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nasalady

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Everything posted by nasalady

  1. nasalady
    There's a good reason that you run across a lot of Erins in Celiac groups! The Irish have one of the highest rates of celiac disease in the world! See: Open Original Shared Link Cheers, JoAnn
  2. nasalady
    Thanks for the reply, Bill. That sounds exactly like what Paul's been going through. Just in the past couple of weeks it's become apparent that he has had multiple blisters, some large but most very tiny, and now they're healing at different rates, but all of them are leaving dark purple blotches as they heal. I told him that it just has to be DH....I can...
  3. nasalady
    Grocery stores: besides Whole Foods there are Trader Joe's all over California, and they carry a number of gluten free items, such as their own brand of gluten free pastas and brown rice tortillas and gluten free granolas. I'm still working on finding restaurants besides Outback and Old Spaghetti Factory that have gluten free menus....I've been scared...
  4. nasalady
    Liz, just had to thank you for this recipe....I've tried the brown rice flour and sorghum flour versions and they both came out great! I've even been keeping ziploc bags full of the mix handy in the fridge so that I can make sandwich buns quickly. I really like the taste and texture; I made a wonderful chicken sandwich today with one of those buns! My...
  5. nasalady
    The ingredients look OK and the fact that they have the allergen listing "Contains:Milk" there without wheat listed too means that they haven't added any wheat or wheat products to it. Which is encouraging....I would probably go ahead and eat it, but it's your call. I've used other Walnut Acres soups before without any adverse reactions, but I haven't...
  6. nasalady
    I make big batches of chili and Mexican lasagna (gluten free tortillas torn into strips, layered with salsa, cooked ground beef or turkey, beans, and cheese) and freeze them in one-dinner-sized containers. These are a couple of my kids favorite meals and it's SO helpful to have something ready to go if you're having a crazy day. I also spend part of the...
  7. nasalady
    Hi Lauri, As the others said, if you have one, you are MUCH more likely to develop more autoimmune diseases. I have 6 that I know about: Hashimoto's, asthma, psoriasis, autoimmune hepatitis, rheumatoid arthritis, and celiac disease. I may have Sjogren's Syndrome (I have all of the symptoms and it's associated with RA and autoimmune hep). Some of...
  8. nasalady
    Rissa, so glad to see your menu back!! But everyone understands about both health issues AND being busy! Please don't feel that you have to apologize for anything.... Everything looks really yummy! And who says people don't want to see beans and rice recipes!! I LOVE beans and rice, and if you have any really creative ways to prepare them (and knowing...
  9. nasalady
    Thanks Rissa! That's really sweet of you to post my blog link! And Puddy's right....take care of yourself. I'm praying with you that you DON'T have refractory sprue! JoAnn
  10. nasalady
    Hi RissaRoo....so sorry to hear that you're going through this! I too have been diagnosed with osteopenia, and because I'm now on prednisone (which, like celiac disease, is bad for your bones), my doctor has me taking Fosamax. Fosamax, with calcium supplementation, supposedly can help you build bone back. But I just found out that one of the nastier side...
  11. nasalady
    Yes, I know what you mean about labels....I'm starting to realize what a liability it is to have all of these official diagnoses now. I'll be in big trouble if I ever have to switch to a different health insurance.
  12. nasalady
    My rheumatologist said he decided that it was RA because of elevated levels of an inflammation marker in my bloodwork (can't remember exactly which one), plus my extensive family history of RA (father, aunts, cousins, sister, etc.). I asked him why I tested negative for the antibodies, and he said that at least 15% of those with RA test negative....he also...
  13. nasalady
    Hi Mother of Jibril, I guess I'm answering your question a bit late, but from www.sjogrens.org, 30% of those with proven Sjogren's Syndrome test negative for SS-A and 60% test negative for SS-B. Also, 30-40% test negative for RF. So, yes, you can certainly have Sjogren's and have negative bloodwork, just like celiac disease. I have RA (diagnosed...
  14. nasalady
    I get canker sores all over the inside of my mouth if I've been badly glutened. I haven't had any canker sores since I went gluten free. As to the chapped lips, yes, my lips are always dry (I carry Chapstick or some sort of lip balm everywhere). But I think I've recently developed Sjogren's Syndrome, which causes dry mouth and dry eyes; it's another...
  15. nasalady
    Thanks for the replies, everyone! It really helps to know about other people's experiences. Because of the distinctive purple mark where the one blister was, I'm pretty sure that he has DH, in addition to psoriasis. I'll just tell him to be patient!
  16. nasalady
    BTW, I should say the area around the blisters has been intensely itchy, as well as painful. His knees and elbows also itched at first, but they're getting better now.
  17. nasalady
    I hate to say this, Eriella, but usually if I'm glutened I don't start getting sick until the following day. I've even had a reaction as late as 72 hours after a glutening. If you just ate the oatmeal this morning, you still may have a reaction tomorrow or even the next day (although I really hope not!). Good luck!
  18. nasalady
    Hi Mike, Welcome to the board! Sorry that you're going through this....it's tough to deal with health problems which can actually affect your job. My husband is currently having a similar skin problem....we don't know what it is, exactly. He may have a combination of DH and psoriasis, or who knows? All we know is that he was gluten free, and the...
  19. nasalady
    I was diagnosed last year with celiac disease, and then the whole family went gluten free in January. My husband never thought he had a problem with gluten until Superbowl Weekend, when he bought some beer. That was the first gluten he had ingested in weeks. Within a couple of days he broke out all over in a very painful skin condition, and he's been to...
  20. nasalady
    I've been experimenting with breads lately, and I have to agree with the "too much liquid" and the "too much rising time". When my bread falls, I reduce the liquid a little bit (maybe 1/4 cup) and try it again. Also, the bread should rise just barely over the top of the pan. Another trick that can prevent falling is to take your bread immediately...
  21. nasalady
    I was just thinking about trying it with sorghum flour! I think it would be lower in carbs and have a lower glycemic index that way...? Unfortunately I just ran out of sorghum flour, but if you manage to get it to work, please post your results!
  22. nasalady
    Hi Crimson, I'm only posting this because I'm concerned. I am blood type A negative....and I have celiac disease. The book, "Eat Right for Your Blood Type", espouses ideas that respectable scientists do not agree with (I'm a scientist, BTW). The diet recommended for me by that book would probably kill me (lots of grains!!). It describes people with...
  23. nasalady
    Very helpful post...thanks! I should add that many of us who have battled with weight problems have tried every diet out there, and not surprisingly, discovered that we felt BEST on a low-carbohydrate diet....that it made our "IBS" subside or even go away entirely! So we have unconsciously been on a "gluten-light" diet for years or even decades...
  24. nasalady
    Hi Kristen, Yes, both of my granddaughters have celiac disease/gluten intolerance. Carly, the eldest, was diagnosed via biopsy with celiac disease and she has had severe GERD her entire life. Emma had negative bloodwork and has not had a biopsy, but is HLA DQ2 and has a diagnosis of Failure to Thrive....she also has GERD, although not quite as bad as...
  25. nasalady
    Check out the following medical abstract, the paper is entitled, "Why is celiac disease so common in Ireland?": Open Original Shared Link
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