Jump to content

nasalady

Advanced Members
 View Profile  See their activity

  • Posts

    421

  • Joined

  • Last visited

  • Days Won

    2

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nasalady

  1. nasalady
    So sorry your little one is going through this! (((Hugs))) You definitely have the right to ask to have him tested again or to have more thorough testing. Absolutely!! Celiac tests are notorious for giving false negatives, especially in young children. My granddaughter Carly is an excellent example of this, as her bloodwork and first biopsy were both...
  2. nasalady
    I'm so sorry to hear that you're going through this at your age! Unfortunately the latest research indicates that celiac disease can make it easier to develop other autoimmune diseases. I've probably had celiac disease most of my life (but was told it was IBS for decades); I started out with asthma, psoriasis, and Hashimoto's thyroiditis, and recently...
  3. nasalady
    Especially being tested for celiac disease! LOL! Two stories (mine and my granddaughter's): I went gluten free in August of last year to see how I felt. The difference was AMAZING! I started eating gluten again because I didn't want to mess up the bloodwork and within two days felt like I'd been run over by a Mac truck. I broke out with sores all...
  4. nasalady
    My three-year-old LOVES it! We buy several boxes at a time. Sometimes I throw in a handful of grated cheese to make it a little cheesier, but it's good without any augmentation. JoAnn
  5. nasalady
    Thanks! I know all about the "eating fat" thing....I'm an old hand at the Atkins diet and Atkins always said that the fastest way to lose was to increase the fat content of your diet. BUT, for me that only works if the carbohydrate content of my diet is close to ZERO. I do hope that my autoimmune conditions go into remission after a while. I did...
  6. nasalady
    Thanks for the encouragement, Lady Donna! I don't know if I'll ever be off prednisone. I have autoimmune hepatitis so I'm on Imuran and prednisone to suppress my immune system. My hepatologist has been tapering the prednisone down, very slowly, but he says I'll probably be on it for at least another 9 months to a year. He doesn't know yet if I can ever...
  7. nasalady
    P.S. I'm currently in a wheelchair, with severe fibro and RA, so I don't know how I can exercise. I'll try isometrics or something?
  8. nasalady
    Hi all....I'd like to join this group. What are the "rules"? Do we need to post every day? Wow, Teresa, that's great! I'm glad that's working for you! Unfortunately, although I've been doing exactly what you're doing since November, I've actually gained about 15 pounds since going gluten free! I've tried cutting down on portions, skipping...
  9. nasalady
    Oops! Someone already mentioned this earlier in the thread.....oh well! Let us know how the burgers and beer come out!
  10. nasalady
    One more idea: You can make your own "muffin ring": take a strip of foil, fold it to appropriate width, make a circle of desired size and tape it. Good luck! JoAnn
  11. nasalady
    Just to confirm what the other posters have said: I recently started using Arrowhead Mills millet flour in my gluten free baking. Around the same time I started to have suspicious symptoms which made me think that I'd been glutened. I didn't put two and two together until this past week when I realized that I had been eating more of my "gluten free" bread...
  12. nasalady
    Well, I know that people have been missing you!
  13. nasalady
    FYI....RissaRoo just posted some very helpful info on her blog for parents of small kids who are gluten free and/or allergic to various foods. It's a basic "how to" on feeding little ones with food sensitivities. If you're interested, please visit: Open Original Shared Link JoAnn
  14. nasalady
  15. nasalady
    FYI, if you've been gluten free for 6 months, your biopsy will probably be negative for celiac disease, even if you do have it. Bloodwork will also be negative. Even if you do have full-blown celiac disease, you have to be actively eating LOTS of gluten to have any chance of getting the tests to come out positive....and then you'd better not be on any...
  16. nasalady
    Welcome to the forum!! I hope you find some answers here. OK, one of your doctors said to eliminate wheat, and the other said not to. You are going to have to make a decision here. First, you've noticed that you have a bad reaction when you eat wheat or products that have been contaminated with wheat (such as regular oats). Second, you do...
  17. nasalady
    RissaRoo's blog still has a lot of archived gluten free weekly menu plans although she hasn't posted them regularly of late: Open Original Shared Link Has anybody mentioned Stephanie's Crockpot site and Karina's Gluten Free Goddess site? Open Original Shared Link Open Original Shared Link Both of which are wonderful! There are several other...
  18. nasalady
    I had severe migraines starting in my teens, my gallbladder was removed when I was 35, "cryptogenic" hepatitis 5 years ago (which means they don't know the cause, but now I have autoimmune hepatitis which means my immune system is trying to destroy my liver), and "IBS" since childhood. I didn't have the joint pain or seizures or restless leg syndrome....
  19. nasalady
    IBS - better within a few days Acid Reflux - better within a few weeks Sleep problems - better within a few weeks Lack of energy - better within a month Headaches - better within a few days Memory Fog - better within a few days NOTE: I have only been gluten-free since 25 November 2008. Only the diarrhea/IBS is completely gone, and it...
  20. nasalady
    I have an AWESOME recipe for banana-blueberry muffins on my gluten free recipe archive blog: (Open Original Shared Link) The recipe is originally from Karina; she made a banana-blueberry bundt cake that's gluten-free, dairy-free and egg-free: Open Original Shared Link
  21. nasalady
    Count me in! JoAnn
  22. nasalady
    I've had "stomach problems" since I was a baby. Of course then they called it "colic", and they discovered I couldn't drink cow's milk, but no one ever thought about celiac disease. Later, when I was in my 20s, I was told I had IBS. I developed a few miscellaneous autoimmune diseases, like asthma and psoriasis and Hashimoto's thyroiditis by the time I...
  23. nasalady
    Usually you don't want to substitute straight rice flour cup for cup for wheat flour. The best gluten-free flours are mixtures. As the previous poster mentioned, you should add xanthan gum or guar gum too. Here's a good gluten-free substitute for regular flour in cake and cookie recipes: gluten-free Flour mix for cakes and cookies Ingredients ...
  24. nasalady
    Welcome! It sounds like you've come to the right place! The gene test does not diagnose celiac disease. But all of your symptoms (diarrhea, rash, "wheat allergy", anemia) + the DQ2 gene are all consistent with celiac disease. There are other conditions which can cause these things (Lyme Disease, for example), though, and you should have them ruled...
  25. nasalady
    I do work from home one or two days per week, but I've been in a wheelchair for the past 6 months because of my fibromyalgia and rheumatoid arthritis. I'm lucky in that many of the things I do can be done remotely. My supervisors generally have accepted this; I don't have a formal agreement which allows me to do this. I think that one factor which has...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.