dixonpete
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by dixonpete
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The oatmeal yesterday didn't cause any reaction whatsoever. I decided to take the plunge this morning and ate a whole Wheat Thins cracker. If anything would unambiguously cause a reaction that much gluten would. In the past pre-hookworms an exposure 1/10th that much would have had me sitting on the toilet for a couple of hours. If I don't react by the...
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I've been keeping a blog on this platform about my adventures with hookworms.
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I was doing 25 larvae every 6 months which was handy coordinating with the cold weather here in Canada. This last cycle I managed to wait too long and aged out my hookworms and had to go gluten-free again. I just did my first gluten test today and so far so good (famous last words). I think I've exceeded the time that I reacted last week when I had an accidental...
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As I've written about before, the last time I ran out of hookworms (or perhaps effective hookworms) was with my first cycle spanning early August 2018 to the first week of March 2019. That end point was when I had to go back on a gluten-free diet. Putting those dates together that's 5 months for 2018 and 2 months of 2019. I was slow in testing gluten that...
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Being sick was a one-day thing. I did buy a gluten-free version of Quaker Oats oatmeal. I'll give it a go today and see if I do better. Celiacs can react to oats, so it's possible that was the source. For the record while fully hookwormed I've eaten hundreds of bowls of regular oatmeal without consequence. The clock is ticking, I hope, until my celiac days...
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Yesterday I got sick. Twice. Just like I remember being sick in my celiac pre-hookworm days when I was still eating gluten. A colonoscopy cleanse level sick. I had been eating gluten-free this month letting my critters grow and mature into their adult forms so I wasn't sure what happened. Then I remembered I had eaten a new oatmeal. I didn't say gluten...
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It's been a while, but do you remember me posting my antibody tests last year I think it was? They were A1. Since my colony stopped functioning last month I figure when I became symptomatic again it's fair to assume any new antibody tests would reflect a problem. Once my colony is back in business such tests should be ok again. As it stands right now...
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I was always super reactive to gluten. Hours of toilet duty on any exposure. Large exposures to gluten were norovirus events. Was kinda like living life being a firecracker surrounded by matches.
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It's the part of the price of admission. I've never heard of the rash creating an issue other than being temporarily unsightly. 15 days on it's almost unnoticeable. Compare and contrast, a bit of an itch for a few days or 6 months of colitis and not being able in restaurants. Helminthic Therapy will probably always be niche. Until Scott posted a...
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I've been made desperately ill all while thinking I was being celiac safe. It happens to all celiacs eventually no matter how careful we are. I prefer not having to worry about such things. I don't find hookworms onerous, and again, switching the topic, I did everything I possibly could to avoid the food effects on my colitis and I never succeeded. The...
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A better response would have been, a diabetic using insulin is still a diabetic, but what sense would it be to withhold insulin? Hookworms are my insulin.
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Semantics. With hookworms on board I display no signs of being celiac. If you buy the argument that humans in their natural state would always be carrying hookworms then it's you the unhookwormed who are unnatural. For me it's a mute argument. Either I use hookworms or I lose my colon, or I take those ungodly expensive colitis drugs. I ran into one guy...
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The few, the proud, the hookwormed. I first heard about the idea in 2010 but I had to be desperate enough to be pushed to try them. My celiac cousin with presumably the same genetics as me and so likely an excellent candidate has no interest. Says he's perfectly fine being celiac. I like the freedom of choice and freedom from fear of not being celiac...
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My decision to use hookworms wasn't based on fixing my celiac disease, that was just a bonus. I was at risk of needing surgery because of ulcerative colitis and the pain was absolutely intolerable. I was lucky. Hookworms fixed both conditions.
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I take Vit D daily, never had any involvement with B12, I had a complete blood panel done several weeks ago and everything was fine. I used to have lots of issues with low iron because of blood loss due to colitis (blood in stool) but my iron levels have been fine since I've been using hookworms. In my case they save much more blood than they consume...
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I hear you Scott. Protocols exist for a reason. In my case though I've established to my satisfaction that with a healthy colony of hookworms my GI tract does well. How do I know that? With a healthy hookworm colony my blood tests are fine, my stools are picture-perfect and painless, I have none of the irritation and bleeding that mark colitis, and the...
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By gluten test I meant not having GI symptoms from consuming gluten. I've been around this block a few times now. If my hookworms are healthy, then so am I.
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Hookworms don't live forever in the human gut. They are constantly under attack from the immune system and also they get older and less capable and eventually die off exiting via the stool. With the first batch I did in 2018 I had protection till just after the 6-month mark. Over a couple of weeks I had progressively worse GI symptoms leading to me soiling...
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Not much to report. My GI issues have all cleared up, but that's probably because I've gone gluten-free for the month of June. My entry wound has almost entirely healed. Aside from a touch of redness it should be 100% in a couple of days. That steroid cream made a huge difference, not in pain or discomfort really but certainly in aesthetics. Previously the...
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This time around I've been using a steroid cream to keep down the inflammation. The results still aren't pretty but I don't have the ugly blisters I usually get. Definitely worth using. The cream I used was a topical corticosteroid called Taro-Mometasone, aka Mometasone Furoate USP 0.1%, applied every 6–8 hours. After a week the mark should be a...
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A couple of weeks ago or so I started noticing GI issues. Occasional bouts of loose stool, stirrings of colitis, incontinence - all completely at odds with my usual experience. It had been more than 6 months since my last hookworm inoculation so I knew it was time to re-up. Things have changed since I started with Helminthic Therapy. I got hooked up...
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So I ordered my first hookworms around July 7th, 2018. The sales and transport of hookworm operates in somewhat of a gray area. Authorities recognize that seriously ill people are trying helminths like hookworms tin order to get better, but the laws in all jurisdictions haven't caught up with what some people see as a medical necessity. Accordingly...
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I also had one bout of Dermatitis herpetiformis. Not sure why it only occurred once. Weirdest skin condition ever.
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I spent a good 10 years dodging gluten. When I got caught it wasn't subtle. My last gluten exposure was a big one with the reaction lasting a day and half. I had to sit in the bathtub for hours to catch all the vomit and diarrhea being projected out of me. It was gluten. Also, as I said, my symptoms were identical to my formally diagnosed relatives. It's...
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I've told this story before here, but I guess it bears repeating. For two years straight I was sick multiple times a day was catastrophic diarrhea. Towards the end I was hitting over 10x a day. I rarely left my apartment and was considering suicide. My GP wasn't any help. One day after getting sick after a sandwich I finally figured out the association...
