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Latest Celiac Disease News & Research:
Everything posted by Mother of Jibril
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ARCHIVED Questions About Leaky Gut
Mother of Jibril replied to mslee's topic in Food Intolerance & Leaky Gut
Oh yeah... I forgot about #2 Once I ate a LOT of beets and it turned my poo dark red. Ugh! For a minute I was freaking out thinking it was blood... and then I realized it was the beets. -
ARCHIVED Halloween Snack Ideas Needed
Mother of Jibril replied to confused's topic in Gluten-Free Recipes & Cooking Tips
How about bobbing for apples? I only did it once as a kid... but it was really fun! Gluten-free, casein-free, soy-free fun -
ARCHIVED Thyroid? Or Should We Be Looking At Other Things?
Mother of Jibril replied to ohsotired's topic in Related Issues & Disorders
Thanks for that explanation. It really does help... and it makes sense that our immune systems learned to be a little too smart. If things are going wrong (starvation, disease, toxicity) just attack the thyroid. Slow down the metabolism, don't allow for normal reproduction. Sigh. Autoimmune disorders really SUCK!!!! For the last couple of weeks... -
ARCHIVED They Changed My Cereal.
Mother of Jibril replied to Chicklet's topic in Gluten-Free Foods, Products, Shopping & Medications
That sucks! I can NOT understand why sooooo many foods have some kind of wheat or barley additive. Does it really make a difference for the average consumer? My daughter's absolute favorite baby food was spinach and potato. Now that I'm aware of gluten, I realized it also has barley. Why??? -
ARCHIVED Thyroid? Or Should We Be Looking At Other Things?
Mother of Jibril replied to ohsotired's topic in Related Issues & Disorders
Sorry to get off on this tangent... I'm hoping Shay or someone else can answer this. I understand why you don't want to have a thyroid antibody attack going on. What I don't understand is how Armour is supposed to stop it. Does it trick your body into thinking there's nothing left to attack? In the case of celiac (where your immune system is attacking... -
ARCHIVED Thyroid? Or Should We Be Looking At Other Things?
Mother of Jibril replied to ohsotired's topic in Related Issues & Disorders
I think it's definitely worth talking to your doctor. You might do really well with a low dose of Armour... some doctors are open to letting you try it. The bad thing about having too much thyroid hormone is that it's hard on your heart and can lead to osteoporosis, but you could stop taking it if it gives you hyper symptoms (sweating, fast heartbeat, etc... -
ARCHIVED Thyroid? Or Should We Be Looking At Other Things?
Mother of Jibril replied to ohsotired's topic in Related Issues & Disorders
Your thyroid levels are technically "normal," but a bit low (especially the T4... your T3 could be better too). I'm taking levothyroxine right now (T4), but I know a lot of people swear by Armour (natural, desiccated thyroid) because it gives you the whole range of hormones (T4, T3, T2, T1). It is really frustrating to chase down those remaining symptoms... -
ARCHIVED Sodium Nitrates
Mother of Jibril replied to Woolygimp's topic in Food Intolerance & Leaky Gut
I've been thinking about all the things my parents did with me too. They really meant well. I have a good relationship with them and I know for a fact they were not trying to make me suffer. I grew up eating a LOT of cheese sandwiches, eating cereal, drinking 2-3 glasses of milk a day. Turns out I have genes for celiac and casein intolerance Plus... -
ARCHIVED Gene Test Results... Worth Waiting For!
Mother of Jibril replied to Mother of Jibril's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Getting back to this for a second... Apparently, grass pollen allergies are associated with something called "oral allergy syndrome" or "burning mouth syndrome"... Open Original Shared Link My dad (I'm pretty sure he's the one that gave me the DQ7 gene) has a ragweed allergy and was a really picky eater as a child... for years, he lived off... -
ARCHIVED Moving Abroad
Mother of Jibril replied to SeMeCl's topic in Introduce Yourself / Share Stuff
In college I spent a semester in Mali... what an amazing experience! It was HARD, but I learned a lot about myself. The difficult thing there is that it's a very family-oriented society. Single women don't just go out to clubs unless they're prostitutes My host family wasn't very helpful about introducing me to people... they were so busy working and... -
ARCHIVED Sodium Nitrates
Mother of Jibril replied to Woolygimp's topic in Food Intolerance & Leaky Gut
You're right that there's an awful lot of horrible stuff being done with our food I do find healthy food a bit expensive. I hope my income grows fast enough to keep up with my kids as they get older and start eating greater quantities Over the last five years, my husband and I have been buying more and more organic food. We hope the investment... -
ARCHIVED Gene Test Results... Worth Waiting For!
Mother of Jibril replied to Mother of Jibril's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I did read one of the articles on the main celiac.com website about the genetics of gluten intolerance. I also looked at the Wikipedia page on HLA-DQ types when I got my results: https://www.celiac.com/articles/21628/1/Cel...tics/Page1.html Open Original Shared Link Enterolab and Kimball both use swabs to gather cells from the inside of your cheeks... -
ARCHIVED Enterolab Results
Mother of Jibril replied to artselegance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is totally my personal point of view, but... I think your ability and need to take things out of your diet is going to depend on two things: 1) How desperate are you? 2) How much time and ability do you have to cook? I'm really strict on keeping alcohol, pork products, gluten, and cow's milk out of my diet (and corn, but I'm planning... -
ARCHIVED Ate Something Baaaddd This Weekend...
