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mslee

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Everything posted by mslee

  1. mslee
    Hey just an Update I saw my GI today; He says the Lupus, Sjorgrens, and now they believe I also have Autoimmune Hepatitis are all autoimmune complications brought on by the Celiac being left untreated. I have a Liver Biopsy, Rheumatologist apt, and more test results next week. Oh also got my Celiac panel back, it was positive ...even after...
  2. mslee

    ARCHIVED What Now

    mslee replied to christine d's topic in Coping with Celiac Disease

    Hi I'm about on month 3 too, Had to take dairy out of my diet after going gluten free, have tested it a couple times and got really sick so you might want to consider that....I'm not sure if it is the lactose or casein in dairy that bothers me but my GI said to give it 6 months and try re-introducing it. I have noticed some of the replacement flours...
  3. mslee
    Thank You! It is all very confusing, and it does take time...I'm trying to be patient So many possibilities! I should have them check for Sjogren's as well Good Luck to you and your Niece
  4. mslee
    Hi again....I so far do like my dr (see post above) but.... as I've been doing research I ran across several folks from austin who like Dr Lubin Open Original Shared Link sounds like he helped provide 300 free celiac screening tests for the celiac awareness run tomorrow in austin Open Original Shared Link i just found out about this hope...
  5. mslee
    Hi Jen Welcome! I am fairly new here too, they DX me with SLE Lupus a few years ago I kept getting sicker and sicker. They just found the Celiac since going on the Gluten Free diet I am feeling SO much better. It's amazing! Defiantly worth considering, remember the blood tests are not always accurate. I am still in the process of getting a correct...
  6. mslee
    oh that sucks! What kind of Doctors are you seeing? I've had to see probably I'M NOT KIDDING like 50 Dr.'s and countless testing before finally getting this celiac diagnosis. ( I'm not well off either it has NOT been easy) Most Dr.s seem terribly out of date about how much diet really effects us. Before June 08 they thought I had Lupus and there had...
  7. mslee
    The Botanical name is they only way to know exactly what species of Cinnamon you are buying/consuming Real Cinnamon is listed as (Cinnamomum verum or cinnamomum zeylancium) With Cassia Cinnamon being known as (Cinnamon aromaticum)... Botanical aka Latin names where given to plants to solve the problem of correct /& definite identification...ex there...
  8. mslee
    Don't get discouraged (not easy I know).... If one Dr wont listen to you keep trying until you find one that will. Even my Gastro Dr (who I do like) said a Celiac blood test was not necessary after his assistant had recommended one based on my symptoms. Later that really bothered me so I kept leaving messages that I wanted that test done, they didn't...
  9. mslee
    For me this Diagnosis has been a Great thing! I've been a mystery case my whole life, it has not been easy. This mew diagnosis gives me HOPE! 30 days Gluten Free: * more energy that I have ever had, seems to be building by the day! * the tummy I've had all my life is gone, looks like im getting a six pack! * I realize the nausea I've had all...
  10. mslee

    ARCHIVED Please Help ---nerve Pain

    mslee replied to jjtj's topic in Doctors

    Yep. Joint pain was my first symptom it just kept getting worse, I'm hoping gluten free will help. When I was working I started dropping things and loosing control of my hands. I still do at home, in the Kitchen especially. I've seen a couple neurologists had MRI's, had nerve testing, and Brain scans...all showed nothing, no abnormalities. Dr....
  11. mslee
    Thanks! Hello nice to meet you too! Yes, I can fully understand the "but you don't look sick" glad to be here
  12. mslee
    I've had some good luck with caprylic acid as well...have not yet researched the best brands of supplements but the Solgar brand did seem to work better than the more generic version I bought the next time.
  13. mslee
    Just wanted to say ... I cut out gluten about a month and a half ago after a colonoscopy showed I have celiac. Since then I feel a million times better, but am super sensitive to what I eat. Cutting out meats that are greasy and high in fat has helped the "stringy/oily" symptom. I have to be careful with oils, acid foods, spicy foods (nightshades...
  14. mslee
    great info! thanks for sharing! so glad I finally have a diagnosis! and found this site. * feeling SO much better without the wheat!*
  15. mslee
    Hi I live in Austin and am newly diagnosed, my Gastro Dr is Dr Stassen. I have only seen him twice (well 3 times counting the colonoscopy but i was thankfully out for that one ) but he has been very good. He seems compassionate and kind (not always easy to find in a Dr) and works with a large group of Gastroenterologists I figure many minds available...
  16. mslee

    ARCHIVED Texas

    mslee replied to Angelina's topic in Introduce Yourself / Share Stuff

    Hello! Austin here. I've found wholefoods, wildwood art cafe, chipotle, NxNW, to have some food I can eat. newly diagnosed so super sensitive to everything I eat...but getting a little better
  17. mslee
    Wow! Interesting! I am also a German, Irish, Scottish, Welsh, Swedish, Choctaw, Black Foot Mutt! I wonder if those of pure Native American (both North and South) blood have a better tolerance to nightshades? Or do they just make everyone feel cruddy? oooh, yeah on second thought ... probably none of those left ....but in theory ?
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