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nasalady

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Everything posted by nasalady

  1. nasalady
    Hi kelliac, My gastroenterologist gave me a clinical diagnosis of celiac disease even though my tests were negative (blood work and biopsy). I have the HLA DQ8 marker, reacted very strongly to a gluten challenge, and have family members with celiac disease, including 3 of my 5 grandchildren. He said that my prednisone and Imuran would suppress antibody...
  2. nasalady
    I think that you already have a good idea there....get the blood test done but be prepared for a possible false negative. One of the best resources for how clean your kitchen should be and simple things to eat for the first couple of weeks that I know of is the following post on Karina's blog: Open Original Shared Link Take it easy....identify...
  3. nasalady
    Hi Irisheyes, As previous posters have said, the short answer is YES. Celiac disease is a very complex disorder; most people think it only involves the GI tract, but researchers have found that celiac causes the body to produce antibodies against bone, skin, and even the brain! Some or hopefully all of your symptoms may (eventually) go away on...
  4. nasalady
    Your doctor is wrong. You have to eat LOTS of gluten until after all tests are done (including bloodwork and intestinal biopsy) if you want accurate results. The more gluten the better! You can go on the gluten free diet the day after testing is done....you don't have to wait for the results!
  5. nasalady

    ARCHIVED Doctor'S "Diagnosis"

    nasalady replied to Smoly's topic in Doctors

    Hi Nutralady, Celiac disease is closely correlated with MANY other autoimmune diseases, particularly the thyroid ones (Hashimoto's and Graves Disease). We have all of the above in our family, plus lupus, Addison's disease, rheumatoid arthritis, autoimmune hepatitis....you name it, I'm sure I can find a cousin of mine who has it. In my case, it's my...
  6. nasalady
    It can take me anywhere from 8 to 72 hours to react to gluten. Everyone is different. Some people react VERY quickly (minutes), others don't. If it were my daughter, I would assume that the diarrhea was a reaction to the gluten; that IS the classic reaction, after all. And I would believe her physical reactions to a food over anything told to me by...
  7. nasalady
    Great article in the Huffington Post about the evils of gluten: Open Original Shared Link JoAnn
  8. nasalady
    Well, no, this is not true. Although it is rare, there are actually people here on this board who have tested negative for the two "accepted" celiac genetic markers, HLA DQ2 and HLA DQ8, and yet they have celiac disease. My granddaughter Carly has biopsy-proven celiac disease but does not have either of those markers. IMHO, if your son has tested positive...
  9. nasalady
    Hi Woolygimp (and ChemistMama), Same thing with my husband, Paul. His DH got worse before getting better, even after being gluten free. Ended up on Dapsone for quite a while. The problem for Paul was that he developed a severe case of psoriasis simultaneously with the DH, and in a lot of the same places! It was terribly confusing...
  10. nasalady
    What if your husband wipes all the crumbs off a counter but there's still enough gluten stuck to the surface to contaminate your food? What if wheat flour is suspended in the air and lands on your salad...or you breathe it in? What if you have a four-year-old who scatters gluten-y crumbs all over the place no matter how careful you try to be? ...
  11. nasalady
    Theresa, I'm sorry....I do understand! I was gluten free for about 2 weeks then went back on gluten. OUCH!! Everything hurt! I guess I had missed the fact that you had only been gluten free for 3 weeks prior to this. Yes, that actually does make a difference! Your body probably had not had enough time to heal in just 3 weeks, so maybe you'll be...
  12. nasalady

    ARCHIVED Lupus

    nasalady replied to mslee's topic in Related Issues & Disorders

    gfp, You're correct of course.....my original point in giving that as a reference was that it was one of the few studies I had seen that quoted the "low" frequency of celiac and lupus occuring in the same person. But, as you've pointed out, in this paper from the Journal of Clinical Gastroenterology, they *are* apparently trying to slant things to make...
  13. nasalady
    Two week will not be long enough. You should be eating *lots and lots* of gluten for at least 3 months, as you were told earlier in this thread. Also, if you really are celiac or gluten intolerant, eating gluten will NOT be pleasurable....it will be torture after the symptoms hit! My advice would be to either re-schedule the tests for March, or just...
  14. nasalady

