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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    My mom was just diagnosed with celiac disease (blood test and biopsy)... she's 61.
  2. Mother of Jibril
    A DNA test can't give you a diagnosis of celiac disease (or any other disease, for that matter)... it only gives you an indication of risk. That being said, I think there are some cases where it is very useful to get a DNA test... 1. In situations where a diagnosis is difficult or impossible. In my own case, for example, I went on a gluten-free diet...
  3. Mother of Jibril
    Ouch! I think I paid 4.79 for a half gallon. A little more expensive than soy, but definitely worth it, especially for my casein-intolerant toddler (who could really use the fat). Quick edit... I thought you meant 3.99 for a pint of the milk. Makes more sense for ice cream
  4. Mother of Jibril
    I actually miss dairy a LOT more than gluten... so I know it's not easy. At least you have an answer now BTW... this morning I bought some groceries and I noticed that my co-op is now stocking "So Delicious" coconut milk (they also make coconut yogurt and ice cream). It's good!! You can drink it straight out of the carton. No dairy, gluten, soy...
  5. Mother of Jibril
    How old are you? Could you be starting menopause? I've been reading about this lately... most women go through menopause in their early 50s, but you can experience symptoms for as long as ten years before that happens! Also... premature ovarian failure (aka premature menopause) tends to cluster with celiac disease and hypothyroidism. In extreme cases...
  6. Mother of Jibril
    I'm sure you can have a great experience either way I also got a big scholarship to attend a small, private college. It was two hours away from home. IMO there are certain things you can only experience by living in the dorms. Not everything is good... (especially the food)... but to this day, one of my closest friends is somebody who lived on my...
  7. Mother of Jibril
    "Leaky gut" actually refers to any condition that creates microscopic holes in your intestines. Celiac disease can do this... so can overuse of antibiotics, infections, cancer, candida... it's a symptom, not a disease by itself. The problem with a leaky gut is that it allows undigested particles of food to leak out into your bloodstream. Your immune system...
  8. Mother of Jibril
    I'm using the Mirena (after giving birth twice). I was nervous about any kind of hormonal birth control because there's a history of breast cancer in my dad's family. My understanding is that the Mirena gives you a very small dose of progesterone and it's concentrated in your uterus... unlike BC pills, which affect hormones levels throughout your body....
  9. Mother of Jibril
    That depends on a lot of things... how old you are (it's less reliable in children), what your diet is like, what tests are included, etc... False negatives are pretty common. False positives are not.
  10. Mother of Jibril
    Thanks for the suggestion about putting food in my quart-size ziploc instead of toiletries! That will definitely help. Hummus has become one of my favorite foods. A good source of protein and delicious on carrots, slices of red pepper, Terra chips, etc... Some homemade vinaigrette would be nice in a shampoo-sized bottle... I could make a nice spinach...
  11. Mother of Jibril
    Allergies cause reactions within a couple of hours. Intolerances take longer, usually a day or two. The symptoms can be similar (wheezing, rashes, eczema, abdominal pain, etc...) but if you have a really severe allergy it can cause anaphylaxis (a sudden drop in blood pressure, swelling, and/or difficulty breathing). Intolerances work more slowly. Another...
  12. Mother of Jibril
    Let me preface this by saying I used to LOVE travelling... Next month I'm going to a conference in California. Since I live in southern Indiana, this means I have to catch a shuttle bus to Indianapolis, fly to Denver, fly to San Jose, and then drive to where the conference is being held (in a town along Monterey Bay... nice ). So... I'm planning ahead...
  13. Mother of Jibril
    My pleasure! It's great that you have some in-laws who can help you get started, but I know how lonely it can be. My son is extremely sensitive to casein... for the first few months after we figured it out I wished I had somebody to talk to! I had a lot of questions, but I wasn't finding many answers. And then I found this place, which is SO helpful...
  14. Mother of Jibril
    Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials Definitely not twelve!
  15. Mother of Jibril
    I've definitely had reactions to things that are supposed to be "safe." In January I decided to get really, really strict and stop eating all grains... with good results! I've slowly been able to add rice back in. Last week it was my son's birthday and I made a chocolate cake using a mix from Namaste... gluten, dairy, corn, and nut-free (although it did...
  16. Mother of Jibril
    I didn't know acupuncturists did that kind of thing... I was just reading "Dangerous Grains" again and they recommend ELISA testing for IgG intolerances... which is far from perfect, but might give you some ideas. Ultimately, you'll have to try the elimination diet (and challenge) if you want to know for sure.
  17. Mother of Jibril
    Ttg and EMA are more specific for celiac disease than anti-gliaden. However... IMO any doctor who blows off positive anti-gliaden results is doing a HUGE disservice to their patient. Your son is making antibodies to gluten... that's not normal! And it's certainly not healthy. It's very possible that your son does not have celiac disease, but he's...
  18. Mother of Jibril
    It's definitely too much... even without insurance, it should cost about $50 to check your TSH.
  19. Mother of Jibril
    Many people don't realize that gluten can damage a LOT more than your intestines. DQ5 and DQ6 are known to be associated with neurological damage. Both of the alpha genes are A1*01... I'm not sure why they left a blank spot instead of reporting the same information twice. Definitely, once the endoscopy is finished you need to get your son on a gluten...
  20. Mother of Jibril
    Wow. TSH is a test for thyroid disorders, not celiac So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests: Total IgA Anti-gliaden IgA and IgG Endomesial antibodies (EMA) Tissue transglutaminase (ttg)
  21. Mother of Jibril
    When I first started the gluten-free diet, I thought I was safe if I bought products that didn't have any gluten ingredients. Boy was I wrong! Some people are fine with them, but if you're really sensitive (like I am), then cross-contamination is a BIG problem. Was the whole bakery a gluten-free bakery? If not, then unfortunately it's soooo easy for...
  22. Mother of Jibril
    That's great advice! I do think it's important to keep track of weight when kids have an obvious problem (either underweight or overweight)... but who's to say what your son's "healthy" weight is? BTW... did you know that BMI for kids is partly based on age? My three-year-old daughter is also really skinny, but I've used this calculator and it gave...
  23. Mother of Jibril
    Really!! Thanks for your positive replies. I guess "food allergies" are a good, quick explanation. I'll have to get used to the awkward silence that follows these encounters
  24. Mother of Jibril
    :lol: I'm going to remember that the next time somebody wants to give me a new prescription. It's one thing to replace hormones your body is supposed to be making on its own (insulin, thyroid hormones, cortisol, etc...)... it's another thing to introduce man-made concoctions that may or may not be tolerated. Something to be cautious about.
  25. Mother of Jibril
    Hmmm... I'm not sure that's the case. "Dangerous Grains" estimates that about 40% of the population has some degree of gluten intolerance. IMO, a gluten-free diet is GREAT preventative medicine, especially if you know that you're making antibodies. Why wait for the test to come back positive? By then you might have irreversible damage. Incidentally...
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