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Mother of Jibril

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Everything posted by Mother of Jibril

  1. Mother of Jibril
    I used to clog the toilets a LOT Now that I've been on a gluten-free diet for ten months my toilet is working just fine I don't even remember the last time I had to use the plunger.
  2. Mother of Jibril
    Hi John, Two things that stand out to me... 1. Your ferritin is quite low, especially for someone getting iron supplements. Your doctor was smart to check your ferritin and do a celiac panel. 2. Your total IgA also seems low (do you have the reference ranges?). The problem is that if you're "IgA deficient" you can easily get a false negative on...
  3. Mother of Jibril
    BTW... tofu does not have gluten, but you do have to be careful about cross-contamination (from the bread) if you eat in a restaurant. I prefer to eat Indian food at home... there are tons of companies making microwaveable packets of sauce. You just heat it up and pour it over rice. Another thing to consider... you might have a problem with soy too....
  4. Mother of Jibril
    You might want to read the book "Dangerous Grains." Headaches have a lot of different causes, but in the right person (for example, someone with the DQ5 and/or DQ6 gene), a gluten-free diet could help. It's very possible that you don't have celiac disease and will never test positive... yet a gluten-free diet is the solution to your problem. There's still...
  5. Mother of Jibril
    I've been gluten-free for ten months and I'm happy to say that I no longer have that "starving" feeling Some high-calorie foods that tasted great a few months ago (like a "smoothie" made with a whole can of full-fat coconut milk) are no longer appealing. I'm sure healing has something to do with it. It also helps that I've become used to the gluten-free...
  6. Mother of Jibril
    Just a quick note... Celiac disease is actually an autoimmune disorder, not an allergy... and pregnancy is a classic trigger for autoimmune disorders. It was for me (BTW... it's totally possible to have an allergy to wheat and/or the other gluten grains AND have celiac disease). Were you eating gluten when you had the celiac panel done? What...
  7. Mother of Jibril
    You say you have a "mild" allergy to wheat... what makes it mild? When my son started eating solid foods (when he was six months old) he developed problems with eczema and diarrhea... I tracked the problem down to corn. Took corn out of his diet (and mine)... problem solved I thought it was just an intolerance. He tested negative on RAST (a blood...
  8. Mother of Jibril
    Another idea for you to consider... anaphylaxis. That could definitely explain the "wrung out" feeling. Histamine levels naturally peak around 2am. I have idiopathic anaphylaxis (it's not food, medication, exercise, cold/heat, insects, etc... the classic allergy triggers) and my last two attacks started in the middle of the night. The main treatment is...
  9. Mother of Jibril
    Good note about the dye I take the yellow 100mcg Synthroid tablets. I started with generic levothyroxine, but I finally saw an endocrinologist and he wanted me to switch to the name brand (to ensure a more accurate dose from batch to batch). Personally, I haven't noticed much of a difference... I wouldn't hesitate to go back on the generic if I couldn...
  10. Mother of Jibril
    In April I had to start taking antihistamines on a daily basis and I was pleasantly surprised to find that they REDUCED the inflammation in my eyes, making them wetter and a lot more comfortable (even without eyedrops) But... last weekend I had the stomach flu and had to take a few doses of the anti-nausea medication promethazine (Phenergan)... horrible...
  11. Mother of Jibril
    You could be right about the calcium... calcium and magnesium need to be in proper balance. You might want to do some more research, but I think the recommendation is 400mg of magnesium for every 1000mg of calcium. "Dangerous Grains" recommends adding magnesium supplements until you reach "bowel tolerance" (a point where you can't go any further without...
  12. Mother of Jibril
    Have you considered that something else might be causing the back-up? Like, for example... hypothyroidism. One of the classic symptoms is constipation. Other symptoms can include: - Hair loss - Brittle nails - Dry skin - Feeling cold all the time - Depression - High cholesterol - Heavy periods - Low libido You might also try magnesium...
  13. Mother of Jibril
    I know how scary it is to explore the other seeds and nuts when you're allergic to peanuts The best advice I've read recently is to buy nuts in the shell... very little chance of cross contamination. Some people with peanut allergies are also allergic to one or more of the tree nuts (like almonds, walnuts, pistachios, etc...), but it's not automatic....
  14. Mother of Jibril
    Sorry you felt so bad this morning The first thing that struck me about your story is that "Rice Chex with rice milk" is not very filling... even if you eat two bowls. It converts to sugar VERY quickly in your body, so you get a surge of energy and then a crash. If you want longer-lasting energy, try combining that with some kind of protein. Are...
  15. Mother of Jibril
    For some doctors, your B-12 level has to be REALLY LOW before they consider taking action As long as you're driving to the next town to get your results, get a photocopy! Then you can see the actual numbers and guage for yourself how "normal" your levels are. BTW... if you're taking supplements, the sublingual kind are better for delivering the vitamin...
  16. Mother of Jibril
    Here's my understanding... You had a positive test for antigliaden and a negative test for tissue transglutaminase (ttg). The positive test shows that you're definitely intolerant to gluten (antigliaden is an antibody your immune system is producing in response to gluten). Ttg is more specific for celiac disease, but a negative test doesn't necessarily...
  17. Mother of Jibril
    At this point in time, the only autoimmune disorder than can be cured is celiac disease (by life-long avoidance of gluten). A quote from the first article you mentioned... If hydrangea root is effective, then personally... I wouldn't go messing around with it on my own. Why take further chances with the balance of your immune system? You might...
  18. Mother of Jibril
    Just curious... who noticed the goiter? It was quite forward-thinking to do an ultrasound even with normal labs! Another way you could get a diagnosis of Hashimoto's with normal TSH is to test positive for thyroid antibodies. Here's an article from Mary Shomon (a well-known author on thyroid disorders) about treatment possibilities for people in your...
  19. Mother of Jibril
    The title of your post made me laugh I've been to a LOT of Midwestern funerals... where the main dish is always ham sandwiches with butter It became a bit awkward after I stopped eating pork in the 1990s (for religious reasons). And now... forget it! I'll have to station myself in front of the vegetable tray. Carrots and celery anyone?
  20. Mother of Jibril
    Have you been officially diagnosed with DH through a biopsy? If so, then you have more than a "severe intolerance" to gluten... you have celiac disease. As to your question, nasalady... I'm not an expert on "failure to thrive," but it seems like it would be connected to malabsorption. Celiac disease can cause that, but so can other things... here...
  21. Mother of Jibril
    True... you can do a genetic test at any time. It doesn't matter if you're eating gluten or not.
  22. Mother of Jibril
    The main problem I know of with untreated celiac disease (continuing to eat gluten even when you know it's causing your immune system to damage your intestines) is cancer. Especially lymphoma Open Original Shared Link
  23. Mother of Jibril
    It does seem quite possible that you have celiac disease... at the very least, you're obviously intolerant to gluten. I'm not surprised that your panel came back negative, however. It takes time to cause enough damage for a diagnosis of celiac disease... like three MONTHS, not three days At this point, IMO, you basically have three options: 1) Assume...
  24. Mother of Jibril
    I owned that book about ten years ago... If you look through all the types, you might notice that he tells everyone to eat more fruits and vegetables and avoid processed foods. IMO, that's the key. Nobody should be eating lots of Twinkies!! I don't know how much of a difference it makes to eat more meat, less meat, more seafood and less red meat, certain...
  25. Mother of Jibril
    I noticed a difference in my symptoms (especially the abdominal pain) within 48 hours after I stopped eating gluten. You're smart to be skeptical AND paying attention to your body at the same time. Really! I've had some BAD experiences over the last three years too
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