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curiousgeorge

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Everything posted by curiousgeorge

  1. curiousgeorge
    My older son was 43 lbs at 2.5 My 5.5 year old is 35 lbs. I see HUGE differences in them and I worry a lot. My oldest is small now as a teenager but was a huge little kid. My little guy, is down right microscopic. I worry about him even making it to 5 feet as an adult.
  2. curiousgeorge
    Toronto! I are really annoyed about ontario not covering celiac testing. I think its just criminal. If any of you have a good celiac friendly doc in Toronto (GI) please PM me.
  3. curiousgeorge
    Egads, she needs to follow up on the thryoid stuff. Its not something that should just be followed. I'm sure she feels HORRID.
  4. curiousgeorge
    IMHO its a waste of $. Even if you were to have a positive, if you took it to your doc, they would still want to run the full panel. Its not a celiac test, its a cursory screen. Nobody is going to dx you as celiac based on it.
  5. curiousgeorge
    I sent you a PM. Those are not celaic tests by any stretch. I really hope you didn't pay for them
  6. curiousgeorge
    I had a whack of stuff done when I had it. I stopped counting at 16 viles. celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment. What did they do for her thyroid?
  7. curiousgeorge
    I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.
  8. curiousgeorge
    It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.
  9. curiousgeorge
    OH geeze, I'm just seeing this thread now. WOW. I ate everything as a kid but was REALLY good at keeping it a secret. I quite literally ate story books. I'd rip bits of paper out of them and chew on it like gum. I ate the paint of my tricycle by scraping at it with my teeth (loads ofl ead in that I'm sure). I also used to eat/drink mucilage glue...
  10. curiousgeorge
    My friend and I see the same doc and she had very similar bloodwork. He said she was def gluten intolerant with numbers like that. She has been gluten-free since the beginning of the year and says she feels way better.
  11. curiousgeorge
    Different labs have different ranges and not just for this, for lots of tests. Why? That I can not answer. Even your 18 with a range of 20 is highly suspicious but if your range is 10 and you have a 14 that is a positive. TTG is the autoimmune component and means that your body is doing damnage to itself. TTG is 95% specific as well.
  12. curiousgeorge
    You need to get the lab ranges to know where you stand on it. My doc did the antigliadin (igA and IgG) and the TTG blood work and my antigliadin IgA came back at 17 with a range of 20. He said he would consider that positive in and of itself because it was so high (the other two way over the range, 59 and 74 respectively, so it wasn't an issue). My thoughts...
  13. curiousgeorge
    It should be about 80 but yeah, I don't think that is low enough for you to feel horrid. I'm going to PM you.
  14. curiousgeorge
    I would say not but I'm no where near an expert. Did you have any bloodwork and were you consuming gluten at the time?
  15. curiousgeorge
    I am also in canada and I only waited two weeks for endoscopy as well. It was shockingly fast. I was. however, told that I would have to pay for genetic testing if I were to have that done, which I have not.
  16. curiousgeorge
    I went to my family doc a year ago in jan. I told him I was exhausted and felt HORRID and was sleeping every afternoon for 2 hours. He did thryoid tests and said I can't give you more thryoid drugs your ferritin is low but otherwise your fine then offered me antideprssants. I could not believe that this doc who I had this long relationship with didn't...
  17. curiousgeorge
    Yippie! I'm glad you got the ferritin test. I'm going to bet its low. I know I can feel it when its low. Keep me posted
  18. curiousgeorge
    Pearly, yes that is exactly what the twins bumps looked like. They kept passing it back and forth between each other and went to the dermo and had them treated. They mostly had it on their faces and upper chest. I suppose location is also part of the key? Mine defintaly have a clear fluid in them and are popable (gross I know). It sounds like maybe...
  19. curiousgeorge
    My thryroid was SO messed up after my oldest was born, when I went to the endorchronologist when he was 4 months old, she asked me who's baby it was. She said it was a miracle that I even got pregnant with the numbers I had and that I had been messed up for years with the size of my thyroid. I took synthroid for 12 years. Its as good as useless as far...
  20. curiousgeorge
    My almost constant headaches went away after about three weeks on the gluten-free diet. I get a wonker of a headache now if I get glutened. I was glutened at xmas and had the worst headache I've had in my life.
  21. curiousgeorge
    Intersting. My friends twins had moluscum and their bumps were smaller than what I get and not really inflammed or blistered. They were more on the surface vs errupting from below, if that makes sense. It sounds like your DD likely has DH esp if gluten-free makes it better.
  22. curiousgeorge
    Are you taking snythroid or are you taking dessicated? I always thought ferritin was a pretty basic test. I mean sheesh, your ultimately paying for the test right? I know what you mean about them taking a blind stab at things. My old doc was really good at it. Scary thing is he was a prof at the medical school. He did test my ferritin but assumed...
  23. curiousgeorge
    You need to get your ferritin tested but you already know that. My ferritin has been chronically low (4 to 6 range). I have taken iron supps for the last 5 years pretty much all the time and it does very little to change my levels. The most its been is 20 which was the most recent, preinjection level . I ended up having iron injections because doc said...
  24. curiousgeorge
    You know, I had it in my hair and I always thought it was acne. I had it back at 12 years old. I'd scratch and pick at it. I even remember my friends mother looking at my head and asking why the heck my head was scabby. I never made the connection until relatively recently. On the upside, I told my doc that I really wanted/needed a firm dx. I asked...
  25. curiousgeorge
    IMHO you should have the bone density test, esp with the broken bones. You might save yourself a lot of grief in later life and best case senario is you find out its fine. Even with that, you'll have a baseline of your bone density for when your older.
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