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nasalady

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Everything posted by nasalady

  1. nasalady

    ARCHIVED Blood Type

    nasalady replied to cat3883's topic in Coping with Celiac Disease

    As far as I can tell, no one is promoting any diet in this thread; only 2 people (out of 18 or so?) mentioned it. This is just a sort of poll asking people to post their blood types. Perhaps you're overreacting? Happy New Year! JoAnn
  2. nasalady
    Hi, I haven't used the Messenger much yet, so am not sure what I should be seeing in my control panel. Earlier today I replied to a PM and it seemed to have been sent off properly because a brief message flashed that said the other person would be notified that they had a new message. But now I'm wondering if it really was sent, because when I look...
  3. nasalady
    Yes, fibro rarely appears by itself but usually in conjunction with one or more autoimmune diseases. The medical community doesn't really understand it very well yet. There is a small but growing section of the medical community which believes that fibro may be an autoimmune disease in its own right, but that is still controversial. Thanks for the helpful...
  4. nasalady
    Wow! Developing fibro AFTER going gluten free; I hadn't even thought about that possibility! I have read that stress can trigger the onset of fibro. I'm glad to hear that the meds are helping. Take care, JoAnn
  5. nasalady
    Hi Sharon Marie, I'm having the same issues. In my house, we've ALMOST gotten rid of all gluten-containing foods...we're still in the process. So there is still a risk of cross contamination from the kid's crackers and stuff like that. Also, I haven't yet thrown away and replaced all plastic ware and wooden items from the kitchen, which is an important...
  6. nasalady
    Hi Joan, and Welcome! I'm so glad you ended up with the new doctor who figured out what was going on! I have read something about polycystic ovary disease being common in women with celiac disease. Are you talking about cysts on your ovaries? All I know about the migrain/celiac connection is that when I avoid gluten my headaches are...
  7. nasalady
    Oh, I know that Lyme disease can definitely occur in California, especially in Northern CA on the coast. But the incidence in CA is 0.2 per 100,000 as compared with New England where the incidence is on the order of 45 per 100,000. Statistically speaking, it's less likely in CA. As a scientist, I try to research stuff like that. I must say...
  8. nasalady

    ARCHIVED Blood Type

    nasalady replied to cat3883's topic in Coping with Celiac Disease

    Yep! Here's a link to the thread about Rh negative celiacs: https://www.celiac.com/gluten-free/index.php?showtopic=37209 JoAnn
  9. nasalady

    ARCHIVED Blood Type

    nasalady replied to cat3883's topic in Coping with Celiac Disease

    I'm A negative! Hair color as a child: reddish-brown with blond highlights Has darkened a bit as I got older. BTW, I think that there was a thread asking for people's blood types/Rh factors earlier? JoAnn
  10. nasalady
    Because the main issue for celiacs (both the underweight AND the overweight celiacs) is malnutrition, I don't think that bariatric surgery is a good idea for us. I think you should give the gluten free diet several months to a year to see if that helps you lose weight before you do anything drastic and irreversible. In fact, I've already lost a little weight...
  11. nasalady
    Hi and welcome! From your post I guess I'm not quite sure about a couple of things, such as (i) did you go off gluten before or after your doctor ordered the blood work?, (ii) what are the results of your blood work? Did the doctor test you specifically for celiac disease? Did he/she run all of the tests listed by Lisa?, (iii) has the doctor suggested...
  12. nasalady
    It might explain why I always felt so good on the Atkins diet! Well, for me, since I NEVER spend any time out-of-doors, don't have pets, and was born, raised and currently live in California, maybe not. But it is food for thought....it certainly doesn't hurt to bring it up to your doctor as an alternative possibility. Thanks! JoAnn
  13. nasalady
    I've tried lots of the commercially available mixes and some of the Bette Hagman recipes as well, but so far the BEST gluten free bread recipe I've come across is on the "Mennonite girls can cook" blog site: Open Original Shared Link This bread is absolutely amazing! The hard part is finding the white bean flour; there are only a couple of companies...
  14. nasalady
    One common theme that strikes me as I read stories in so many threads on this forum is that healing is non-linear; we get a little better, we get a little worse, we get better again....the "rollercoaster ride" that Del was talking about. But in general, there seems to be progress in the positive direction, even if it is slow. I guess that all of us would...
  15. nasalady
    I have to second the suggestion of the previous poster....Pamela's Baking Mix makes the best gluten free pancakes my family has ever had! My kids can't get enough of them! It would probably be the most convenient way to go, too.
  16. nasalady
    I've been gluten free for several weeks now and notice that some of my symptoms (such as brain fog and vertigo) are MUCH improved, but others (chronic fatigue, back and leg pain, leg stiffness, difficulty standing & walking) seem to be worse. I have fibromyalgia (among many other health issues) and that's what I attribute most of those symptoms to. ...
  17. nasalady
    P.S. As usual, your menu is great! Everything sounds delicious! What do you stuff the mushrooms with? JoAnn
  18. nasalady
    Hi RissaRoo, I thought I read somewhere in this forum that Honey Baked had re-formulated their glaze and that it was now gluten-free? This would be as of 2007.... JoAnn
  19. nasalady
    NO! You are NOT insane, nor the only one! I too have developed a habit of drinking a glass or two of wine in the evening to help me sleep better. My sleep problems aren't as extreme as yours, but I don't sleep deeply and I wake up exhausted every morning. This is supposed to be "normal" for people with fibromyalgia though. The wine does help me...
  20. nasalady
    Welcome to the forum! Yes, usually my first symptom when I've ingested gluten is a migraine headache, sometimes with vertigo. The gastric symptoms follow later on. But everybody is different; some people only have gastrointestinal symptoms, others have all sorts of neurological symptoms or even skin rashes (dermatitis herpatiformis). ...
  21. nasalady
    I was having horrible leg and foot cramps; sometimes they would occur when I was walking and I thought that I might fall! I thought they were due to my fibromyalgia, but I have 6 diagnosed autoimmune diseases as well, including celiac disease. I think that the symptoms from a lot of these ailments tend to overlap, so I'm not certain which of my illnesses...
  22. nasalady
    I have 6 different autoimmune diseases, including autoimmune hepatitis (AIH), which of course means that my immune system is trying to kill my liver; right before I was diagnosed with AIH my symptoms included: upper abdominal pain, twinges around the liver region bloating/swelling in upper abdomen exhaustion brain fog pale stool Many of these symptoms...
  23. nasalady
    My daughter is allergic to both dairy and soy; we don't allow her to have cheese or any dairy products. She drinks rice milk and does well on it. You do have to read labels with rice milk to make sure it's gluten free (Rice Dream is not gluten-free but Trader Joe's rice milk is). You may want to try what the previous posters said: no gluten, dairy...
  24. nasalady
    I'm A- and recently diagnosed with celiac disease.
  25. nasalady
    Symptoms can come and go when you're eating gluten, but if you have celiac disease, the gluten will cause damage to your intestines regardless of whether you have symptoms or not. As Fiddle-Faddle said, it does sound like you may have more than one thing going on. Just out of curiosity, have you had your liver functions tested lately? If so, what were...
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