Mother of Jibril replied to givenupgluten's topic in Coping with Celiac Disease
I still had some gas, bloating, and abdominal pain after I stopped eating dairy and gluten. When I stopped eating corn it disappeared. Wow! I never would have guessed. Is there anything you started eating a lot more of when you went gluten-free? Corn was my substitute. Maybe I always had a corn problem, but I didn't notice because I wasn't eating... -
ARCHIVED Enterolab Results
Mother of Jibril replied to artselegance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Back up on the Tofutti thing... their "Better Than Cream Cheese" is good, but I think the ice cream bars (not the containers of ice cream) have gluten. I'm still getting used to this too. -
ARCHIVED Enterolab Results
Mother of Jibril replied to artselegance's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In April I had stop eating dairy products (casein) because it was having a horrible effect on my newborn son. At first I thought... How am I going to do this? I'm from Wisconsin! What kind of cheesehead can't eat cheese??!!! It was NOT easy. Especially during ice cream season. But... it does get better. I eat a little soy yogurt when I'm hungry for... -
ARCHIVED Need Some Help And Advice For Child With Celiac
Mother of Jibril replied to katdw's topic in Parents, Friends and Loved Ones of Celiacs
I'm sorry this won't help much in the short term, but... I'm really enjoying rice pasta (Tinkyada is a good, widely available brand). My husband thinks the pasta is strange, but he doesn't have gluten problem. Honestly, I can't tell the difference! It might be because I've already been off gluten for two months... or maybe because I'm getting a bit... -
ARCHIVED Sodium Nitrates
Mother of Jibril replied to Woolygimp's topic in Food Intolerance & Leaky Gut
One thing I learned in organic chemistry (I started out as a chemistry major in college) is that nitrates are WAY bad for you... extremely toxic to living things. That's why they make such great preservatives. So... I suspect the effects you experienced were from killing off bacteria in your digestive system. Sorry. I haven't eaten nitrates for about... -
ARCHIVED Gene Test Results... Worth Waiting For!
Mother of Jibril replied to Mother of Jibril's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I didn't take the grains comment personally... no worries! Even when you have the same gene, I know people can react in different ways. I'm just intolerant to a lot of the grains you listed... thank goodness I can still eat rice and wild rice. I don't eat teff very often, but I love Ethiopian food and that's what they use to make injera bread. I do... -
ARCHIVED Gene Test Results... Worth Waiting For!
Mother of Jibril replied to Mother of Jibril's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What about sugar made from beets? That's the typical "refined sugar." I haven't had a problem with diabetes (thank goodness... it runs in my family), but I have sloooowly been coming to the conclusion that I'm better off if I don't eat too much of it. High Fructose Corn Syrup was not too hard to get rid of. The big sticking point for me is chocolate... -
Welcome to the group! Even if you find a decent doctor, I think you'll find a LOT of helpful information here. My kids are a lot younger (three-year-old daughter, eight-month-old son), but I understand the gluten battle My daughter has a very intense personality and she LOVES gluten. It's addictive. I just learned that she definitely has at least...
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ARCHIVED Cooking Rice
Mother of Jibril replied to casnco's topic in Gluten-Free Recipes & Cooking Tips
Are you sure you're adding enough liquid? I don't think it matters what kind of liquid it is. I use water, but after several batches of rice that were a little too hard (especially as leftovers ), I added more water. Much better. Incidentally, even if you cook the same type of rice every time (we like jasmine rice), the conditions in which it was... -
ARCHIVED Why Did I Have To Figure This Out?
Mother of Jibril replied to Spruey Stuey's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You're right that doctors can easily miss something... no matter how obvious it should be. In November 2006 I was 17 weeks pregnant with my second child when I went in for a routine ultrasound and found out there was no heartbeat (even though I heard the heartbeat at 13 weeks). In a "normal" person, the chances of this happening are less than 1%. The... -
ARCHIVED What Does This Sound Like To You?
Mother of Jibril replied to mltjq's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
From what I've read, you can't really overdose on Vitamin C. It's a water soluble vitamin and easy for your body to excrete if you're taking too much (although really high doses can cause diarrhea). A Vitamin D deficiency can also do all kinds of horrible things to your body. Check out this link: Open Original Shared Link It's safe to take... -
ARCHIVED Questions About Leaky Gut
Mother of Jibril replied to mslee's topic in Food Intolerance & Leaky Gut
I've been doing a little reading about leaky gut... there seems to be a fair amount of crazy, speculative information out there , but here are a few things I've learned that seem to make sense: - There is a scientific test that can diagnose a leaky gut. It involves drinking a solution with two different kinds of sugar. One of them is NOT supposed to...