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mslee

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Everything posted by mslee

  1. mslee
    and rinne "I agree. Too complicated for who? What orientation does this dietitian have?" I know!!! and unless she knows nothing of SCD/GAPS she would see by my food diary I send her every 2 weeks I am basically already on it. But she should know something of this diet because she is the head dietitian at a major hospital...you know where sick people...
  2. mslee
  3. mslee
    I'm bumping this because GFLisa seemed to have all the symptoms I have been dealing with. First anyone involved in this thread have any updates? Ok so month 7 gluten free, but all my life have had dizziness & it seems worse now that I am gluten free. It is definitely blood sugar related, I was down to corn & white rice as my only grains...
  4. mslee
    Thank You! I am excited about this diet the food sounds so good! Muffins??? omg yum! I pretty much went cold turkey gluten-free & grain free. no gluten-free grain goodies for me! So good advice, be prepared & do the intro that should help with the intolerances I hope. Have tried goat cheese & had a bad reaction ...just last week...
  5. mslee
    Hi I just wanted to add another vote for something in her diet still getting to her. Read up on the Behavior section https://www.celiac.com/gluten-free/index.php?showforum=52 Lots of us have a nasty streak if any gluten accidentally gets in our foods, grains could do the same I would imagine...they give me migraines & make me dizzy. Consider candida...
  6. mslee
    just kinda jumping in...this is a long thread I have been so overwhelmed I am on month 7 of the gluten free diet. Months 1-3 I was sick as a dog & very weak, lost alot of weight Months 4-6 I tried to pin point other problem foods because I was still reacting to everything, saw an allergist, saw a hospital dietitian, met with my GI...none...
  7. mslee
    Hi Guys I have been gone a while dealing with life & lupus stuff. Just wanted to say Hello! and thank you for all the helpful info posted here! I know it can start to weigh on ya, posting personal info online. I recently killed my myspace ...only to move in & update my care2...it's a little addictive! Learning to adjust to this diet...
  8. mslee
    also if your kids have tested positive, and you have symptoms there is a very good chance you are celiac too...you could just go Gluten Free. ..sounds like you have had you stomach looked over pretty good, they could do colonoscopy to make sure there is not colitis or anything caused by celiac...have they checked your liver, thyroid, ana, or for malnutrition...
  9. mslee
    Hi! Your in my home town! I was recently dxed but in Texas so I am unsure about a good GI in San Diego but here is some info I have passed on to my family out there maybe some will be of help.... UCSD Has a Celiac research center: Open Original Shared Link San Diego has it's very own gluten free website: Open Original Shared Link This is another...
  10. mslee

    ARCHIVED Las Vegas / Austin, Tx

    mslee replied to nickjc055's topic in Doctors

    Hi Austin here, I was dxed by Dr Stassen, but have heard Dr Lubin is the best when it comes to celiac. My Internist (primary) is Dr Theresa Pham, not that she specializes but she seems to understand celiac and is a good Dr. This was sent to me from the local Celiac Group: ------------------------------------------------------------ AUSTIN PROVIDER
  11. mslee
    Wild Wood is probably your best bet, have not been there but have heard it's wonderful! The only other gluten free bakery I know of is Open Original Shared Link they do cookies, Whole Foods may be able to special order you something they do gluten free baked goods. Oh I just remembered this bakery from an old search Open Original Shared Link ...
  12. mslee
    rumbles thanks for the info. something definitely worth looking into. Ms SkinnyChic hang in there, at month 3 I was going nuts, my food still bothered me even though I was very careful, everything I ate still made me sick...not like gluten a little different but still sick. I weighed as much as I did at 13 & everyone was getting worried I would keep...
  13. mslee
    Mother of Jibrel Hi! Have you looked into the GAPS diet, it's dairy limited SCD you probably have...just thought I would mention it. I'm about to jump in but may wait until after holiday travel. Open Original Shared Link I cannot do casein either... or coconut that would have been a perfect dairy replacement have a nice night!
  14. mslee

    ARCHIVED Group Letter to Dr. Fine

    mslee replied to Gentleheart's topic in Doctors

    Great Job! Thanks for organizing this! I have been wanting to order some tests but $ is tight & am a little uneasy about jumping in just yet. i will pm you my name
  15. mslee
    Many celiacs cannot tolerate dairy, there are 2 causes for problems: 1) when the villi are damaged the lactase enzymes needed to digest lactose are destroyed because they are found on the tips of the villi. as the villi heal they will be replaced but that takes time my GI Dr. estimates 6mo-1 year dairy free before trying to re introduce dairy. 2) the...
  16. mslee
    oh good news! thought i was cheating...although have not officially started yet guess we're doing pretty good when "junk food" becomes sweet potatoes and 100% juice rachel, you just reminded me to go take my magnesium hope you feel better thanks! tabasco good luck with the job! night night
  17. mslee
    Hi Guys Just stopping in ran across this article this morning, talks about austism in the pacific north west in relation to rain....could it be the mercury being washed out of the air? Just a thought.... Open Original Shared Link Confused I have read that Red Wine, Purple Grape Juice, Garlic, and cayane can help thin the blood naturally. I can...
  18. mslee
    oh I see Rachel leaking gut is why you have food intolerances. LOL so I went out and bought some beet t o do a test! but now I see that test may not necessarily work. but beets are good anyways! yes just trying to stick to a scd/gaps diet ...I can tell a difference when I cheat and drink juice or eat potatoes thanks again! You guys have...
  19. mslee
    sorry guys I have a hard time keeping up in this thread! Carla I am so glad the treatments have helped you! Thank you for posting you blog, very exciting & interesting! Rachel so glad you have some answers! So the genetic defects were the root of everything? Does that explain your food intolerances? Are you really living off of peas & beef...
  20. mslee
    Hi Guys I'm going out of town in 2 days and I don't know if I have a stomach flu or if this is gastritis. Only 4 months into this gluten-free at time of endo/colo Dr found mild gastritis, had not felt these symptoms until a day or two ago. Def. feels like a bug today. Any idea how dangerous is this for someone with pretty severe celiac &...
  21. mslee
    Well I have actually been eating, beets & lots of dark leafy greens..no change in urine color. Guess that is a good sign. But to both Mother & Ali I have been kinda basing my diet on the SCD/GAPS diets, I have this great list I think Nora posted Open Original Shared Link that has helped me feel like there is lots of good food I can eat...
  22. mslee
    welcome welcome! Just wanted to add since my dx my Mom is in the process of being dx'ed she is in her 50's and symptoms she has had her whole life are healing since going gluten free. It is a little scary at first but we will be so much healthier once we heal & that part is empowering & exciting!
  23. mslee
    Hi Utahlaura! Just when I was starting to feel bad for myself cause I can't eat much I run across your post gosh that must be hard, seafood is good occasionally but I don't know what I would do if I had to live on it! For the first 2 months I couldn't tolerate any strong flavors or fats but I am finding I can tolerate some better now. Can def...
  24. mslee
    Hi! You guys probably have been to the Celiac Foundation's website. I over looked it a couple times but there is a phone # on their homepage to call and get awareness pamphlets.... so I called today and requested some. Will be sharing them with the Lupus Foundation, my other Doctors, and family members. If you would like some just give them a call or print...
  25. mslee
    Is this something most Dr.s look over look like...celiac, thyroid, lyme, malnutrition, fibro...etc Or is it something they can obviously see during endoscope or test with a lab? Just asking because when I asked my Doc if Leaky Gut was an issue he just said "I don't think so" .....ok he's seen me inside and out if I had it he should know right...
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