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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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To the PepZin GI you can add 8 - 10 mg of Biotin to speed healing.
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ARCHIVED Is Blood In The Stool A Sympton?
ShayFL replied to driedupfish's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you eaten beets? (not a problem then). Bright red? (could be a hemmoroid or a small tear in the anus). Or dark red? (could be something more serious and you should see a doctor as soon as you can). -
ARCHIVED Diagnosis
ShayFL replied to Live2BWell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You are testing positive in antibodies to Gliadin which is a glycoprotein (a carbohydrate plus a protein) within gluten. This means your intestines are compromised allowing gluten into your bloodstream (it shouldnt be there!!) and your body is "attacking" it (that is why there are all of those antibodies). The gliadin/gluten attaches to all sorts of sites... -
ARCHIVED How Gluten Free Is Your Home?
ShayFL replied to Merika's topic in Coping with Celiac Disease
My policy is NO GLUTEN INSIDE. DH and DD can eat in the garage or on the porch for gluten foods. Gluten foods do not even touch my countertops or my dining table. This makes it so I at least have one place in the world to relax: MY OWN HOME. The reality is that neither of them eat much gluten foods anymore unless they are out away from home. DD still... -
ARCHIVED First Day gluten-free
ShayFL replied to artselegance's topic in Gluten-Free Foods, Products, Shopping & Medications
Your biopsy shows you have villi damage. The tips of the villi must heal before you can digest dairy properly. You can try just gluten-free and see if you get better. If you dont, then you can take out the dairy and soy. Getting well is a personal journey. It works differently for each of us. But we are here to help you along the way. -
ARCHIVED First Day gluten-free
ShayFL replied to artselegance's topic in Gluten-Free Foods, Products, Shopping & Medications
If you are going for a GOLD STANDARD diagnosis, you need to stay on gluten for now because if your bloodwork comes back POS, they will want to do a biopsy on you. If you dont care about a Dx....and just want to feel better now....then you can start a gluten-free diet. Stick with simple foods right now: plain meats, pure spices, eggs, plain veggies... -
ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
Most people have reported greater improvement with: hydroxocobalamin injections -
ARCHIVED Please Help Me Interpret This. Thanks.
ShayFL replied to smiles's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
To add to what Deb has said (which I agree with), you would do best to stay on your gluten-free diet. You are feeling better. Yeah!! If it were me, I would avoid as much Soy as possible by sticking with whole foods and avoiding processed foods. I personally do not believe we are meant to eat dairy. And it causes me to choke on my own mucus. ... -
ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
RO, I am not a medical doctor. I do have a Phd in Holistic Nutrition. But I acknowledge my limitations. I am a researcher by nature and I recommend that you do your own research with regard to anything I say. But I interpret that quote to mean (for those with PA) that taking a massive amount of B12 early in treatment and then taking smaller... -
ARCHIVED Recently Diagnosed - Need Help!
ShayFL replied to gfwarrior's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
IN the beginning...stick with simple foods that are naturally gluten free. Once your symptoms are gone, you can try eating foods that say "processed in a facility...." and see if you react. BUT YOU HAVE TO GET WELL FIRST. Most Celiacs have to cut out dairy for a few months while the villi heal. The tips of villi are what digest dairy. SOY is a major... -
ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
Print out the new ranges: Open Original Shared Link It is from the official American Association of Clinical Endocrinolgist site. THEY CANNOT ARGUE WITH THAT!! If they do, keep changing doctors till you get one that has a clue. -
ARCHIVED Tcell Lymphocyte - Biopsy Positive
ShayFL replied to artselegance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I saw your post and had to respond. I know you are worried. So I did some research online. I found this: Open Original Shared Link It sounds like that once you go on a Gluten Free diet your T-Cells will go back to normal. Try not to let complicated medical terms scare you (although I know it hard). I do not think you have cancer. And regardless... -
ARCHIVED Hashimoto Thyroiditis
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
That is an excellent point Janet. That is why you should get all of these tested: TSH FREE T4 FREE T3 And both antibodies They MUST be the FREE. If you take Synthroid for 6 weeks with no luck in symptom improvement, retest these same labs. If your T4 is in a good range (upper end) but your T3 is in the middle or lower you may benefit... -
And some really GOOD NEWS is the later you start your period, the less chance you have of getting breast cancer later on. Enjoy it!!
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ARCHIVED Hashimoto Thyroiditis
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
I use Armour. And I LOVE IT!! I tried Synthroid and it made me violently ill. I will never touch it again. I was told my thyroid was fine for 10 years when the reality was I was hypothyroid. Once I got wind of the new ranges for TSH and took a copy to my doctor, he immediately dx Hypothyroid and put me on medication. 10 years of suffering......... -
Menstruation has a lot to do with body fat. Are you underweight due to the Celiac? 8 is way too young. The average age is 12 which means anywhere from 10 to 14 would be considered normal by US standards. So I would not worry into your 14th birthday. Are you developing otherwise? Breast buds? Body hair? If you are then it may just take a little...
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Best wishes for staying well. I am trying to be very strict myself even though my reactions (vertigo & migraine) dont end me up in the ER. They are no fun. So I am cooking non-stop too. Hang in there!
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ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
Deb Your post was a catalyst to make me do some more research for what I am doing. My background made me feel comfortable with this experiment. And I found a lot of support for it on medical sites and actual people using large amounts like I am sublingually. My intention is not to take this much forever. No. A month to 6 weeks to see what it does... -
Oh dear...why did she tell you to take BEFORE your meal???? The packages I have say "during" or "after". I can see how this irritated your stomach (especially if you did not eat within seconds of taking that pill). No food in there and a hefty dose of acid right in. If you even waited a few minutes with that pill in there, it would cause irritation...
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ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
Im not offering any scientific backing on what I am doing to myself. As I said several times....I am experimenting with MYSELF. I am in no way recommending that ANYONE else do what I am doing. I was simply sharing what I am doing. My body has been a science experiment for 15 plus years. Some with doctors involved in the experiment and some on my... -
ARCHIVED Best Doctor Ever!
ShayFL replied to betsyabailey's topic in Parents, Friends and Loved Ones of Celiacs
A good doctor is a gem to treasure. Hold on to him! -
I have experimented with the food combining principles myself. But find that if I just eat fruit or just carbs without protein/fat my blood sugar skyrockets. So I do mix....but I go light on the carbs with a protein meal. I am pretty low carb anyway.
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ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
You should have enough Ferritin to take Armour without problems, but ideally it should be around 50. Here are some helpful links: Open Original Shared Link Open Original Shared Link Open Original Shared Link ***Remember no disease (or syndrome) is an island. They are usually clustered. -
ARCHIVED What Is The Difference Between The Dq2 And Dq8 Genes?
ShayFL replied to *lee-lee*'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The DQ2 is the most common of the celiac genes. I believe 80 or more % of celiacs have that gene. The rest are DQ8 (with a small amount having neither). I agree. Your doctor is an IDIOT. Your doctor would look at a pink cow and say yes, she has udders and yes she is bovine, but I cannot call her a cow because she is pink. Yes, you can pass this... -
Seeing a good doctor is always sound advice. But taking HCL is not dangerous in anyway (unless you go crazy with it taking tons of it). Take 1 tab with a protein meal. If you feel fine or better...no worries. If you get "some" improvement but not enough, the next meal try 2 tabs. If you get a burning in your stomach simply take a little water with...