    ARCHIVED Lupus

    nasalady replied to mslee's topic in Related Issues & Disorders

    Hi MsLee, Thanks for the link.....that's very interesting research! I've recently found out that LLMDs rarely accept ANY type of insurance. I'm paying for everything up front (including the Igenex Western Blot test), then I have to present it to the insurance company to see if they will reimburse me. It is expensive! The Western Blot is $475 and...
  15. nasalady

    ARCHIVED Lupus

    nasalady replied to mslee's topic in Related Issues & Disorders

    That is really interesting....I've been reading that people who are being tested for lupus, RA, MS, etc. should probably be tested for Lyme disease as well, as part of the diagnostic process. My family has a long history of lupus and other AI diseases....I have aunts and cousins with lupus that live in other parts of the country; some of them I've never...
  16. nasalady
    I was told I had IBS for decades....had bouts of terrible abdominal pain in my 20s and 30s, so bad at times I would literally end up on the floor, screaming. Finally the doctor decided I had gallstones and removed my gallbladder when I was 37. It did seem to reduce the number of those painful attacks I'd been having, although I continued to have lots...
  17. nasalady

    ARCHIVED Lupus

    nasalady replied to mslee's topic in Related Issues & Disorders

    P.P.S. With regards to the rarity of celiac and lupus occurring in the same person: Open Original Shared Link J Clin Gastroenterol. 2008 Mar;42(3):252-5. Adult celiac disease followed by onset of systemic lupus erythematosus. Freeman HJ. Department of Medicine (Gastroenterology), University of British Columbia, Vancouver, BC. hugfree@shaw.ca...
  18. nasalady
    UPDATE: 12/11/09 I have had one blood test for Lyme disease (Lyme ELISA), which was POSITIVE. Now I have to have the Western Blot test. More soon.... JoAnn P.S. Thanks, Alison, for urging me to be tested for Lyme!
  19. nasalady

    ARCHIVED Lupus

    nasalady replied to mslee's topic in Related Issues & Disorders

    P.S. With regards to Lyme disease mimicking AI diseases, including lupus, please see an old thread of mine: https://www.celiac.com/gluten-free/index.php?showtopic=62079 and the following links (which I believe were given to me by Fiddle-Faddle): Open Original Shared Link Open Original Shared Link Interesting, eh?
  20. nasalady

    ARCHIVED Lupus

    nasalady replied to mslee's topic in Related Issues & Disorders

    Hi Ms. Lee, I was just recently diagnosed with SLE, within the past two months....I have a long laundry list of AI diseases now in addition to lupus: Hashimoto's thyroiditis, psoriasis, celiac disease, autoimmune hepatitis, and rheumatoid arthritis. I also have fibromyalgia, which may or may not be autoimmune, but is at the very least closely associated...
  21. nasalady
    P.S. Are any of you who have reacted to wines allergic to casein or eggs? Because I just remembered that those substances (among others) are sometimes used during the "fining" process during wine-making. Here is a link to an old thread where they discuss this subject (from this board): https://www.celiac.com/gluten-free/index.php?showtopic=24397 And...
  22. nasalady
    Hi Lynayah, Unfortunately there's no comprehensive list, but what we've done is to call our favorite wineries and ask which wines (if any) are aged in new barrels that have been sealed with wheat or rye paste. For example, at one small winery (Claiborne and Churchill) they only do this with their Pinot Noirs, which made sense to us because that's what...
  23. nasalady
    This is a fabulous gluten-free Sugar Cookie recipe too; check it out! Open Original Shared Link
  24. nasalady
    We are very sensitive and use 2-Buck Chuck wines frequently with no problems. The only wines we've reacted to were those aged in barrels sealed with wheat or rye paste.
  25. nasalady
    OK....I finally got around to making Chicken and Dumplings! I made a batch of this same grain-free biscuit dough and dropped spoonfuls on top of the chicken stew then turned the Crockpot to "High". They were done in about 45 minutes (firm to touch on top and when I inserted a table knife nothing stuck to it). Yum!! I was really craving Chicken and...
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