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jparsick84

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Latest Celiac Disease News & Research:

Everything posted by jparsick84

  1. jparsick84
    I was told by an ignorant doctor that DH doesn't mean Celiac. However, the brilliant dermatologist who diagnosed me (took one look at my skin and said "I think you have DH. Let's do a biopsy to find out!") told me that DH=Celiac. He might have just been saying this so I would accept the gluten-free lifestyle for life, but since eliminating gluten, wheat...
  2. jparsick84
    If you're a poor college kid like me, Swanson's beef and broths are both gluten-free and affordable. That's pre-made broth, though, not bullion.
  3. jparsick84
    The new Berry Pebbles is NOT gluten-free...I checked the last time I was at the store and was rather disappointed. On the up side, if you're ok with oats Kix cereal seems to be ok. I've been eating it for about a week now with no reaction, but it does have oat flour.
  4. jparsick84
    Yes, Ukrop's is really good about gluten-free stuff. And Busch Gardens is really good about letting you bring your own food into the park (the whole family-friendly image). And if you go to Busch Gardens, make sure to take in some of the shows - they're really spectacular!
  5. jparsick84
    Hey, I just wanted to see how many other Celiac librarians were out there. I'm actually a MLS student, but will be graduating on December 13, 2008. I know sometimes it can be really challenging in our field. This winter, I got sick at work (public library) because someone brought in a cake and left it on the staff "eating" table and some crumbs must have...
  6. jparsick84
    Being the second autoimmune disease in the family, I have to say I was expecting more support on my issue. Nearly every male in my family has diabetes so everyone understand the No Sugar with diabetics. But I think the issue with Celiac disease is that it's just too hard for them. If one of the diabetics accidentally gets a plate with a few sugar grains...
  7. jparsick84
    This is true. While I've never had a problem with the regular potato chips, Cheetos, or Fritos, I did buy a bag of Baked Lays the other day and got sick. When I finished the bag a week later (wanting to double check if that was it), I did have a reaction but only a weak reaction (i.e., just a few bumps on my elbow instead of bumps all over my feet and rump...
  8. jparsick84
    The best advice I ever got was "If it hurts, don't do it!" I was diagnosed DH (just skin biopsy, no internal tests) in Virginia, but when I moved to Florida and tried to find a doctor, they told me that a DH diagnosis doesn't mean I have Celiac (untrue, by the way - if you have DH, you have Celiac disease. DH is a symptom of Celiac disease). They also...
  9. jparsick84
    Yes, I think there's still interest. It may be hard to rustle up people during the summer, but I know of at least 5 Celiac students at FSU, so maybe we should plan a date once the students come back to town? And if anyone just wants to get together for dinner one night this summer, PLEASE contact me! (I'm dying for some Outback...) ~ Jennifer
  10. jparsick84
    Thou shalt keep the bread basket far away from my plate at restaurants. Thou shalt ask before cramming your face if eating pizza/fried chicken/beer/<insert favorite gluten item> in front of me hurts my feelings. Thou shalt not complain how long it takes at the grocery store to find gluten-free foods. Thou shalt use "Soooo...I brushed...
  11. jparsick84
    I agree with what everyone else has said. Ultimately it's your decision, but being so young, it would be easier for you to change jobs. If it were just the hands washing issue, you could probably get away with wearing gloves at work, but if the smell of the waffle cones is giving you a headache...you can't really take an oxygen tank to work. (Well, you...
  12. jparsick84
    This sounds gross, but when I'm craving salty stuff, I'll shake a little salt into my palm and lick it off (just like a tequilla shot). I'll wait a minute, see if I'm still craving it - if so, another small shake. If not, then yay! I subdue the craving without the calories...Strange, but effective. Of course, I have low blood pressure, so this is safe...
  13. jparsick84
    This is SUCH a great idea!
  14. jparsick84
    I've found that making my own Chinese food at home is actually better than any store. Sunbird makes little spice packages that help make your meal taste like "the real thing" so you might want to look into making your own Chinese food. I've been making fried rice for a year now, and just tried making egg drop soup last month. Last week, I tried lo mein...
  15. jparsick84
    While I have had a terrible reaction to Trix cereal, Fruity and Cocoa Pebbles are both ok with my system.
  16. jparsick84
    There's a few things to remember, Amelia: 1) People at this age (20s) are selfish, and there's nothing you can do about it. I went through almost exactly the same thing as you did - diagnosed, then off to school. Only in my case, it's grad school, and all my classes are online so I don't ever actually meet anyone. On the plus side, I have my OWN...
  17. jparsick84
    I'm ok with oats - the problem here is the fact that they share lines with wheat. Anything that is said up-front to share lines with wheat I ALWAYS have a bad reaction. One way you can test if it's the oats is to get the Rob's Red Mill Gluten-Free oats. They have been harvested and made in a dedicated factory, and I ate an entire bowl the other day and...
  18. jparsick84
    Wow, I'm surprised at some of the responses on here! In my experience, if I tell someone I'm allergic to wheat, they take me much more seriously than saying that I have an autoimmune disorder. After I tell them I'm allergic to wheat, the next question is usually "Oh, that sucks! So what happens when you eat wheat?" I smile grimly and tell them that...
  19. jparsick84
    Is the Tally support group meeting through the summer? I haven't heard anything from anyone and just want to make sure I'm not being left out of the loop... Are any of the students in Tally for the summer? I'd love to meet up with you if you are!
  20. jparsick84
    Feeling depressed is one of my symptoms. I can tell when I've been accidentally glutenated because I start to despair that my life will never get better, and then I can't stop crying. One day it was so bad I couldn't get off the couch the whole day - just laid there in a daze, trying to pull myself out of the funk but not being able to. This is a big...
  21. jparsick84
    I'm a grad student, and have less time to cook than ever! I tend to do all my cooking on one day of the week, and make large portions so that I will have leftovers during the week. Chili, pepper steak with rice, a large cut of meat with potatoes and broccoli (cut the meat before you put it in the fridge though, or it's way harder to portion it out later...
  22. jparsick84
    Yes! Since going gluten-free, I've discovered I can't tolerate artificial sweeteners - which includes sugar-free gum, diet soda, and Splenda. I'm sort of hoping that once my gut heals I might be able to tolerate them again later, but I'm not holding my breath. Have you noticed the reaction with other artificially sweetened things?
  23. jparsick84
    I have had my gallbladder out. I was 19 when I started having chest pains, and thankfully my dr. remembered that they can sometimes be linked to having gallstones. It is a laproscopic procedure, which means they just make some tiny cuts in your stomach and use small cameras and teeny clippers to cut it out. It is also just a day procedure - I left the...
  24. jparsick84
    Jax's "The Gluten-Free Bible" Seriously, it has saved my social life more than once.
  25. jparsick84
    I know that we're all supposed to be positive, as it will help us with our new outlook on life, but sometimes I just SO resent this disease!!! I just don't feel like I should have to eat before an event with food. No one else has to do it, not even my diabetic brother, and my family still doesn't get the whole "one crumb is all it takes." I can't stand...
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