Jump to content

Tallforagirl

Advanced Members
 View Profile  See their activity

  • Posts

    165

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Tallforagirl

  1. Tallforagirl
    sbj, I'm right with you.
  2. Tallforagirl
    This would probably be fructose intolerance, as apples and some other fruits are high in fructose. If you're worried, you can have a breath-test to diagnose it. Also, fruit can ferment in your stomach causing bloating, pain and wind, if you eat it last after your meal. Try eating it first, before your meal, so it has a chance to digest properly.
  3. Tallforagirl
    Actually, this is inaccurate. "Anti-Gliadin Antibodies: Both IgA and IgG anti-gliadin antibodies (AGA) are detected in sera of patients with gluten sensitive enteropathy (celiac disease). IgG anti-gliadin antibodies are more sensitive but are less specific markers for disease compared with IgA class antibodies. IgA anti-gliadin antibodies are less...
  4. Tallforagirl
    I would have the biopsy anyway, just to be sure there isn't anything else going on. Of course it is a choice, like any other medical procedure.
  5. Tallforagirl
    I think the key here is "if you are very sensitive". There are a very few celiacs who would be this sensitive (though I do not dispute that they are). Unless you are swallowing it, it is not going to gluten you. You do need to check any vitamin supplements and medication you take though. Check the label or ask you pharmacist. Most celiacs don't need to...
  6. Tallforagirl
    You're right, the Tissue transglutaminase IgA positivity is a very strong indicator of Celiac disease. Before you go gluten-free, or gluten-lite, ask for a duodenal biopsy (performed via endoscopy). This is a very straightforward, painless procedure, but is important to confirm diagnosis of celiac disease. I think what your doctor is trying to say is...
  7. Tallforagirl
    Certainly sounds like it could be. Surgery is a known "trigger" for celiac disease. Ask your doctor for a celiac blood test panel to test for antibodies related to celiac disease: anti-endomysium and anti-tissue transglutaminase. If the blood tests are positive, you'll need an endoscopy to take biopsys of the small intestine to confirm the diagnosis. Although...
  8. Tallforagirl
    This is correct. And with young children, blood tests can be even more unreliable.
  9. Tallforagirl
    I'm with sbj. Now is the time to get the biopsy, because later on, if complications arise and it's neccessary to biopsy, the child will have to do a gluten challenge. It is not a "garden hose", they use sedation so it's not painful and you don't remember a thing afterwards. Having said that, I can understand if it's going to take weeks to get an appointment...
  10. Tallforagirl
    Maybe you could try making light of it - each time you speak to her ask her about her bowels, and tell her about yours. At least you could try to get it out of the way before dinner. I'm really not sure what to suggest, but she does sound unreasonably angry for someone who's had celiac disease for five years, and had time to get used to it.
  11. Tallforagirl
    Her behaviour does sound insensitive and over-reactive. I agree with sbj that those who suffer with special conditions can't expect the world to stop just for them. I think she's banging her head on a brick wall trying to get non-celiacs to fully understand what she's been/going through. It sounds as if you, her family, have done as much as you can to...
  12. Tallforagirl
    This is a good source for information both about celiac disease and DH: Open Original Shared Link The Celiac Centre at Columbia is one of the world's most respected, and it's the one that Dr Peter Green is attached to. I just finished reading Dr Green's excellent book "Celiac Disease - a Hidden Epidemic," and he really stresses the importance of a full...
  13. Tallforagirl
    Try this: Open Original Shared Link The Celiac Centre at Columbia is one of the world's most respected, and it's the one that Dr Green is attached to. But you will find the same info in relation to need for biopsy prior to diagnosis, on any medical/professional website relating to celiac disease. In Dr Green's book, he says that if you think you have...
  14. Tallforagirl
    Totally agree, I was diagnosed in October having been with my BF for a year. It has taken him a while to understand what celiac disease is about, and accept all the rigmarole that goes along with it, especially as I was asymptomatic up til very recently (I have a sister with it which prompted me to get retested, after mixed test results in 2003). The way...
  15. Tallforagirl
    Get some perspective. The flour is not going to come crawling out of the pack and insinuate itself into your gluten-free flour bag. If you think the outside of the bag has gluten flour on it, brush it or carefully wipe it off... then wash your hands, in case it crawls up your arm into your mouth.
  16. Tallforagirl
    Have you had a blood test and/or biopsy? Has your daughter been confirmed via biopsy? You should really get a definitive diagnosis. I just finished reading Dr Peter Green's excellent book "Celiac Disease - a Hidden Epidemic," and he really stresses the importance of a full and proper diagnosis, as do all other professional sources of Celiac information...
  17. Tallforagirl

    ARCHIVED Oven?

    Tallforagirl replied to fran641's topic in Coping with Celiac Disease

    I wouldn't worry about the oven, as long as it is kept clean. The only problem I could see would be if you cooked something gluteny/crumbly (like a fruit crumble) at the same time as something gluten free with the fan-forced function on, and/or the gluten free item on the lower shelf. Which reminds me - I must clean my oven!
  18. Tallforagirl
    sbj, sounds like a plan you have there! I think I'm with you on this one. Where I live there are a number of local pizza joints that offer gluten free pizza. However, I have so far checked with two of them whether they cook the pizza in the same oven as the regular pizza, and both confirmed they do, and could not guarantee there would be no CC. It...
  19. Tallforagirl
    I'm recently diagnosed, and was only tested because my sister is Celiac (well, plus a case of what I thought was gastro). For those who are not sensitive in their reaction to gluten, how far do you go to protect yourself from ingesting it? Do you worry about things made on production lines that process gluten-containing foods? Do you only worry about...
  20. Tallforagirl
    I eat quinoa: you can cook quinoa with fruit juice so that it is sweet (ish). I use apple juice. 1 cup quinoa to two of juice. Bring to boil and simmer about 15 minutes then allow to cool. I keep a batch in the fridge, then eat for breakfast each day with a sprinke of gluten free muesli and yoghurt. Not too sweet, and very satisfying. Yum.
  21. Tallforagirl
    Thanks Minton, yep I think that might be the best thing. But sounds promising.
  22. Tallforagirl
    I love love love the pickled ginger that comes with Sushi/Sashimi. Can anyone tell me if it is okay for Celiacs? I had to eat something on the go today, and the Sashimi was not good without a flavouring. Soy sauce is not good, I know, but I was very tempted with the ginger, but didn't eat it because I wasn't sure.
  23. Tallforagirl
    I was out at a restuarant yesterday, and the waitress, who claimed to know all about Celiac disease, asked me "how much gluten free are you - point 4 or point 7?" I have not the faintest idea where she got the idea that gluten intolerance can be measured in percentage points. I ended up choosing a salad and garlic prawns, after confirming all ingredients...
  24. Tallforagirl
    Having said that about the toaster cleaning advice, I have put away my old toaster, and would not take that risk if sharing with a gluten-eater. I just think you do what you can, but you can only control so much. It's a balance between looking after your health as a Celiac, while maintaining a normal life as a person.
  25. Tallforagirl
    Personally I think you have to be realistic about these things. I only worry about the things I can realistically control such as crumbs of bread/flour or pasta contaminating my food. I live alone so there is no possibility of this at home. When I am eating out I use dscretion to decide whether I am likely to be safe - for example, although a local pizza...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.