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Tallforagirl

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Everything posted by Tallforagirl

  1. Tallforagirl
    No, this is not correct. To my definite knowledge, the biopsy is still the gold standard in at least Australia, New Zealand, the UK and Ireland. I'm pretty sure it's still the gold standard in other countries too, maybe others can confirm this? To clarify: the Endomysial Antibody (EMA) test is a different test from the genetic test. The EMA is...
  2. Tallforagirl
    I tried L-glutamine for about a month, and it didn't seem to make any difference. My B12 was a bit low, and I had injections of that, which did seem to help with the extreme fatigue I had.
  3. Tallforagirl
    I don't think the dark chocolate Lindt contains barley malt. At least here in Australia it doesn't. Don't know about the US, but here in Australia if there is an ingredient in the product it must be labelled as such.
  4. Tallforagirl
  5. Tallforagirl
    There's a lot of information on hydrogen breath testing here: Open Original Shared Link You fast for 12 hours, then they measure the hydrogen levels in your breath over a period of time, while having you ingest small amounts of fructose (it can also be used to test for lactose intolerance in which case they'd give you lactose). I know that here in Australia...
  6. Tallforagirl
    I'm one of the non-sensitive. I think you'll know as you go along how sensitive you are. There are basic precautions we all need to take though, as severity of symptoms are not indicative of level of damage to villi.
  7. Tallforagirl
    Apples are high in fructose, so you could be fructose intolerant. There is a breath test you can have to diagnose this. If it's just apples that cause the C, then maybe just avoid apples?
  8. Tallforagirl
    Your personal medical history and suitability to undergo the procedure is something you'd have to take into account and discuss with the doctor. However, I would like to agree with sbj and reassert the fact that there is no garden hose involved. It's possible to imagine that the scope might be like one, but it's not. I can't say for sure what it looks...
  9. Tallforagirl
    Where do you live? Maybe someone on the board can recommend a local dietician.
  10. Tallforagirl
    This is a really good example of why an endoscopy is a good idea. Even with positive blood work, it's possible someone could have had celiac disease plus a tapeworm (or something else). Hope your sister has a quick recovery:)
  11. Tallforagirl
    Can you explain what you mean sbj? Are you talking about contamination during processing or during the growing of the grain. I've heard some grains might be CC such as quinoa, but have not heard that others may have gluten. I'm not a very sensitive celiac, so not concerned from that point of view, but just interested...
  12. Tallforagirl
    If the label says gluten-free then it's gluten-free, it's not going to have any ingredient cotaining gluten in it.
  13. Tallforagirl
    What concerns me is that there seems to be a very vocal group of people on this board who greet every newbie with a great long list of things they would never have thought they needed to worry about: telling them to chuck out all their old pots and pans, check the ingredients in their shampoo, lotion etc. I've even seen someone say that bandaids are unsafe...
  14. Tallforagirl
    It's good to hear someone make this point. There seems to be a lot of hysteria around the ingestion of microscopic amounts of gluten, and while this might be reasonable for those who are very sensitive, for the rest of us (probably the majority of Celiacs), if we do our best to be vigilant about CC, and not go around deliberately eating gluten, then we'll...
  15. Tallforagirl
    I'm with Darn210 and Gemini on this one. It can easily take more than six months for antibodies to get back to normal levels, especially if very high to start with (which is why it's worth checking what your levels were when first tested). My tTG was >200 when first tested, then four months later it had come down, but only to 132, which is still a very...
  16. Tallforagirl
    Why? Why not at least get the blood tests? If the gluten-free diet doesn't help, or is only of limited help, then what? You're still gonna have to get child tested to rule out celiac disease, and that means going back on gluten for three months.
  17. Tallforagirl
    What some others have said about getting bone density testing, full blood count and seeing a Celiac specialist dietician, I would echo. Especially the dietician. If they can show you what to look for on labels to know what you can eat rather than you being scared to eat anything, that is invaluable. You won't have to stick to buying only products labelled...
  18. Tallforagirl
    To give you some feedback re 1 and 2, with reference to my own experience only (not based on any expert medical opinion). I was retested three and a half months after going gluten-free and my tests (tTg and EMA) were still very positive, although the numbers had come down. It took me nearly four months for symptoms to start appreciably resolving. I...
  19. Tallforagirl
    Yep, you're absolutely right sbj. If only all ills could be cured by gluten-free diet, but unfortunately, it is not so.
  20. Tallforagirl
    The Celiac blood test panel should include the following: 1. Antigliadin IgA and IgG* 2. Anti-tissue Transglutaminase Antibody (tTG), IgA and/or anti-endomysial IgA (these are both more reliable than the antigliadin tests, the endomysial one is more specific to celiac disease (almost 100 per cent), but the tTG is more sensitive) 3. Total serum IgA...
  21. Tallforagirl
    I'd thank them politely for their gift, but tell them you are only eating plain whole foods to start with, until things settle. You might find by eating very plainly for a while, things do settle and you can start to try some of the gluten-free treats.
  22. Tallforagirl
    Going by what I have read, once your celiac disease is under control (blood levels have normalised through gluten-free diet), there are no additional risks with pregnancy, but it's important that it is under control before you get pregnant. I'd recommend you read: Peter H Green: Celiac Disease, a Hidden Epidemic, and Jules E. Dowler Shepard: The First...
  23. Tallforagirl
    A year ago I couldn't put on weight for love nor money, and I was ravenous the whole time. Now the weight is going on for sure! I am less hungry now that I am gluten-free but there's still the psychological need to have food constantly at hand, and to eat at the first sign of hunger. As RiceGuy says, foods which are high in healthy fats will help with...
  24. Tallforagirl
    Have the boys had positive blood tests as well? If not, you could consider getting them tested for the celiac disease genetic markers. Although it can't diagnose celiac disease, this test can rule it out if you don't have the right genetic markers. BTW the endoscopy is a very straightforward, quick procedure. If done under sedation you remember nothing...
  25. Tallforagirl
    I second this. I'm four months into this, and still on a steep learning curve. I pretty soon got my head around the cooking side of things, because I found that most recipes are easy to adapt to gluten-free or already were naturally. I've managed to make a pretty good pizza base adapted from a mix, which is comforting, knowing I can have it when I want it...
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