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nasalady

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Everything posted by nasalady

  1. nasalady
    There are two kinds: beef and chicken. Neither one has cheese in them. They are VERY good! You can of course add cheese or other toppings if you want to. My 4 year old son loves them....they're just the right size!
  2. nasalady
    Yum! Shrimp and Grits.....a Southern classic! Thanks for the link and the chicken broth/gouda suggestion, Lisa! I love cheese grits!! JoAnn
  3. nasalady
    Here are a few dinners that my family will eat, but require minimal effort on my part when I've had a long day at work: 1. Gluten free chicken and apple sausages, Trader Joe's Macaroni and Cheese, and a bag of salad. 2. Fish tacos made with frozen tilapia microwaved with butter and Key Lime Pepper in pre-made taco shells, plus salsa, sour cream, pre...
  4. nasalady
    FF, wow, that essay at the above link almost makes one think that there's no such thing as an autoimmune disease! It's all Lyme Disease! There's just one little fly in the ointment for me.....lupus is the "family curse" in my family. Those few of my relatives who don't have lupus have some other autoimmune disease (Hashimoto's, celiac, and RA are...
  5. nasalady
    Thanks for the links, Fiddle-Faddle....very interesting!
  6. nasalady
    I went grain free just a couple of days ago, and I have to say I feel better....less bloating! Also, I've lost 5 pounds!! JoAnn
  7. nasalady
    Not strange at all..... First, it really doesn't matter how small an amount of gluten is involved, unless it's in the ppm range. Just a crumb falling into your soup, or even flour floating in the air landing on your food can do it! But symptoms produced by a glutening can vary quite a bit, even in the same person from one episode to the next....
  8. nasalady
    Thanks Peter!
  9. nasalady
    Hi, I was looking for a post entitled: "Celiac - The Autoimmune Connection, A quantum leap is coming" originally posted by a member who is now Banned, I believe (veggienft?). I can't find it anymore! I thought that it was very informative and helpful....is there some reason it was removed? JoAnn
  10. nasalady
    GFinDC, Intestinal tissue coming out sounds more like Crohn's than celiac, I think. You can definitely have both celiac and Crohn's....and if your brother had it, you might want to be checked to see if you do too! Take care, JoAnn
  11. nasalady
    Rectal bleeding can be a symptom of Crohn's Disease too. Crohn's is another autoimmune disease. People with Crohn's frequently have celiac disease as well....here is a link to an article about this: https://www.celiac.com/articles/915/1/Celia...ease/Page1.html You should see your doctor about this, of course. And hopefully resume the gluten free...
  12. nasalady
    Hi Riv, I'm planning to go grain free too. I've been reading blogs like Elana's Pantry: Open Original Shared Link and NoMoreCrohn's: Open Original Shared Link Elana bakes with coconut flour and almond flour only. I think she is now dairy free as well. Erin at NoMoreCrohn's is following the Specific Carbohydrate Diet, which is a...
  13. nasalady
    Hi Angie, No, I don't think that he's getting gluten from anywhere....he and I eat all of the same foods (I generally cook them) and I would be getting glutened too. I'm using iodine-free salt right now too. I thought that I had read on this forum that many people had taken a very long time (months, even up to a year) to be completely break-out free...
  14. nasalady
    Thanks ChemistMama! I spoke to my husband and found out that he's been starting and stopping Dapsone at random (stopping when he feels too lightheaded and starting up again when he has a new breakout of DH). I told him about your recommendations and he says he will follow your plan of tapering down. He's badly broken out with DH on top of his feet right...
  15. nasalady
    P.P.S. I'm mostly of Irish heritage too....
  16. nasalady
    Hey everyone....here is an abstract from a medical journal article published in 2001, which is entitled, "Why is celiac disease so common in Ireland?". Open Original Shared Link There are concentrated "pockets" of celiacs here and there around the world (Ireland is one hot spot) and archeologists and agrarian historians collaborate to find out why...
  17. nasalady
    UPDATE: I have now been to see my rheumatologist; on the basis of my malar rash (I emailed him a picture), my symptoms, and the elevated anti-DS DNA antibodies I am now on Plaquinel (one of the standard lupus meds). He believes that I either have lupus or a related "overlap syndrome". Also, here is the answer I got from the moderator at WeHaveLupus...
  18. nasalady
    Hi Lisa79, I too had my gall bladder removed, but that was more than 15 years before I was diagnosed with celiac disease. Celiac disease was almost my last illness diagnosed but I'm convinced it was the first autoimmune disease I developed, probably when I was a very small child. Thanks for the link, Beverly....that's interesting that there seems to...
  19. nasalady
    Thanks dh mom! My husband hates the dapsone because it makes him feel really weak and light-headed. He plans to ask his doctor about sulphapyridine.
  20. nasalady
    We went to Oregon for a week recently....drove there and back from Southern CA with a 3 year old and a 4 year old. All four of us have gluten issues and are gluten free. I concur that speaking with the top manager works wonders! Triumph Dining Cards are extremely helpful as well. The link below is to a topic I started about our experience at a Sheraton...
  21. nasalady
    Yes....I went to one of my autoimmune Yahoo groups and posted a plea for help with the blood work results yesterday. I know there are a number of people with lupus but not one person has responded. They probably just don't know. I know that there are a lot of very smart, very informed people here that probably do know something....I hope so...
  22. nasalady
    That's too bad that your daughter is having these reactions; I hope you figure it all out and that she feels better soon! As for me, I used to get car sick as a kid all the time, whether I had eaten just before getting in the car or not! My trigger was just riding in the back seat. I used to roll the window down on long trips and stick my face out;...
  23. nasalady
    Actually, many people find that their cholesterol goes lower when they remove ALL grains from their diet and just eat natural (unprocessed) foods: fresh veggies and fruit, meat, eggs, fish, poultry, nuts, beans.....sort of a hunter-gatherer diet. Open Original Shared Link Instead of foods made with grain flours there are a number of websites and...
  24. nasalady
    Wow.....if one of my docs ever said anything like that I think it would scare the c*&p out of me! Anyway, as I mentioned earlier, my rheumy said that the high level of anti-DS DNA did not mean I had lupus. Then he said something about the complement levels being a good sign......?? COMPLEMENT COMPONENT C3C: 210 (Reference Range: 90-180...
  25. nasalady
    Ah yes......reality. As in reality bites. Here is a picture of a malar rash.....the so-called "butterfly" rash: http://spider.ipac.caltech.edu/staff/joann.../malar_rash.webp Unfortunately, it's ME....taken last night.
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