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Tallforagirl

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Everything posted by Tallforagirl

  1. Tallforagirl
    It's my understanding that if you're gluten intolerant, it's more a question of symptoms, so wouldn't it follow that if a small crumb doesn't give you any symptoms, then you don't need to worry about consuming very small amounts? If you're Celiac, then you do have to worry about small amounts of CC, because of the autoimmune nature of the condition, which...
  2. Tallforagirl
    Do see your doctor before assuming it's a gluten problem, and/or going gluten free, as you should check out any other possiblities too, such as liver disease. Good luck.
  3. Tallforagirl
    Some people on here assert that using old utensils and pans etc especially wooden and teflon gives them a reaction, but I've never read "expert" advice saying you need to chuck all your pots and pans. The advice is that a good wash with soap and water will get the gluten off. I would see how you go, then decide. But a new toaster is a good idea, as it...
  4. Tallforagirl
    Hi Bill, I had very positive blood tests, and even a very positive bowel biopsy, and still wondered for a while if the diagnosis was correct, so I know where you are coming from. As others have said, the tTG and EMA are very accurate as far as diagnosis goes, especially given that your tTG was so high (according to the titers on my test, below 20 is...
  5. Tallforagirl
    Distilled grain alcohols are gluten free. So unless your traditional/homeopathic remedy is made from beer, you'll be alright. https://www.celiac.com/articles/11/1/Which-...safe/Page1.html "Grain alcohols are one of those controversial items, but recent ADA guidelines indicate that all 100% distilled spirits are safe, including Whiskey, bourbon and gin...
  6. Tallforagirl
    Thankyou, could not agree more. Some on this board seem to imply that accepting an endoscopy will rob them of their choice to try a gluten-free diet and see if it helps their symptoms. Of course this is not so. Another good reason to get diagnosed by both blood and biopsy would be in convincing family that, yes, you do have this disease, and that it...
  7. Tallforagirl
    I think this is an excellent comparison. I was just thinking this today. There's a government health ad here in Australia that says "every cigarette does you harm". We need to think in terms of "every crumb of gluten does you harm". And thanks sbj, for your support. There's all sorts on this board, but I know I do have some kindred spirits.
  8. Tallforagirl
    Hey, nice to see another Aussie on the board. One good thing, no-one here will know what a "sook" you are, because they won't know what it means! If you want a burger, have one, just don't have the bun (check the burger is 100% beef though). Check out this listing I downloaded from McDonalds, it lists the ingredients in each individual item, so you can...
  9. Tallforagirl
    How exactly is this meant to be helpful? Sometimes I feel as if this message board is just a "who has it worst" league table of symptoms. I'm also one of those diagnosed with celiac disease with little/no symptoms, and while I sympathise with the very sensitive Celiacs/gluten intolerant people, the issues faced by those of us who are not as sensitive can...
  10. Tallforagirl
    That's interesting, but doesn't in my opinion negate the need for endoscopy/biopsy where celiac disease is suspected. If I am reading this right, it is saying that antibodies appeared in 32 per cent of celiac adults on a gluten-free diet (not to mention 87 per cent of gluten-free celiac children). If this true, then it doesn't seem like the presence...
  11. Tallforagirl
    Doesn't neccessarily mean that either.
  12. Tallforagirl
    Just like to point out that this is incorrect. Any of these antibodies can appear in conditions other than celiac disease. In particular the antibodies to gluten are a particularly unreliable indicator of celiac disease.
  13. Tallforagirl
    Hi Cath, I'm in the same boat as you, I was diagnosed because celiac disease is in my family (sister has it). I had no obvious symptoms, so like you, I find it difficult to get my head around the idea that something is happening in my gut, when I can't feel it or see it. The thing that's so far kept me on the straight and narrow is the thought of getting...
  14. Tallforagirl
    I can confirm that if you have DH confirmed by skin biopsy, then you don't need a small-intestinal biopsy to confirm that you have celiac disease. You definitely have it. The DH is one way that celiac disease manifests itself, but as with most symptoms of celiac disease, it's not present in all of us. You just got lucky I've had a couple of different...
  15. Tallforagirl
    I remembered where I was and why I was there, but didn't remember being driven home (that's why they ask that you have someone take you home, and won't let you ride home alone in a taxi). I don't remember anything about it now, except the throat spray, injection of sedative and the mouth guard going in.
  16. Tallforagirl
    This article https://www.celiac.com/articles/21682/1/Mor...ease/Page1.html gives a good idea of what follow-up should occur and why it's neccessary.
  17. Tallforagirl
    Brizzo, I'm with you on this one, however, I think what happens with some celiacs is that they also have a wheat allergy, which may mean lotions, shampoos etc with wheat protein irritate the skin. For the rest of us, I would say if it's not causing a topical reaction, you don't need to stress (unless you think you'll swallow it). Obviously if your shampoo...
  18. Tallforagirl
    Note that gluten can't be absorbed through the skin, so don't stress about the shampoo, lotion etc, unless you think you'll ingest it. Open Original Shared Link
  19. Tallforagirl
    I'm interested what you mean by this. How does she know she has no issues? What made her decide to give the wheat a try if she's Celiac?
  20. Tallforagirl
    I think this is reasonable. As I've said all along, an endoscopy and biopsy is important to rule out other things. I'm aware that a biopsy can be negative in the early stages of celiac, it happened to me. If I'd known better at the time, I'd have asked for a second opinion on the biopsy slides and on the diagnosis itself. At the end of the day having...
  21. Tallforagirl
    This adds weight to my theory that some have wheat/gluten allergy alongside celiac disease: Open Original Shared Link
  22. Tallforagirl
    I would say that it's not a case of having a more or less severe AI reaction, I think it's differences in how your body's nervous system reacts to the AI process being initiated. I'm personally of the view (based on the advice of a specialist celiac dietician) that the severity of your symptoms is not related to the level of gut damage and that being highly...
  23. Tallforagirl
    I think sbj and I both have, and would therefore like to present, an alternative viewpoint to that of the majority on this forum, so that those coming to read these posts in the future can see that there is more than one point-of-view. I don't think disagreeing is the same thing as degrading.
  24. Tallforagirl
    Here's my theory, and this is my personal opinion only, not from any official source, but what I think is that some celiacs on top of the celiac disease have an actual gluten/wheat allergy. This means that they react in an allergic manner to gluten, as well as getting the immune response. Most of us celiacs aren't that sensitive, and would be unlikely...
  25. Tallforagirl
    Obviously there is a lot of debate about the accuracy of the blood tests. I think the point is, that it is a choice whether or not to biopsy, but personally (and with the medical community with me on this) I think it's best to do it, both as confirmation of diagnosis and for peace of mind to know that nothing else is going on or that it's not something...
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