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nasalady

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Everything posted by nasalady

  1. nasalady
    Withdrawal from gluten can be similar to withdrawal from alcohol or drugs....please check out the following link: Open Original Shared Link I hope you start to feel better soon! JoAnn
  2. nasalady
    Welcome to the group! I'm sorry to here about your health problems....you're definitely too young to be having to deal with such issues! I'm fairly new here myself....there are lots of very knowledgeable people here who can help you so it's a great place to come with questions. Everyone else has been suggesting that you be tested for thyroid problems...
  3. nasalady
    I recently went to the Sunday Brunch at the El Torito Restaurant in West Covina; I was concerned because this is only the second time I've eaten out since my diagnosis and I didn't know what to expect. I called the restaurant first and spoke to the manager on duty, who sounded young and said that in his tenure there the issue of gluten free food had not...
  4. nasalady
    Thanks, happygirl! I have heard that it can take quite a while to heal; since I'm already feeling somewhat better, I have a LOT of motivation to stay gluten free. My fibromyalgia and rheumatoid arthritis have put me in a wheelchair recently and I'm hoping to get out of it again soon! Take care, JoAnn
  5. nasalady
    I just started the gluten free diet on doctor's orders on November 25th, after my biopsy. I woke up this morning feeling better in general than I have in a long while. However, today I'm experiencing some of the vertigo that I thought was gone! Is this a sign that I've been glutened or is it just my fibromyalgia acting up and maybe has nothing to do with...
  6. nasalady
    This was my first gluten-free Thanksgiving and I'm really happy and proud of myself for accomplishing what I set out to accomplish. If you want to know what we ate and see the recipes, please feel free to visit my blog: Open Original Shared Link It's a brand-new blog and I'm still trying to get it in shape. It wasn't easy making an entire...
  7. nasalady
    You may already be familiar with this site, but if not, here's a link to a blog called "A Year of CrockPotting" (all gluten free recipes); she's posted several Thanksgiving recipes, and this is her cornbread stuffing: Open Original Shared Link She also has a recipe for regular bread stuffing (gluten-free bread). You don't have to use a crockpot to...
  8. nasalady
    I love to make Mexican food out of turkey leftovers, such as turkey tacos, burritos, or turkey enchiladas. Here is a good recipe for the enchiladas from Karina's Kitchen, just substitute turkey for the chicken: Open Original Shared Link
  9. nasalady
    Yep! I have autoimmune hepatitis, Hashimoto's Thyroiditis, asthma, psoriasis, and rheumatoid arthritis. I'm being tested for celiac disease at the moment (I'm HLA DQ8). I also have a severe case of fibromyalgia that has put me in a wheelchair as of the beginning of September....there's some controversy as to whether or not fibro is an autoimmune disease...
  10. nasalady
    Note: I'm using the term "brain atrophy", but maybe that's an exaggeration. I looked again at the MRI report and the term they use is "mild diffuse volume loss". I guess I thought that "volume loss" = brain shrinkage = atrophy. I don't know if these phrases are actually equivalent.
  11. nasalady
    My test results from Prometheus are in, and I have some questions. I would be very grateful if some of the experts can answer them. Please bear with me as I provide some background first. Here are the Prometheus celiac panel results: ***************************************************************************** AGA IgG: Result=1.1 U/ml; Reference...
  12. nasalady
    Thanks for the helpful reply! If the rash returns, I will definitely see a dermatologist. JoAnn
  13. nasalady
    Maybe I need to re-state this: 1. Can DH happen once, for several weeks, and then go away and not come back? 2. Does DH look like little blisters and red bumps? JoAnn
  14. nasalady
    Hi, I'm currently awaiting blood test results - my new gastroenterologist ordered the full celiac panel plus DNA testing through Prometheus. I'll get results on October 3rd. In the meantime, I've been reading up on various celiac-related topics, including dermatitis herpetiformis. I realized suddenly that in May of 2007 I had a severe outbreak of...
  15. nasalady

    ARCHIVED La Celiac Specialist?

    nasalady replied to HippyGirl84's topic in Doctors

    He's not exactly in the LA/SF Valley area, and I've only seen him once so far, but I'm VERY impressed with Dr. Peter Rosenberg in Pasadena. He is a gastro who immediately ordered the full celiac bloodwork panel with DNA typing from Prometheus for me, just because I told him (1) about doing a gluten-free diet for a short time then going back on gluten and...
  16. nasalady
    Sounds like the luck of the Irish to me! My background is mostly Irish and English, but I'm 1/4 Austrian because of my maternal grandfather from Salzburg.
  17. nasalady
    P.S. This is my eighth day back on gluten, and I should add that the sores on my tongue have now spread all over my entire mouth, and it feels like I have blisters on the roof of my mouth. It's kind of hard to eat anything right now because it hurts. I'm also very tired and very forgetful.....brain fog strikes again. For example, I think of something...
  18. nasalady
    Of course I don't mind...it's very informative, just a little scary! Thanks for the tip about niacin...I didn't know that. Wow! Are you going to be OK? Are you sure that getting tested is worth all of this?? Yes, I do remember being "sick", especially my "IBS" getting worse around the holidays. I always attributed that...
  19. nasalady
    Thanks, frec and Ursa Major. Knowing that delayed reactions can happen and also that gluten reactions can vary quite a bit from person to person is helpful. My first appointment with the gastroenterologist is scheduled for September 5th....it was the earliest appointment I could get. Oh well....
  20. nasalady
    Just a quick question for those of you who are more experienced at this stuff.... I was gluten-free for exactly eight days (well, I THOUGHT I was gluten-free until I read the posts on this site that say that you have to get rid of your pots and pans and cutting boards and buy all new equipment!), and then I went back on gluten on Sunday because I want...
  21. nasalady
    Thanks, Gerri and Jessica, for your encouraging messages! It really helps to know that I'm not alone AND that even if the doctors are frequently clueless, there is a highly informed community of people with similar health issues who are doing their best to put helpful information out there through this forum. The brain fog thing is really scary...
  22. nasalady
    I'm here because I'm just starting to realize the magnitude of the autoimmune problems that I (and many of my family members) are facing, and I don't really know where to turn for answers. The various diseases in our family range from Hashimoto's and Graves disease to lupus and rheumatoid arthritis. I've had Hashimoto's thyroiditis for years (thyroid is...
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