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Anna and Marie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Anna and Marie

  1. Anna and Marie
    I also experience blurred vision and speech too long w/ out calorie intake. The speech thing- this is kinda different but my tongue swells and lips don't move very well, been told it could be a thyroid issue(hypothyroidism)but that hasn't been confirmed by a doctor yet. Does anyone have a history w/ thyroid issues?
  2. Anna and Marie
    5 years now, not glutened in over 8 months, so maybe its because of something else? lupus is one suspect, but that is very hard to diagnose even if the doctor thinks that is whats going on. there were hormone replacement meds a couple of years ago that led to periods of memory loss(side effect). That could be it too. I guess its not part of celiac. I've looked...
  3. Anna and Marie
    Hey everyone I'm wondering if there is anyone else whose emotions are undefined. Sometimes I feel a range of emotions and am constantly happy but mostly, due to the fog I think, there is nothing else. I know when some emotions are expected and I try to express them but am a horrible faker. Then there is dating, could that be any less murky? So, does anyone...
  4. Anna and Marie
    Where did silversail go??! I think we frightened her/him! FMcGee, THANK YOU! Here I was, ready to vent, telling silversail that it was an "intolerance" not and "allergy." Oh, I really don't like that post. Sounded terrible! Gotta go to class, but thanks! Anna
  5. Anna and Marie
    hi CGally81! My blood tests came back negative too and so did the ANA test. I've been tested three times for it but they always come back negative because I have been on a gluten free diet for about five years. The ANA one threw me off 'cause I supposedly have Lupus, another autoimmune disease, but the ANA test came back negative! How is that?? If I...
  6. Anna and Marie
    hello DIVa, I am right there with you. It is terrible to be glutened by your medication, been there and done that -several times Doc's told me it was gluten free, and low and behold, they weren't. Typical uh? nothing against doctors but it's been frustrating trying to find doctors who know this disease and what it entails. Anyway, hope the fog dissipates...
  7. Anna and Marie
    hey Sarah, I'm a little late to your post, sorry!, but I'm a college freshmen in KY. Not that you'll know where that is Any way, feel free to email me at acmiha01@louisville.edu any time. How long have you had it? I've known for about 5 years now - trust me, it gets easier Anna
  8. Anna and Marie
    Hello Shess0816! This is an true OMG moment! So, for four years, all of high school, I lost all artistic ability too! I couldn't imagine for 8-9 years though, that must have been terrible. I couldn't even doodle, and who can't doodle?! Anyway, I am super excited because about a month ago, it all came back and it makes me sooooo deliriously happy...
  9. Anna and Marie
    Hey Beloved! I don't know if anyone has mentioned it, and I know all of these autoimmune things mimic each other just to make it harder to diagnose!, but could it be Lupus? I know FM and Lupus tend to piggy back each other. I don't know if this helps but I have random, and I mean random, swelling in my legs and ankles from Lupus and Lupus related kidney...
  10. Anna and Marie
    I need so much more! For some of us who have very low immunity, it takes a lot. Like ten hours on a good day. Anna
  11. Anna and Marie
    I am so with you!!! I never knew this section even exhisted! I didn't know that so many of us had this problem... ~Anna
  12. Anna and Marie
    we went to 2 stores today, one had gluten-free cinnamon, the other store had gluten-free chocolate, hope they get to you soon! haven't tried them yet b/c the stores we were at prices ran higher than usual...
  13. Anna and Marie
    interesting, my sister and i have experienced gluten symptoms with too many grains as well, we thought maybe because we haven't had them in so long, at least in any large quantity...
  14. Anna and Marie
    I have a terrible time breathing too! It feels as if I'm running against a brick wall! The air never seems to reach my lungs and I see spots and get really dizzy. I have noticed a difference with the dairy free diet. Maybe you hvae a tree nut/peanut allergy? Too much potassium? I know its a lot to cut out and it's ridiculously hard to get calories, but...
  15. Anna and Marie
    Hey! The pain that I have with celiac reactions is kind of like I'm loose-jointed, watery almost. The pain shoots around, behind, and beside my knees, it's mind blowing. I hate running with reactions because my legs feel as if they're leaving me behind, I feel so heavy but thats probably the edema I have with reactions. But yes, I have that problem...
  16. Anna and Marie
    Hey Peach Blossom! I've had severely dry lips with and without gluten so that's a toss up. The acne though, I understand. I'm only 18 but I've never had a problem until I got kidney infections then it was just the infection sthat came out as acne, perhaps thats the problem? I mean it could be any infection.... Any way, I'm waiting for a full auto-immune...
  17. Anna and Marie
    Hi Sasha! My grandfather was Croatian and he could speak the language. I don't really remember any of it though. Dobry den můj př
  18. Anna and Marie
    I totally agree with you there. I HATE family functions because it doesn't matter how many times I have explained it for the past four years, they still ask. Repeatedly ask. ~Anna
  19. Anna and Marie
    Hey! It looks like an intolerance to me though I have the stomach issue. I hope everything works out and pray that your parents will come around soon. I'm 18 and it took my parents four years to fuly adjust, I hope yours understand the effcts of the intolerance if that is what you have. The joint pain and such are the same symptoms I had so you sound to...
  20. Anna and Marie
    Hi Mandy! I too am sorry to hear of your conditon. Perhaps you have another chronic illness that has gone unnoticed? It could be Crohn's if you are still getting sick. Or the lactase pills, I don't think any of them are gluten free. I hope your situation gets better and pray for the best! ~Anna
  21. Anna and Marie
    Hi, perhaps you have crohns or lupus too? I have Celiac and Crohns and a host of food allergies. I have been sick for four years, really bad that is, and I thought it was just Celiac but then everything else came along. Maybe you can do an allergy test to see if there is anything else? Hope everything works out, ~Anna
  22. Anna and Marie
    Hey there! Sounds like all of our doctors are fools. I was sent to a metabolic specialist after the family doctor ran blood tests and the specialists just ran MORE blood tests. He didn't do Celiac though. I think he wanted it to be IBS, I dunno. After the blood tests were sent off he told me to come back in 6 MONTHS to try more testing. That was the...
  23. Anna and Marie
    wow, i can't believe other people have this! my twin and I get the brain fog and the memory loss...so we didn't realize our diets were not totally gluten free and the past 3 1/2 years is like a big gray area. a few things, like faces we remember but conversations...please. We feel bad in that our closest friends thought we were space cadets and they repeated...
  24. Anna and Marie
    It is when your detoxing, I've been like this for six months but it'll get better. I had to stop running for awhile because I was so drained. it hurt to walk up three steps, let alone run a couple miles. I'd advise you to keep going or you'll just have to go through it all again. That would be incredibly painful ~Anna
  25. Anna and Marie
    Never mind the bakers chocolate, it has soy in it. Now we eat Enjoy Life chocolate and it is sooo much better.
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