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mslee

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Everything posted by mslee

  1. mslee
    Hi Guys! Goodness! Right now I'm only able to check in every couple days, sounds like everyone is making progress thats great news! So glad you are moving forward! Don't have a whole lot of input...never heard of most of these treatments prior to finding this thread. It's very interesting ...thanks for the info, I'm trying to keep up and taking...
  2. mslee
    that has happened to me a few times over the past 12 years, it was very odd. almost like things smelled tasted of ammonia...but not quite... hard to describe but strange never found out the cause but it really could have been nutrient deficiencies my celiac got pretty bad before they found it so i know I was deprived of proper nutrition for a long time...
  3. mslee
    Thanks Guys! This gives me some good resources and leads to move forward with, I really appreciate it! Nora, I have been severely depressed in the past...like rock bottom... both physically and mentally. And have struggled with depression since a young age. Even all these Drs after the exams make some point of bringing up how depressed I appeared...
  4. mslee
    * When they did your liver biopsy, how many samples did they take? Hopefully at least 3 samples from different areas of the liver, otherwise they could have missed something. Yes I wondered about that! they only took one sample & they made it sound like that was a pretty serious thing for my body to deal with. * If you tested positive for the...
  5. mslee
    It's still kinda hard to tell I'm on my 4th month gluten-free, but overall it seems less painful for me.
  6. mslee
    Turkey was one of the two meats I tested allergic to, the other was pork. Find it strange the idea of being allergic to a meat. But I know fish and chicken are an issue for many. Maybe it's the soy or corn the animals are raised on??? Kinda taking the allergy testing with a grain of salt more just to give me an idea of what I react to. Still seems bizarre...
  7. mslee
    thank you andrea!
  8. mslee
    Welcome! Believe me this is good news and you will feel better! I saw pics of mine, looked very slick, smooth and shiny no little waves or fingers. From what I have seen by google searching "cross section of intestine" you can see what looks like fingers or a fuzzy wavy layer
  9. mslee
    good plan, get those antibodies out of me!
  10. mslee
    Do you have a diagnosis of celiac? Lots of Celiacs to have other food intolerances and allergies can develop after taking gluten out of the diet. Sunflower does seem to bother me. Celiac can cause skin problems, joint pain, and neuro symptoms. It's good you are going to touch base with a neurologist. I did, they didn't find anything so I am hoping my symptoms...
  11. mslee
    Any favorite books that you have found very helpful to understand all this? I know many have recommended Celiac Disease A Hidden Epidemic by Peter HR Green, MD & Rory Jones I just finished The Autoimmune Epidemic by Donna Jackson Nakazawa Found it very informative talks about how autoimmune issues are connected and the relation of environment...
  12. mslee
    yes no point in dwelling on the past, I am just glad the celiac and everything else is being caught at a point in my life where I might be able to get better. Maybe someday I can say "i used to be sick" rather than "i am sick" it is very exciting to think i can get better & move on with my living my life!
  13. mslee
    Oh one more thing about Sulfites or is it sulfates? Those sensitive to them have an immediate obvious reaction to them is that correct? I am on sulfasalazine for colitis, have not had any problems seems to help no side effects noticed. But have always been sensitive to wine. I like olives, capers, pickled food occasionally if I was sensitive those...
  14. mslee
    I am so behind I don't know how you guys keep up with all this info! Confused, that was very sweet of the school to do for you! Happy Late Birthday! Yuck! I've opted not to own a microwave, my Dad used to microwave everything in plastic and I would always tell him thats not safe, but he lives off TV dinners & is kinda a lost cause...
  15. mslee
    Get her she's one of them holistic types! No I agree, I've always kinda known I was gonna be run in circles with traditional medicine. That so much of what I am dealing with can be treated best by a healthy lifestyle and environment. But as always $$$ is the issue. I think my new insurance has some alternative options so will look into that. If not I...
  16. mslee
    No they never did and now I'm realizing that I probably do have Hasimoto's I posted results here also: Open Original Shared Link & no had not started any regular supplements at time of testing ...will start B12, D, & calcium daily You know I have not been going to Drs for 14 years for fun, I'm not happy with how much has been overlooked...
  17. mslee
    Lis so sorry about your friend. That is terrible! Sometimes it seems those who need it most are the ones who are unable to get help. wishy washy is a good way to describe the process
  18. mslee
    Than You so much! Shay you recommended most of those tests in another thread, so I made a list and had them run & now have another little piece to the puzzle! I have never been treated for anything thyroid, had been told a couple times it was a little off but it was left at that. Not considered a cause of any of my symptoms. Only since going gluten...
  19. mslee
    I should probably ad they make you wait 18 months after your approval for medicare, you get financial help in the mean time but there is no medical coverage for 18 moths. (that makes alot of sense right? ) I was also surprised they approved me fist try, my Mom told me not to get my hopes up she (working in hospitals) had heard of so many denied...
  20. mslee
    Hey Castor! I'm so sorry you are having such rough luck! That is terrible about your home, and that your family are less than supportive. Half of mine are, the other half think I'm lazy and weak. blah! First if you have at least a couple dx from the past fibro/depression/neuro apply again for SSI. List everything that debilitates you and the impact...
  21. mslee
    hey thanks! will check it out!
  22. mslee
    I have the same problem when I eat something I shouldn't (still trying to figure out what is safe for me and what is not) I have to force food down the next few days. Still know I am not getting enough, just have a repulsed feeling towards food. However if I eat corn or rice it's like it's crack (well from what I have heard about crack) and I just want...
  23. mslee
    I posted this info on the MRI thread on related disorders because some of my symptoms are neuro. Posting here in case anyone else has any input. Thanks!!!! OK So I finally got my most recent Labs back, can anyone help me understand them? ....I listed everything I have...I know it's alot just curious if anything jumps out at anyone. My GI is telling...
  24. mslee
    I like Dr Stassen as a person and he seems to be a good doc. But I now know he does not specialize in Celiac so Lubin may be a better choice. Stassen is capible of Dx Celiac, if you do seem him...just not his specialty.
  25. mslee
    Yes! My Husband and I got Married in Key West May 08, it was so wonderful! Although I had not yet been dx with Celiac (that was a week after the honeymoon, fun!) ...So that was also my last most wonderful memory of travel without having to worry about gluten. (mmm handmade pasta with grilled seafood and hollandaise sauce, deep fried calamari...
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