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mslee

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Latest Celiac Disease News & Research:

Everything posted by mslee

  1. mslee
    I know in San Diego there is a big Celiac research group...here is a link for more info Open Original Shared Link So I saw my new Rheumatologist & the news is not so good. Yes Gemini he said the celiac is just one of several autoimmune disorders I have. Being gluten free will help the celiac....I wish that GI had never said that "oh it will heal everything...
  2. mslee
    ooo! is hard apple cider legal??? probably not...but the one I like contains: fermented apple juice,apple concentrate, malic acid,sulfite thanks!
  3. mslee
    thank you pele & ali When I first went gluten free came here, researched, & learned so much the theories behind the paleo diet & SCD made so much sense! As primates it makes perfect sense that a diet based heavily on grains would not be necessary or even healthy for us. That grains became a mainstream part of the human diet as a filler...
  4. mslee
    Can I jump in again and ask some more questions??? please So I have held off on doing SCD/GAPS because my dietitian insists I need grains for the health of my brain...she says there are nutrients I would be denied if I cut out all grains. Even being grain light she suggests a B complex & folic acid + the high amounts of B12 I have been taking...
  5. mslee
    oops!
  6. mslee
    I've been gone, but I love key west! glad you got to go! I was not gluten free when I went, but would like to recommend Blue Haven, they were very accommodating for our party. Many restaurants on the island have reals chefs who use fresh, real food without all the additives artificial ing. most places use & they are very friendly people down there...
  7. mslee
    Well I had my Endocrinologist apt this morning, I think shes a good one...seems to be on top of things. Although I realize these issues may take more than one Dr visit to figure out. She was concerned about my thyroid, so is running labs & I will be getting a sono x ray of my thyroid too. & go back to review in 2 weeks. As for the hypo/hyper...
  8. mslee
    Well had to bump my Rheumy apt to the first week of April, but have PLENTY of questions for him when I see him. I'm excited because he seems like he will be a good Dr. in an area where they are doing lots of Lupus research. So will post what he says... Also Mother of Jibril, Lupus pregnancies are usually high risk, and can cause flairs in women...meaning...
  9. mslee
    Hi All! Looking for the nice girl I met from Portland...when she was visiting her family in Austin last Fall... We met at a Family Friends Thanksgiving Dinner...you were the first Celiac I have met in person. Any was it was nice meeting you, I have lost your contact info. My name is Alison my Aunt is good friends with Betsy & Earl contact...
  10. mslee
    Hi All! Looking for the nice girl I met from Portland...when she was visiting her family in Austin last Fall... We met at a Family Friends Thanksgiving Dinner...you were the first Celiac I have met in person. Any was it was nice meeting you, I have lost your contact info. (sorry!) My name is Alison my Aunt is good friends with Betsy & Earl ...
  11. mslee
    I seem to be sensitive to carrageenan, I have been using Tom's not knowing what was gluten free... What brand do you use that is gluten-free, soy free & Carrageenan free??? Thanks!
  12. mslee

    ARCHIVED Group Letter to Dr. Fine

    mslee replied to Gentleheart's topic in Doctors

    thanks so much for the update & your efforts! good job, taking action & being proactive
  13. mslee
    Hi Just wanted to say that I've found going gluten free, dairy ,MSG & processed food free has helped SO much. But I still have some anxiety that is hard to deal with, I have just started taking sub lingual B12, & also got one shot of B12, Magnesium every few days (it can cause "D") Hope these will help with time. In the past I took St Johns...
  14. mslee
    Since it's been about a month since the shot, and I am occasionally feeling some tingling again I would guess shots might not be a bad idea. For now she (my internist) said no more shots for 3-6 months when she tests me again. Since I feel dramatically better I must be absorbing some...so will give this some time if more shots are needed down the road...
  15. mslee
    Too late to help Carbo, but I wanted to put in a good word for a few places I enjoyed while visiting family back home in SD.... 1) YES! Ranchos in OB was super good, went there twice wait staff was very knowledgeable & helpful. It is more Healthy/CA Mex but has a huge menu & everything my we had was great! 2) The Kensington Grill Open Original...
  16. mslee
    also wanted to add that testing for other autoimmune issues is alot like testing for celiac because...people can go years without a dx, some dr are skeptical or non believers, symptoms do overlap, you can go in circles for years and not get very far...all that fun stuff! Best of luck to you!
  17. mslee
    Hi again Georgie: "One shot only ? Refresh me .... how low was your B12 originally, and what type of shot did you have - and was it into muscle or sub subcutaenous into the skin ?" before any supplements, 2 months after my celiac dx my Vitamin B12/Folate, Serum Panel Vitamin B12 was 551...with 200-1100 listed as normal. My methylmalonic acid serum...
  18. mslee
    Hi Guys I know I have talked to some of you a little about these autoimmune conditions. I have a couple & suspect a couple more... In 2001 they said I have lupus, I saw several Rhuematologists and that was the consensus. They also always said "ah, your thyroid is a little off" but never treated it. symptoms progressed, no meds helped Summer...
  19. mslee
    Hello Everyone! Thank You so much for all the helpful info & resources! Georgie I don't know what to do about the B12 but my symptoms did get better after the shot. I have been moving a little slow lately but am trying to focus on always consuming a protein with my carbs or fruit. Seems to help. But still want testing, waiting to hear back form...
  20. mslee
    Hi There I'm sorry your down, been a little blue myself lately. Please keep in mind the test are commonly wrong. Do you guys know how accurate the genetic tests are? Open Original Shared Link can be ordered through your doctor, and Open Original Shared Link can be ordered online. I just wanted to say if you can give this more time, give it a chance...
  21. mslee
    I have really been enjoying ciders! never thought I would but have found some favorites to be: Ace apple (tart apple cider flavor) or pear (light & pear-y), or Strongbow (dry & crisp.) And although Wyders is good their website states although the cider is gluten free they cannot guarantee there will be no cross contamination within the factory...
  22. mslee
    I don't know if there is any other link besides that both are autoimmune. I believe I read they think there could be a link between G.B and Lupus...which is also autoimmune. I have recently learned that with one autoimmune condition there are usually others. My Dr thinks the celiac made my immune system go crazy and start attacking all systems...and that...
  23. mslee
    Hi Georgie! You & Shay helped me figure out my B12 issue! (~a little update on that.... I had my Internist test my B12 & methylalonic acid ....M.A. was a little high, B12/folate serum panel a little low (551). started on 500 mcg sublingual B12 daily Months later still had lots of tingling,numbness, dropping things all getting worse....requested...
  24. mslee
    Thank You! That makes me feel a little better, the docs just keep telling me they don't know why I get so dizzy. I will have testing done, does not sound pleasant but best to find out for sure. I did find out my Great Grandpa had Type1 Diabetes thanks for your input!
  25. mslee
    ew liver, beets, & boost! I know I was really torn my Doc told me to see the dietitians at the hospital...& I thought I should seek out my own...but thought maybe the Hospital Dietitian would have some experience with severe celiac. She didn't have alot, but seems open. I will give it a little more time, she noticed I do better consuming...
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