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Mother of Jibril

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Latest Celiac Disease News & Research:

Everything posted by Mother of Jibril

  1. Mother of Jibril
    The reason people recommend cutting out dairy is because lactase (the enzyme needed to digest lactose, the sugar in cow's milk dairy products) is produced at the tips of your villi. If your tips are damaged due to celiac disease, then you're better off avoiding dairy for a while. This includes things like yogurt, milk, cheese, sour cream, ice cream, etc...
  2. Mother of Jibril
    Yes, I did use Enterolab. I wish I knew my HLA-DR genes too... those are also involved in autoimmune disorders. There are labs that can run that test, but a doctor has to order it. The Wikipedia HLA-DQ page is a good place to start learning: Open Original Shared Link You can also google specific genes like *0301 (the main DQ7 beta). It's amazing...
  3. Mother of Jibril
    Endomysial antibodies are recorded as either "positive" or "negative," you don't get a quantitative score. My understanding is that EMA is very specific for celiac disease... the most specific out of all the tests.
  4. Mother of Jibril
    Me too! I should have seen one a long time ago... I've been having abdominal pain for more than a year. At first I thought it was afterpains (from giving birth), then cramps from the IUD, then gluten intolerance (the gluten-free diet made a HUGE difference), then corn intolerance... but there's still something going on and it's definitely time to figure...
  5. Mother of Jibril
    The hives and itchy skin could be chronic urticaria (CU). Unfortunately, there are lots of things that could cause the symptoms you're having... infections, autoimmune disorders, mast cell disorders... it takes time to narrow down the possibilities. I know what that black hole is like For more than a year I've been trying to figure out why I have chronic...
  6. Mother of Jibril
    Sorry to hear that mslee I hope you find a little relief very soon. After seeing an allergist, ENT, a gynecologist, endocrinologist, a rheumatologist, and having surgery to remove a swollen lymph node (which turned out to be perfectly normal) I've ruled out a LOT of things... I don't have lupus, Sjogren's, RA, psoriasis, or any other connective tissue...
  7. Mother of Jibril
    Hmmm... I'm 33 years old I skin-tested positive (at a certified allergist's office) to peanuts, almonds, celery, dust mites, and four kinds of mold/fungus. From what I've read, this is more reliable than a blood test (at least for IgE... there's no other way to check for IgA/IgG allergies). My gynecologist said everything looks perfect. I had a swollen...
  8. Mother of Jibril
    I had the same thought My son is really sensitive to casein, but he has no problem with eggs.
  9. Mother of Jibril
    Mine are... I used an epipen a couple of days ago when I had another attack. My allergist's opinion is that I probably won't go into anaphylactic shock because (at least so far) I've been able to breathe during these episodes. I'm not so convinced. I carry my epipens EVERYWHERE.
  10. Mother of Jibril
    Avocados are high in calories (healthy fats). Full-fat coconut milk has more than 800 calories per can. I like to blend it with frozen fruit for a smoothie I've lost more than 30 pounds over the last six months, but it's finally stabilizing. Thank goodness! My BMI is 21. By the way... have you considered other health conditions (diabetes, hyperthyroidism...
  11. Mother of Jibril
    That's awesome!! I know how good it feels to have some answers So... you have one copy of DQ2 (the major one connected with celiac disease) and one copy of DQ7. I have a mixed HLA-DQ genotype too (DQ7, DQ8) and I suspect that's why my allergies are so bad. It's easy to develop allergies when your intestines are damaged by celiac disease... but I...
  12. Mother of Jibril
    I've been using Carlson "Solar D Gems"... lemon-flavored cod liver oil in gelatin capsules (they actually taste good). Free of gluten, heavy metals, and PCBs. Here are the ingredients: Cod liver oil, natural lemon flavor, beef gelatin, glycerin, sorbitol, water.
  13. Mother of Jibril
    Have you ever had your thyroid levels checked? Autoimmune thyroid disorders are pretty common in celiacs... the classic symptoms of hypothyroidism include: - Constipation - Irregular periods - Feeling cold all the time - Depression - Hair loss - Dry skin - Fatigue - Infertility/miscarriage - Elevated cholesterol - Weight gain/difficulty...
  14. Mother of Jibril
    I stopped eating gluten in August 2008... WOW. What a huge improvement. Unfortunately, my allergist didn't tell me to get a celiac panel before I stopped eating gluten. By the time I realized that I should be tested I have already been off gluten for six weeks and the panel came back negative. EMA negative TtG IgA <1 (normal is <3) Total...
  15. Mother of Jibril
    I have to avoid the original flavor Terra chips and all of the flavored chips because of the umbelliferous vegetables/herbs (parsnips, celery, dill, parsley), but I can handle the plain sweet potato, sweet potato and beets, "red, stripes, & blues" and the plain blue potato chips. There are VERY few processed foods that my digestive system can tolerate...
  16. Mother of Jibril
    I wonder too... and I have multiple allergies confirmed with skin testing. Corn gives me the same kind of abdominal pain as gluten I get horrible abdominal pain when I have an anaphylactic attack (along with diarrhea, vomiting, dizziness, hives, etc...), but I'm still trying to figure out if allergies can cause chronic abdominal pain. The literature is...
  17. Mother of Jibril
    My rings are getting so loose that I had to put some yarn around them... I would LOVE it if I lost a shoe size too. It's not easy to buy shoes when you wear size 11 I'll have to go visit a shoe store and check that out!
  18. Mother of Jibril
    I also have dermagraphism I'm not sure about the connection to celiac disease, but I have read that there's a strong connection to Hashimoto's (autoimmune hypothyroidism). I have a bunch of allergies (both food and environmental), but I do wonder if there's an autoimmune component to my problems... I'm waiting for the results on a bunch of blood tests...
  19. Mother of Jibril
    Interesting! My sister's son also weaned around the same age. One more thing to add to the list of reasons why I suspect he has a problem with gluten.
  20. Mother of Jibril
    Welcome! It could be chronic urticaria, which can be triggered by pain relievers, food allergies, environmental allergies, chemicals, exercise, pressure, cold/heat, or even your own body (autoimmune urticaria). Here's a very helpful resource: Open Original Shared Link BTW... "chronic" is defined as occuring longer than six weeks.
  21. Mother of Jibril
    Unfortunately, it's possible to develop new allergies at any age! Two years ago, I just had one drug allergy (tetracycline). Then, during a routine eye exam the doctor noticed little bumps on the inside of my lower eyelids... a sign of environmental allergies. I was surprised, because I hadn't noticed any problems! In January I went back to...
  22. Mother of Jibril
    In the US there are eight foods considered to be "major allergens." The EU recognizes twelve: gluten, fish, crustaceans, eggs, peanuts, soy, milk and dairy products, nuts, celery, mustard, sesame seed, and sulphites. I guess you could avoid all of those... but I'll warn you that it's a MAJOR challenge. You could also get tested for pollen and other environmental...
  23. Mother of Jibril
    I started having problems with allergies about two months after I went on the gluten-free diet... and I'm really, REALLY strict about keeping gluten out of my food. I have read that people with celiac disease can develop allergies due to intestinal damage, but it's possible that your problem is not connected to the gluten challenge. You might want to see...
  24. Mother of Jibril
    Maybe the dates were moldy Good suggestion to contact the company! I can't eat Lara bars these days (I'm pretty sure all the bars have nuts)... but I've never had one that tasted like nail polish remover. Bleh.
  25. Mother of Jibril
    Welcome to the group There are sooooo many things that can cause missed periods. It might be connected to celiac, but chances are good that it's not. It's really something to ask a gynecologist about.
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