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stef-the-kicking-cuty

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Everything posted by stef-the-kicking-cuty

  1. stef-the-kicking-cuty
    Also the other thing I wanted to say that while EnteroLab is STILL a test, even if it’s not considered a gold standard. It will still show results and the results are not wrong. It’s be enough for me to stick to the glutenfree diet. That alone together with your reaction to gluten should be enough to convince you. Because why would the test show something, if...
  2. stef-the-kicking-cuty
    I still remember you from back when. I think, I joined the forum in 2004 and after it worked for me I stopped commenting. That was roughly around 2008, so we cross crossed. Anyways, since then I’ve been doing well. However I’ve had something you’ve been describing whenever I’ve had accidental glutening and these last two weeks (which is why I came here to...
  3. stef-the-kicking-cuty
    I mean, how do you proof, that there is pain with no or less than the limit antibodies?
  4. stef-the-kicking-cuty
    He can run a blood test. The kid would just be stung and go through the agony for nothing, cause he's not making enough antibodies. He hasn't done so the last two tests and neither did any of the other members of his family. It would just be the same old result to confirm the same result everyone else did before her. When does it stop and when is this child...
  5. stef-the-kicking-cuty
    And how would I word that, when I call? "Can I schedule a consultation over the phone?" "Why do you need that?" "Cause I can't come to the actual appointment?" "Well, that's not our problem?"
  6. stef-the-kicking-cuty
    Dr. Fine's results are the only ones I have. Even though my son's doctor had slightly elevated blood tests done on him as a baby, apparently his doctor did not keep those, cause she didn't have it in her records, last time I asked. On top of what Dr. Fine found, I did all of my son's 4 diet challenges over the course of four months and I've kept a food diary...
  7. stef-the-kicking-cuty
    I'm sorry, when I seem upset (and I am), but this entire thing seems so absurd and it IS. There is absolutely NO reason to go to a gastro without sub-qualifications to Pittsburgh, when we have at least a gazillion here.
  8. stef-the-kicking-cuty
    I've also received the note back from my boss this morning, that I won't get off under any circumstances, cause she doesn't have any additional drivers. I will notify HR and headquarters, but I doubt, that will help.
  9. stef-the-kicking-cuty
    I found everything out through a telephone call. And the doctor will receive copies of everything, including my phone number, my lawyers number, if I have to, and some other things I've written down. Let's just hope, she (it's a she) reads it thoroughly before the appointment, cause some doctors are so busy, they just fly over it real quick the first 5 minutes...
  10. stef-the-kicking-cuty
    Thanks for your concern. I AM very anxious. Anxiety is a by-product of the gluten inheritance line in our family. We all have that. My son is only 8 year old and I'm afraid, that his dad will keep talking over him and won't let him finish talking to the doctor, because he did that with me, as well. Whenever our son says, he's in pain, he basically shooshes...
  11. stef-the-kicking-cuty
    Also as a school bus driver I could go in the summer vacation, but don't want to wait that long, cause my son is in pain.
  12. stef-the-kicking-cuty
    So I went to google maps... the Children's Hospital of Philly is about 2 hours and 6 minutes from us. That would probably even be doable, if we get an appointment between 10am and 11.30am and it's guaranteed, that we're done till 11.30am and there's zero traffic jam. But hey... it's Philly, lol. Same with the Thomas Jefferson University Hospital. That's in...
  13. stef-the-kicking-cuty
    While Philly is closer, I will not be able to make it there either, because they always have bad, bad traffic jams and I can't risk losing my job. I went to my boss today to let her know, what's going on. Despite my best efforts I will not be able to get off. The one in Maryland is the closest. I also called the Children's Hospital of Pittsburgh to find out...
  14. stef-the-kicking-cuty
    So you think, I should just make an appointment there at the center in Maryland with any of his other team members? Or just an appointment and see, who we get? Also, while my ex got back to me with a time and date and which hospital, he did NOT specify the name of the doctor, as well as the address. I know, there could be another location, so just saying...
  15. stef-the-kicking-cuty
    I went over the first link you presented. I liked, what Dr. Fasano had to say, but I'm ESPECIALLY interested in what Dr. Marsh had to say. I will surely print that out. I know, Dr. Fasano is one of the celiac disease specialists, that is regarded as one of the #1's here in the US, possibly in the world. I'm happy to see, that that hasn't changed. I will certainly...
  16. stef-the-kicking-cuty
    I didn't know about the IgP tests. I think, the only thing, that was done on me in 2004 and on my son in 2009 was the Tissue Transglutaminase and the Gliadin, but I could be wrong. It's been so long. Well, me for my part, I am NOT going through the agony and being exposed to gluten again, because I have my doctors diagnosis now, but it's sure something to...
  17. stef-the-kicking-cuty
    Also I wanted to say, I'm aware of the prevalence in relatives. That's why I wrote down all of my relatives, who are/were affected. I also have to say, that my entire family apparently can not produce enough anti-bodies. My mother went through the blood test numerous times and I think, she had 5 or so endos. The blood test was just like mine and my son's...
  18. stef-the-kicking-cuty
    I had the blood test, which was only slightly elevated. However because it was not over the limit I was diagnosed by an elimination diet and my symptoms. I had excruciating pain, which completely disappeared, after going glutenfree. My son also had a blood panel done, when he was a toddler, which also only was slightly elevated. He is starting to have the...
  19. stef-the-kicking-cuty
    I haven't been on here in forever, even though I used to be a persistent daily contributor back when I was diagnosed. I have mastered my own glutenfree life to the point, where I felt, I didn't need any more help and because I'm always busy, I got carried away with other things. However the reasons I'm coming back here today are my son. He's 8 now and over...
  20. stef-the-kicking-cuty
    I was diagnosed with celiac 5 days before my 28th birthday. Flashback to 21, my first painful symptoms started after a toothsurgery. Flashback again to when I was 14/15. That was the time I received braces and with them a multitude of cavities. Because most of my cavities are from that time we assumed it was, because of the difficulty brushing your teeth...
  21. stef-the-kicking-cuty
    I'm German, German, and some more German on both sides of my family. Even though I live in the US, I'm an immigrant. My son is the first from my stem of the family, who is born on US soil. My aunt has a couple of kids over here, but that's HER stem of the family. Everything before that is true German. Although I do believe that there must be some Viking in...
  22. stef-the-kicking-cuty
    Hi Aleka, I'm not diagnosed with CKD (yet), however I've been coming back to this forum (I've been one of the major contributing members here 9 years ago) for the last week and lurking around for more information on what my new problem is. I've also been doing my own research for about a little more than a month now, because the dark circles under my eyes...
  23. stef-the-kicking-cuty
    Oh, and another symptom I forgot about until it hit me right now. It's not really asthma, but more like a "one-single-lung-cramp-every-20-minutes-or-so"-thing. It's really annoying.
  24. stef-the-kicking-cuty
    I went glutenfree in 2004 and about two years ago I started to get kidney pain every once in a while. Just last month during the course of an important audition I frantically tried to get rid of the bags under my eyes with make up, which didn't work. I suck at makeup. So I came to conclusion, that it must be some kind of allergy. I went entirely dairy free...
  25. stef-the-kicking-cuty
    Uhm, I did some research about some Cinco de Mayo food traditions in the Harrisburg area and found nothing. HOWEVER (cough) I found two Mexican Restaurants, one in Harrisburg, the other in Hummelstown, who happen to be sister restaurants, who were mentioned in a Harrisburg article to do some cool Cinco de Mayo celebrations today. And one would know they happen...
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