Jump to content

Tallforagirl

Advanced Members
 View Profile  See their activity

  • Posts

    165

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Tallforagirl

  1. Tallforagirl
    I'm not sure what your point is? Barley malt is a no-no, so Asahi beer is still no good for celiacs to drink. Sad, because I used to enjoy it evey now and again
  2. Tallforagirl
    Actually, a person with DH definitely does have celiac disease. So much so that if you have a skin-biopsy diagnosed case of DH, then it's taken as a diagnosis of celiac disease. No gut biopsy needed. "Dermatitis herpetiformis (DH) is the skin manifestation of celiac disease. All patients with DH have celiac disease. It is an intensely itchy rash that usually...
  3. Tallforagirl
    Well my celiac disease is an ongoing autoimmune issue, because if I ingest gluten it provokes an autoimmune response. As I said in another post, I have a lot of sympathy for those who are highly symptomatic. Some of them have other issues going on such as additional sensitivities and allergies which is also hard on them. But it's not helpful to always...
  4. Tallforagirl
    Good. I sympathise with you. But as you said yourself, people who get this sort of reaction don't also need to worry that they've been badly "glutened" because symptom level does not equal autoimmmune response. You may have a very bad symptomatic response, but very little or no autoimmune response. There's a difference, though, between...
  5. Tallforagirl
    It's thought that celiac disease can be "triggered" in anyone with the relevant genes at any time in life, by stressors such as emotional stress (say, a divorce), surgery, injury or illness. Celiac disease can cause lactose intolerance (because the hormone than digests lactose is produced in the tips of the villi, which are destroyed by celiac disease...
  6. Tallforagirl
    Symptoms do not directly equate to autoimmune response. Maybe the sugar in the cookies gave you a slight "high"?
  7. Tallforagirl
    I read on another discussion board that someone found some grains of pearl barley in their lentils, then when I went shopping today they'd added to the label of the green lentils I normally buy "may contain gluten". Is it possible that chickpeas could be contaminated by pearl barley as well?
  8. Tallforagirl
    I don't care what toiletries another person uses, I do care when someone peddles misinformation about celiac disease. I think it fuels paranoia and unnecessary worry. We celiacs have enough to worry about already, without worrying that we may get "glutened" from touching a door handle (which someone may have previously touched after handling a bread roll...
  9. Tallforagirl
    No, you didn't say that, but you did say: "Unless an asymptomatic person is in constant heavy contact, for example, who say's they'd be exposed enough to get glutened?" Maybe you need to define what you mean by "constant" and "heavy" And I say that the severity of your symptoms will not tell you how much of an autoimmune response you are having. ...
  10. Tallforagirl
    Oh, well, phew, guess that means I don't have to worry any more then. I can have that slice of cake (but just a little, and only every now and then). Don't presume to tell me that because I'm asymtomatic, I am lucky because I can get away with having gluten, as long as it isn't "constant heavy contact" C'mon get real! What you are saying is totally...
  11. Tallforagirl
    Yup, that's what it comes down to. Let's put it this way. I think we all agree there's no link between the symptomatic reaction and the autoimmune reaction, otherwise why are there so many asymptomatic Celiacs? So if you believe a Celiac will get "glutened" from simply touching the stuff, that means all of us asymptomatic Celiacs are getting unwittingly...
  12. Tallforagirl
    Not sure if this is the one you're referring to. The study looked at the severity of damage to villi in symptomatic and asymptomatic celiacs and found no direct correlation. It was a small study sample, but interesting none the less. Open Original Shared Link I've read the the tTG and EMA tests relate to level of gut damage - so high positive result...
  13. Tallforagirl
    This is the crux of the matter. It is NOT a Celiac response that you have if you react to gluten on your skin, it is an ALLERGIC response. You do not provoke the autoimmune response, you do not suffer long term damage to your gut, unless you swallow the gluten. This is not to say that I don't sympathise with someone who has an unpleasant reactiont to a...
  14. Tallforagirl
    That's why I said "unless you swallow it". I'm not sure how you managed to swallow your hair dye. Be a bit more careful next time.
  15. Tallforagirl
    The chance for your twin developing celiac disease is around 70 per cent, so I agree with ravenwoodglass, it's a good idea for your twin to get retested periodically. Conversely, there's also 30 per cent chance your twin won't get it.
  16. Tallforagirl
    Good luck with the scope, I hope you get some answers.
  17. Tallforagirl
    It sounds like you had an allergic reaction to one or other of the ingredients. Not sure how you deduce that it's gluten. In any case, you can't get "glutened" as in have a reaction/gut damage related to celiac disease, from a topical product, unless you swallow it. Usually in the instructions for this type of product, they advise a patch test before...
  18. Tallforagirl
    Yep, I agree. Life as a Celiac is enough of a PITA as it is. No need to check ingredients of shampoo, body lotion or any topical product (with exception of lip balm/lipstick), unless you are finding an allergic reaction to it. Personally, I don't how the people who say they react to the gluten in a topical product, know for certain it's the gluten they...
  19. Tallforagirl
    These all could be symptoms of celiac disease but equally they are vague enough that it could be something else or a number of separate causes. What test did the doctor do exactly? Was it the full Celiac blood test panel? This includes: Anti gliadin IGA Anti gliadin IGG Anti endomysial antibodies (EMA) Anti tissue transglutaminase IGA (tTG IGA...
  20. Tallforagirl
    I think it's important to differentiate between your immune system response and your nervous system response. Some celiacs react very quickly and violently with D, gas etc to even trace amounts of gluten. Others have a less sensitive nervous system, so they are asymptomatic even when ingesting large amounts of gluten. For both types of people, an autoimmune...
  21. Tallforagirl
    There doesn't seem to be a complete consensus on how long/how much constitutes gluten challenge, but most sources seem to say 6 weeks to 3 months, four slices of bread or equivalent daily. If you're going to do the scope anyway, it might be worth putting it back a bit and giving yourself at least six weeks back on a gluten-heavy diet. You didn't say whether...
  22. Tallforagirl
    A study done here in Australia found no relationship between severity of symptoms and severity of gut damage: Open Original Shared Link Just reading this board I am often suprised to note that often those with the strongest symptoms are negative for antibodies when blood-tested, whereas many who are asymptomatic or with very mild symptoms have very positive...
  23. Tallforagirl
    This is really only a problem with products you use around your mouth, as there's the possibility that you can get the lather in your mouth and ingest it. Products like a body lotion are not likely to be ingested, so they would not be a problem in spite of any gluten containing ingredient. Of course if you have a wheat (or oat-grain) skin allergy it's...
  24. Tallforagirl
    Mainly I eat tinned creamed rice with bananna, that's about as quick and easy as you get, as I don't bother heating the rice. Sometimes I like to cook some quinoa with fruit juice (1 cup quinoa with 1 1/2 cups fruit juice bring to boil and simmer 15 mins) I eat this cool with either creamed rice or yoghurt maybe with some fruit. Most of the gluten-free...
  25. Tallforagirl
    Have you had a full blood count done to check your vitamin levels? My B12 was in the normal range, but low in the range, so my doctor gave me a series of B12 injections which seemed to help enormously with the fatigue I'd been experiencing. In all it took me four months to feel well enough to not want to nap during the day, and to be able to start exercising...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.