe replied to tgcatmr's topic in Gluten-Free Restaurants

    Regarding Outback.. Last I heard, their "chocolate thunder from down under" brownie if flourless and gluten-free! Cool huh?!?!
  18. kejohe
    Hi Suzanne, I was a liitle worried when I first started making my sons rice cereal too, because, you're right, plain rice doesn't have everything they need to thrive. But I talked to his Doc and he was the one who suggested mixing it with a fortified formula. That way, he not only get thet the nutrients from the formula, but the needed calories and intro...
  19. kejohe
    I should have mentioned earlier that when I substitute potato flour for starch in a cookie recipe, there is usually a combination of flours, as it is in most gluten-free baking. When I make cookies I will usually use about 1/2 rice flour and a quarter each of tapioca and potato, and in this case I can turn out some really good cookies. When you use something...
  20. kejohe
    My son is 3 y/o now, but I made his rice cereal from scratch. Just steam or boil white or brown rice like you would if you were making it for dinner, but with a little extra water. Then I just put it in my food processor and pureed it with his formula until it was runny enough. When I started him on veggies, I mixed a tablespoon or so into his rice cereal...
  21. kejohe
    I whole heartedly agree with julia_mom, kinnikinnick does make the best bread. And they have doughnuts and cinnamon rolls too!
  22. kejohe
    I have never tried to convert potato flour by adding anything to make it more strachy. But i have used potato flour as a straight across replacement for potato starch in some things. In dryer applications like cookies, starch or flour can be used, usually without any problems. In moist applications like cakes, potato flour is heavier and can make a cake a...
  23. kejohe

    ARCHIVED Insomnia

    kejohe replied to willow's topic in Related Issues & Disorders

    Hi, I'm not a diagnosed celiac, but my son is. I just recently posted in the "Sleep" section about kids sleep habits. My son is 3 y/o and still wakes up several times a night. I don't know if that is because of his celiac, or just because he's a 3 y/o kid, but either way, some of the replies I got made me wonder about insomnia being a heriditary thing, with...
  24. kejohe
    My in-laws sent me a menu from a restaurant called "Corbetts" in the Portland, Oregon area, that has a menu that is mostly gluten-free, and each menu item is clearly labeld Gluten Free! Is that cool or what. Unfortunately I am in Alaska, and can't go and check it out, but if any of you try it let us know how it is! It's a fish and chips type place.
  25. kejohe
    There is a new book comming out this spring called "A personal touch on Celiac Disease", a few of us on this message board have put stories and recipes in it so you should look for it when it comes out!
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