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mslee

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Everything posted by mslee

  1. mslee
    Since cutting so many foods out of my diet I've been trying some new things a couple have caused problems... Last night I made clams and mussels bouillabaisse (it was mostly mussels they cost less) Today I feel sick like never before, mostly very very weak and limp. Very weak, has anyone had this experience? Not vomiting or D, just very dizzy....
  2. mslee
    Month 1 - Sick as a dog, lived off what felt like baby food. Apple Sauce, broth, rice, soft bland veggies, chicken breast, chicken breast, chicken breast. Lots of fruit until yeast became a problem. Nothing greasy, nothing spicy,no citrus, no dairy, no juice, careful not to bend over or sleep after eating. (those last 2 helped alot) Got rid off all wheat...
  3. mslee
    oh yes, I found this link Open Original Shared Link sounds like hay is an issue, good to keep in mind this fall! Yes it's been a lifelong dream to get out of the city, taking baby steps to get there Moved from Southern California to Texas, Colorado is next...they have some great schooling options for sustainable agriculture. That just...
  4. mslee
    Hi Maybe we could share some odd symptoms that we had before diagnosis? I was fairly educated about health and nutrition, a pro at seeing docs, & being a human guinea pig...but had never heard of Celiac prior to my DX. Looking back there were clues... * I noticed as a teenager, every time I ate toasted bread my nose would tickle. * in my 20...
  5. mslee
    ooo The Hubby & I just ran off to Key West & got Married! Took a nice long road trip home, had a blast Florida will always be a special place for us to visit! I am a Western Girl at heart and don't think long term would want to live anywhere else. Always wanted that little adobe house and horses! One more little obstacle to work around. ...
  6. mslee
    Hi I have alot of the same symptoms as you do. I am finding I am VERY sensitive to cross contamination, many foods say gluten free but somewhere in small print will say "processed on machinery that also processes wheat, soy, tree nuts etc" New to this but I've tested it and soy and dairy are def. no-nos! (feeling the results big time today!...
  7. mslee
    hmmm, anyone here a farmer? how does that work out? can you have a wheat free farm with animals...guess just like us, feeding them alternatives would be more costly...unless you had the acreage for them to have a natural diet. Thats part of my therapy get the heck out of the toxic city once and for all....guess hay bale and adobe is probably...
  8. mslee
    So here are a couple questions... I'm guessing it's best for us Celiacs to avoid relocating to a part of the country where wheat is grown, or near a food factory that processes it??? I know that we need to ingest it to have most of the problems but even being near wheat products I get very itchy, my nose, ears cheeks all go crazy. What about straw...
  9. mslee
    Thanks all! I'm getting as much blood work testing done as I can with my insurance waiting for results. That will give some idea of where to go from there. Yes I think the LLMD and further tests will probably be the next step. They have pretty much told me they have done all they can for me with Western Medicine, that "I should seek out studies...
  10. mslee
    I saw my Internist and requested all these tests, I was happy she seemed fine with ordering them based on my condition...so now just waiting for the results. Going to have my immediate family request the same plus celiac tests. Lyme is something else worth looking into too, good grief! Thanks again!
  11. mslee
    This is what my GI told me, When you are newly dx the damage done to your intestines prevents you from being able to digest lactose, once your insides heal those parts will be repaired and you can consume dairy again..if you choose to. He said this can be 6 months to a year. Sometimes with the gluten intolerance comes casein intolerance, casein...
  12. mslee
    hmm it said 1:28 was normal, but my results were in the out of range column w/footnote Footnote says: less than 1:28 negative 1:28 Indeterminate: suggest repeat if clinically indicated greater than 1:28 positive I see my Internist tomorrow, I was going to have her run labs for malnutrition vit/mineral deficiencies, test my thyroid...
  13. mslee
    Ok I am just trying to wrap my mind around all this, Ive been going through my old medical records and I found that they tested me for lyme once when I first started seeing an Rhuematologist. The test & result was: Lyme AB IGG Serum 1:28 with a note saying to re-check, but they never did. I know I did get bit by a tick once for sure, and...
  14. mslee
    Oh My In the midst of my exhaustion I have stumbled onto this thread. I have almost every symptom listed on that first page. Surely this is not something else my Rheumatologist has over looked. Will do more research, is this something easy to overlook??? Thank you guys for so much good info on here!
  15. mslee
    "Last doctor I saw recommended I do a diet restricting gluten, dairy, legums, corn, eggs and soy I really don't know what I would eat if I went off all of the items and have already dropped 45pounds since starting the gluten diet and don't feel it would be healthy to loose more. In addition I have genetic high cholesterol so am already not eating any fatty...
  16. mslee
    My symptoms have been muscle and joint pain, fatigue, weakness, dizzines, irritabilty, anxiety, depression, tingling, numbness in arms and hands, migraine headaches...These could be from malnurtion from the celiac...(some on this board have suggested B 12 and Magnesium, and that makes since.) The symptoms that have gone away on a gluten free diet are:...
  17. mslee
    I'm wondering about these too. Seems like they both cause problems, I've been using rice milk and it seems ok this is so weird, really we just experiment with all these things until we can tell what exactly is the problem ingredient??? I tried making an allergist apt and they had never heard of celiac, the lady wanted to know if it was something...
  18. mslee
    Yes!!! Most simply dismiss it, luckily my Mom and Sister seem to be interested which is good because I don't doubt for a second they have it. They have struggled with terrible allergies all their lives, it was always strange I never really had any until this. Well I had been looking forward to my 1st apt with my Rhuematologist since my Celiac Dx...
  19. mslee
    thank you for the advice! I had my liver biopsy and am waiting on results, have more apts to make, tests to order, and new books to read. thanks I appreciate the input!
  20. mslee
    Shame on me for not thinking of this sooner, If there is anyway I can help anyone suffering from Ike, please let me know I am in Austin TX. gluten-free care package maybe, help with pets, or finding lodging???? let me know, take care!!! ~alison
  21. mslee
    ok thanks! So far I don't think any of them have ordered vit/mineral deficiency tests when I brought up malnutrition with my GI he said "yes, yes, there are lots of things caused by the celiac but you are not eating gluten and they will get better" I plan on going back to my general care Dr (an Internal Med Dr) after my apts with specialists are...
  22. mslee
    This is all so amazing! it's like the puzzle pieces that have been missing my whole life (and those of a few very close family members & friends) are all coming together. Soooooooo many Dr.'s with no answers! I've had 2 MRI's one in about 2004 and one just a few months ago, with contrast injection, and the needle nerve testing later. Not exactly...
  23. mslee
    I also take Magnesium (for migraines) and Calcium Citrate (because calcium is good for me). They seem to be helping I have been told Calcium can help with pms pain and also helps to relax you. My GI doctor said they are fine but keep in mind that magnesium can cause diarrhea if you are taking too much. my herbal healing book recommends: lemon balm (make...
  24. mslee
    oh yes they did a colonoscopy and an endoscopy at the same time, they also found colitis so I'm glad they did it. My husband thought it was going to be unnecessary and I was putting myself through un due stress but I told him I thought it would give me answers I needed, and so far it has. The years of guessing and being doubted were horrible, there...
  25. mslee
    It is a little scary at first, I had never been put under and was very nervous. I think they could have done a better job putting me under, they let the IV slip and I started bleeding, they started yelling it felt panicked, the anesthesiologist made some joke about inserting a Gov tracking device...and I was out. After talking to my aunt and cousin...
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