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spinsterwitch

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by spinsterwitch

  1. spinsterwitch
    I believe I just had a problem with their garlic powder. It's the only ingredient that wasn't a whole food and it was the first time I'd used this new jar. I'm going to be giving this away.
  2. spinsterwitch
    I'm going to post this here instead of starting a new posting because I have a spice issue that I didn't expect. I had been doing the Live Below the Line challenge, so everything I've been eating (what little there was), was homemade of ingredients I felt sure of. Then on Thursday I woke up just feeling sick. I thought it was that I wasn't eating enough...
  3. spinsterwitch
    Sadly, once you've gone off gluten, it is not a good idea to go back on even for a test. But there are benefits and drawbacks to the diagnosis. The drawback: a diagnosis, any diagnosis, is considered a pre-existing condition by insurance companies, and if the health care bill is ever repealed or gutted, that's the first protection that will fly out the...
  4. spinsterwitch
    Since I've figured out I'm gluten intolerant, I've also been able to track my hypoglycemia to times when I get glutened. When I am not having symptoms of being glutened, then I don't seem to have the problems with low blood sugar so much (unless, of course, I don't eat for a really long time). Maybe you do need to pay attention to the complete, highly packed...
  5. spinsterwitch
    P.S. Always plan for longer in grocery shopping and bring a small magnifying glass (I have one I got for free that's actually plastic). Manufacturers are required to list wheat, but you are right that they don't list the other things and it is always good to read the label.
  6. spinsterwitch
    I'm so glad you stopped in for the support. I don't post or read very often, but my co-workers were toasting bread and I needed some moral support, even though my brain knows that eating regular bread will make me nauseous within a very short time and uncomfortable in the longer term. I am really sensitive and react very quickly to gluten...that has been...
  7. spinsterwitch
    Having some of my symptoms come back recently (and not knowing the cause) reminds me of all the things that I appreciate when I'm not glutened - energy - I didn't lose weight, but I did lose size - no more burps, farts, & heartburn - my libido returned (I hadn't realized how much it had cranked down) - ability to concentrate and care about responsibilities...
  8. spinsterwitch
    I forgot to add that I had a wonderful time in New Orleans. I was sad at the dietary restrictions, but by asking the right questions and not being shy about sending things back when I needed to, I did pretty well there. I've really only noticed feeling sick since returning from the trip. Peace, Spins
  9. spinsterwitch
    Update: I contacted my mail order folks and was shocked to find out that they could not tell me if there was gluten in any of the drugs (nor did they say that they had made an attempt to find out). I was given a list of phone numbers for the different pharmiceutical companies to check out and sent on my way. This was particularly scary to me because another...
  10. spinsterwitch
    It is always a challenge, but here's a response I've come up with to help my "internal doubting Thomas" remember why I'm doing this. Do you remember the novel "Flowers in the Attic?" In it the evil grandmother brought the children being held prisoner a wonderful "treat" : powdered sugar donuts. This "treat" became a regular and all the children started...
  11. spinsterwitch
    I have serious moments of grieving and craving gluten foods. I never thought it would be that bad when I started cutting it out...then one day reading a description in a novel about fresh baked bread, I almost started crying. I fantasize about having Bakesale Betty's Cinnamon Rolls (I'd affectionately nicknamed them Crack) most of the time. But I am supremely...
  12. spinsterwitch
    Your going to have to weigh the benefits against the consequences. One thing you might try is seeing if you can wear a mask at work. This might not be possible if you are in a customer service position, but if you are in the bakery they would probably be open to it.
  13. spinsterwitch
    I cannot imagine how triggering having to be on a gluten free diet is for people dealing with anorexia. My hope is that those of you who are dealing with this are working with mental health professionals. The only way to have a healthy body is to be able to work on loving your body (which means working on loving it even when its bloated). Peace!
  14. spinsterwitch
    I was doing really well...even got through a trip to New Orleans (had to send food back a couple of times when my being allergic to wheat and flour got interpreted only as I couldn't eat wheat bread!) without too much hassle. But since the trip, I've noticed a recurrance of symptoms. I'm wondering if I was starting to have symptoms on the trip as well...
  15. spinsterwitch
    Hello Unhappy Coeliac: What you are experiencing is peripheral neuropathy. It is common in Celiac (or coeliac) Disease. In fact, when I get gluten it recurs and I know that the gluten has worked its way out of my system when it goes away. Mine showed up at night when I was sleeping...in both arms and would sometimes linger for hours after I woke....
  16. spinsterwitch
    Rachel: Here's the deal. The bingeing you are experiencing can be a completely normal response to 1) your body not getting enough nutrients and wanting more, more, more food, and 2) the sense of deprivation that comes when we are denied something. I'm making a guess here, but I wonder if you have been dieting for a while. If you feel like your bingeing...
  17. spinsterwitch
    It's just like having an induced nap. I don't remember anything from the endoscopy I had done...I do remember a bit from the colonoscopy, but I really didn't care at the time and just went back to sleep. When I woke up in recovery, I was a bit groggy but aware of where I was.
  18. spinsterwitch
    Your dillemma is actually pretty normal. I think there are plenty of people who get really sick immediately, and that is enough of a deterant. But if you are less sensitive or your symptoms are not as strong like mine, then it can be really difficult. I work with dialysis patients. Their diets (and fluids) are seriously restricted. It's not just one...
  19. spinsterwitch
    So I'm going to be tested for celiac because cutting out gluten improved my gut symptoms (and other symptoms). Then I came to my parent's house for the holidays...I have a pretty severe cold (coughing, sore throat, etc) and am taking medications for all of that. I also started a challenge in order to make sure that if I have celiac that adequate antibodies...
  20. spinsterwitch
    A lot of the symptoms sound like migraine...my migraines really flaired during the last year (before I stopped the gluten), so it's worth checking out the vitamins. Unfortunately, MDs can be entirely overloaded. It's frustrating and I don't mean to make any excuses for a doc that doesn't follow-up, but I usually do make an appointment as well when I really...
  21. spinsterwitch
    Once you are diagnosed with Celiac, then yes they would need to provide you with a strict diet. It is a serious medical condition and the elimination of gluten is currently the only treatment. I work for a dialysis center, and I know that they have to provide dialysis and appropriate dialysis medications to their inmates. As for the hospital, the same...
  22. spinsterwitch
    Yes, almost the exact same symptoms...and you start to see how sensitive you really are when it happens. The internet is your friend. Whole Foods and Trader Joe's have gluten-free shopping lists. You can download them, or ask the nice store manager. Walgreens has a gluten-free list of the medications they sell. Seriously, consult this before taking...
  23. spinsterwitch
    Wow! No gluten, dairy or soy. That's a challenge. Here are some thoughts: hummus (you can make it at home if you have a good food processor and that way control the amount of garlic - since sometimes kids don't like that as much). It's a great dip/spread to use with crackers. As for crackers, Mary's Gone Crackers are awesome and not messy. Get some...
  24. spinsterwitch
    Thanks, ya'll. This board is very helpful. I actually think that my sickness today might have been both the sushi from last night and the TJ Organic Mayo (which isn't on their gluten free list). If that's the case, I was feeling it like 10 minutes after I ate it. I live in the Bay Area, so I feel a bit lucky. We have a great gluten-free bakery really...
  25. spinsterwitch
    I suppose it doesn't help that I have a cold. I've been doing the gluten-free diet for about a month, and I am planning to convince my doctor to go forward with testing. The past couple of weeks, I've gotten glutened 3-4 times. Today, I realized that it had happened again. I'm pretty sure that I know what it was (which is sad because I really...
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