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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    This is a good database for information about medications: Open Original Shared Link From what I understand, there are basically five classes of drugs during pregnancy... Class A: proven to be safe Class B: likely to be safe Class C: should only be taken if the benefit outweighs the risk Class D: known danger to the fetus Class X: incompatible...
  2. Mother of Jibril
    I've read that the only drinks at Starbucks that are NOT safe (in terms of gluten) are the frapuccinos and the Vivanno protein drinks. It's best if you ask them to use a clean pitcher and clean the steam wand before they make your drink. Personally, I think coffee drinks with soy milk are good! Unlike some other coffee shops I've been to, Starbucks is...
  3. Mother of Jibril
    If you're intolerant to casein, Lactaid won't help. Casein is in ALL dairy products, including cheese. Incidentally, cheese has very little lactose... so there's no need for lactase (in Lactaid). It is quite possible that the balance of flora in your intestines is off. There's plenty of advice on this forum if you want to search for "candida." Honestly...
  4. Mother of Jibril
    I don't think this is being caused by the gluten-free diet. My guess is that you have another autoimmune disorder or that some drug is temporarily causing your body to attack itself. During my 20s I developed several dermatofibromas... which are small, benign tumors that look like permanent mosquito bites. It's common to have one on your lower leg...
  5. Mother of Jibril
    Ttg is very specific for celiac disease. With such high numbers you really NEED to be on the gluten-free diet. You might not feel any different, but if you don't stick with it you're setting yourself up for some pretty scary health problems... more autoimmune disorders, cancer, etc... The first idea that popped into my mind is that you have more than...
  6. Mother of Jibril
    Another indication of a malfunctioning pituitary gland is when your TSH is normal (between 0.3 and 3.0), but your T4 and T3 are below normal. If your TSH and your T4 are fine but your T3 is too low, that means your body is having a problem converting T4 (the storage hormone) to T3 (the active hormone). Selenium can help. You could also try one of the alternative...
  7. Mother of Jibril
    Another perspective on some of these things... if you have any cuts or open sores, I would be careful about applying products with gluten (bandaids, lotion, acne medications, etc...), especially if you're really sensitive. Some people have no problem, some people do. You also need to be careful if you have little kids who are sensitive to gluten....
  8. Mother of Jibril
    B-12 has nothing to do with hemoglobin It's not part of the standard CBC/CMP, so you'd have to ask for that test separately. I think it's fine to take your kids' gluten-free gummy vitamins if you want to It won't hurt... you just might need to take more than the recommended amount. Vitamin D is quite safe to take on your own. You can check...
  9. Mother of Jibril
    Welcome to the group! I found this website to be helpful: Open Original Shared Link It has lots of links to other articles... very thorough and scientific. My son is intolerant to casein (the protein in cow's milk), not just lactose. It's possible that your daughter could have celiac disease... or cow's milk intolerance... or both! You'll figure...
  10. Mother of Jibril
    If it's energy you're looking for, some supplements could make a big difference... there are other kinds of anemia besides just iron-deficiency. If you don't mind another blood test you could have your B-12, ferritin, and vitamin D levels checked. Check your TSH too! If your thyroid is not making enough hormones that can cause fatigue. Some celiacs are...
  11. Mother of Jibril
    My son gets eczema from all dairy products (and corn) too! I refuse to try gluten. Maybe this year we'll get him tested for allergies... I don't know if anything will show up. Intolerances and allergies work differently. Nothing showed up on my allergy test. At least now we know what the problem is and can keep him away from those foods. I'm sorry...
  12. Mother of Jibril
    I can't say for sure that companies aren't doing strange things to pure maple syrup... but it doesn't require any special processing. Just boiling to reduce the amount of water. I have an uncle in Wisconsin who lives out in the country... he like to tap the maple trees in his yard and make his own maple syrup from scratch. Wow! The syrup is so GOOD...
  13. Mother of Jibril
    I like to buy chocolate that's at least 65% cocoa, which limits the amount of sugar (and casein from milk) and maximizes the antioxidants. Plus I love the taste The brands I buy the most often are Endangered Species (which has the best 90% dark chocolate I've ever eaten), Chocolove, Equal Exchange, and Green & Blacks. There's an ethnic grocery store...
  14. Mother of Jibril
    I like to grow edible flowers in my container garden (which is the only place they're safe from the deer)... violas, rose geraniums, marigolds, and my favorite... starflowers (borage). I love how the leaves and stems are all fuzzy and then when the star-shaped flowers appear they're such a striking blue color My daughter thinks it's fun to pick flowers...
  15. Mother of Jibril
    I know just what you mean The beauty of this... once you get past the anger (which is a totally legitimate feeling)... is that the gluten-free diet is a healthy one. You might find yourself in better physical and mental health than the rest of your family... and if you're really blessed they might follow your lead! Plus, you'll feel empowered to take...
  16. Mother of Jibril
    Some people are allergic to sodium lauryl sulfate. It's not a gluten ingredient, but it seems to be a fairly common allergen and it's in a LOT of toothpaste brands.
  17. Mother of Jibril
    Welcome to the group! No need to be worried about posting... no question is a stupid question! I suspect I've had problems with gluten my entire life. I definitely had symptoms of Hashimoto's by the time I was a teenager (a disorder that is more common in people with celiac and vice versa)... but nobody ever thought to test my TSH until last year...
  18. Mother of Jibril
    Good advice. I was just reading this week about how twitches are caused by an imbalance of magnesium, calcium, and potassium... the electrolytes needed for proper muscle function. It's definitely possible to have malabsorption without full-blown celiac disease, but have you ever been tested? It might be worth it to do this before you get back on the...
  19. Mother of Jibril
    I'm finding that my husband is actually pretty supportive... but sometimes it takes a while for the information to sink in. We had a discussion this week about how I can't eat the peanut butter if he puts some on his gluteny bread and then dips the knife back into the container. At first he made a skeptical noise and said, "Oh that little bit isn't going...
  20. Mother of Jibril
    Just a thought... but grains of any kind are not necessary for a healthy diet. If you're looking for sources of fiber, here are some good ones: - dried fruit (prunes) - oranges - tree fruits with skin (apples, pears) - berries (especially raspberries) - nuts - seeds - avocado - artichokes, broccoli - BEANS and peas
  21. Mother of Jibril
    Thanks for your supportive message I really appreciate hearing about your own experience. Interesting that you mention talking to a high-risk OB. I did talk to a perinatologist back in August. He basically said, "Well... we could test you for some things if you want to ... but it's expensive and you still might not get any answers... and I don't...
  22. Mother of Jibril
    I don't know too much about Chron's but is it possible the biopsy was wrong? I know the biopsies for celiac are notoriously unreliable. You have to take enough samples from the right areas (since the damage can be patchy) and have them read by a good pathologist who suspects celiac disease.
  23. Mother of Jibril
    Have you ever been checked for other autoimmune disorders that affect the intestines like Chron's or ulcerative colitis? Clearly you have some kind of problem with gluten...
  24. Mother of Jibril
    Welcome! A really good resource is the book "Taking Charge of Your Fertility" by Toni Wechsler. You can use it to figure out how long your cycle is, whether you're ovulating, if you're making enough "high quality fluid" for successful fertilization... or maybe you're fine and the problem is with your husband. If you track your cycles for a few months...
  25. Mother of Jibril
    It could also be an allergy... my daughter is allergic to pumpkin seeds. Have you tried other seeds? I understand if you're nervous about it but pumpkin seeds are biologically very different from things like sunflower seeds or sesame seeds.
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