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Latest Celiac Disease News & Research:
Everything posted by ShayFL
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ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
I had an "open" MRI for an injury for a car accident. I am VERY claustrophobic so I was a nervous wreck. But the room had a chair close to the machine where my husband could sit and talk to me while it was happening. I had something covering my eyes, but didnt feel too closed in. Yes, noisy. But not anything horrible. I wont take Valium or drugs like... -
I had SEVERE low stomach acid shortly after my DD was born 12 years ago. If I ate anything with protein...it felt like someone was stabbing me all the way through my intestines. Horrifying pain really. I was so desperate one night at 3 am, alone as Hubby was overseas and with a newborn. So much pain, all I could do was call a 24 hour prayer line. I went...
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ARCHIVED A Few Good Free Recipes
ShayFL replied to purple's topic in Gluten-Free Recipes & Cooking Tips
I got tired of it being blank...... -
ARCHIVED What Are Some Of Your Favorite Snacks?
ShayFL replied to Blessings's topic in Coping with Celiac Disease
I have so many limitations.....but I look forward to my 1 fruit smoothie a day. Homemade almond milk, a frozen banana and a handful of frozen blueberries or peaches. -
Yes you can. Comes in pills and powder. I used the Solary which is a combo of D-Mannose and Cranberry Extract. I keep a fresh bottle in the pantry so if I ever feel an inkling....I would be right on it. Once a few years ago my DD came to me and said her pee pee burned a little bit. I gave her the D-Mannose for a few days and it cleared right up and...
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ARCHIVED A Few Good Free Recipes
ShayFL replied to purple's topic in Gluten-Free Recipes & Cooking Tips
Her "Cooking Free" is my most favorite recipe book now. -
ARCHIVED Frozen Pizza
ShayFL replied to *lee-lee*'s topic in Gluten-Free Foods, Products, Shopping & Medications
If I didnt have all my restrictions, I would order one of these. I have it bookmarked for when I am healed. They ship it frozen and you cook it at home. This restaurant got great reviews all over online. And my god.....they have cannoli........gluten-free cannoli. A little pricey....but for a special occasion...... Open Original Shared Link -
ARCHIVED How Many Of You Had To Avoid Dairy At First?
ShayFL replied to Hummingbird4's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
But some are able to eat it again within 3 or 4 months. Depends on how quickly the tips of your villi heal. -
ARCHIVED Doctor Ordered Mri Of Brain
ShayFL replied to MyMississippi's topic in Related Issues & Disorders
The majority of people who get an MRI show nothing. And keep in mind that MS is really a syndrome and MANY people who are dx MS later show no signs of the disease once they go on a gluten free diet and/or clear up their candida. Some also go into complete remisssion on the Swank diet. So try not to let it scare you. -
The are almost always from e-coli that migrates from you know where. It could be that you have a higher level in your poopie right now, so more can migrate. It isnt hygiene as I used to get them too (randomly) and I am a super clean person. Wipe from front to back too. What cured mine was D-Mannose. D-Mannose is a natural sugar that when ingested goes...
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ARCHIVED B12 And D Deficiency - Celiac Panel Negative - Addison's Disease
ShayFL replied to russtay1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here! Negative tests.....but positive response to the diet. Without a gold standard dx, but with a positive response to the diet (coupled with your auto-immune diseases and vitamin deficiencies) you have to ask yourself it your health is worth it to keep eating gluten? Or to stop and start? I think you are here because you know the answer but want... -
Whey powder, hemp powder and chia powder come to mind. Blended in smoothies. Eggs. Aside from nuts, that pretty much covers it. Oh and dairy if you tolerate it. Whey is supposed to be ok for most lactose intolerant. But dont quote me. Here is a yummy nut spread I make. Grind 1 cup of fresh walnuts 1tsp cumin 1/4 tsp sea salt (or more to taste...
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We arent all angels....but we have good hearts. I just went grocery shopping......and saw the Bobboli pizza crust. I didnt eat that. But I used to make the most amazing homemade pizza. And I had a memory......***sigh***......My sourdough crust was to die for........but no more.
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I just dont understand some things, because I am not that way. On a similar note, my Sis was just dx with BC in Feb. and she quit smoking cold turkey because she doenst want the cancer to come back. I was so very proud of her because she has been smoking for 30 years. And she has been feeling incredible. Losing weight. Exercising. Eating right. Getting...
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ARCHIVED Enterolab Results
ShayFL replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I say try the diet and see if the "proof is in the pudding".....gluten-free pudding of course. The fact that you are reacting to gluten shows up. If you have symptoms, what do you have to lose? -
ARCHIVED Namaste Food Products
ShayFL replied to glutenfreegirl's topic in Gluten-Free Recipes & Cooking Tips
Someone brought a cake made from one of their mixes to my Celiac support group last weekend. I didnt eat it. See siggy, but I brought 2 pieces home to my DH and DD and they raved about it. -
ARCHIVED Help Filling Out This Form For School Regarding Celiac
ShayFL replied to strawberrygm's topic in Parents, Friends and Loved Ones of Celiacs
It is just SO hard because the risk of CC is SO great. It sounds like your cafeteria manager (CM) means well and wants to help, but even the best of intentions can go awry. It has happened to me too often. A friend made pot roast for me. Called and went over my checklist and everything. She even bought a new cutting board!! Then I get there and... -
ARCHIVED Life After Wheat Flour
ShayFL replied to FoxersArtist's topic in Coping with Celiac Disease
In my house, the saying goes....."If Mom makes something super yummy, you had better savor every bite because she will never be able to make it the same again." Great write. I am like you. Just mix it all together and see what happens. -
ARCHIVED Day 9 gluten-free
ShayFL replied to glutenfreegirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My first period gluten-free was 4 days late and it has stayed that way....dunno why. And yes new symptoms spring up now and again, but overall improvement. Hang in there! -
ARCHIVED Child Weight Loss And Vomiting
ShayFL replied to jjdarrough's topic in Related Issues & Disorders
Have you checked ALL possible sources of CC??? Her creams, hair care, meds, etc....are they confirmed gluten-free??? Is she possibly getting gluten at school from friends/teachers??? Do you have a gluten-free kitchen at home? Could she be getting some there??? Pets?? Does she handle gluteny dog/cat food/treats??? -
ARCHIVED Weight Loss
ShayFL replied to JennyBabe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am similar to you Jenny. Losing weight before gluten-free. And still lost 5 lbs in the first 6 weeks gluten-free. But I have now gained that 5 back!! Yeah!! I am just past the 4 month mark. Hang in there. I ate a lot of nut butters, avacado and used the olive oil freely. Nut butter cookies are good. Bob's Red Mill has a peanut butter teff... -
And you have to ask yourself: Should your beloved pet be eating "wheat"????
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I only use rice based gluten-free dog treats and dogfood. I believe they can make you react.
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For some scar tissue that is palpable, massage works. I still have the apendectomy scar and there is scar tissue attached that makes it pull in...I have a dip in my belly there. But it is much better as I had a massage therapist who worked it for months.
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ARCHIVED Have Had Symptoms For Years....
ShayFL replied to marissa088's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let us know when they come in. Remember positive = positive, but there are many false negatives. So you may need to push for the biopsy if your blood is neg.