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rubyred

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rubyred

  1. rubyred
    I was excessively hungry for several months before going gluten-free. It got progressively worse..and I was always craving cereal and wheat-y foods. It was pretty miserable because every time I ate, I'd feel so full, bloated, gassy, and just total discomfort but my stomach would be empty within an hour of eating and I'd feel like I needed the food. Vicious...
  2. rubyred
    I have almost all of the same issues as you! I'm gluten, soy, and dairy intolerant and have recently stopped eating almonds, walnuts, and pistachios due to GI symptoms. It basically feels like I've been glutened when I eat these nuts now, which for me is stomach rumbling, tummy discomfort, D, and bloating, and GAS..ugh. I'm so disappointed because I relied...
  3. rubyred
    Gfresh- I can definitely relate to you. When I was my sickest and couldn't keep anything in my stomach (D after everything I ate), I ate very little to be able to get through the day without incident.........and consequently, I had major insomnia. I've never had sleep problems before and I take no medications. I used to have no problem falling alseep,...
  4. rubyred
    Do any of you experience abdominal pain if you don't take probiotics for a few days in a row? I went away last week and forgot my probiotics. I didn't take them for about a week. The last 3 or 4 days of that week, I started feeling a gnawing pain in my lower left abdomen. Also, I felt bloated. It wasn't a stabbing pain really, but it hurt enough to...
  5. rubyred
    A few hinters about eating gluten-free- -start out simple. Think fresh fruit, veggies, eggs, plain meat (you can season with salt and pepper or mix in with veggies, etc. Just try to avoid sauces at this time until you get a hang of it), plain fish, nuts, rice, potatoes, corn, rice cakes, beans, plain popcorn -I might avoid a lot of the processed "gluten...
  6. rubyred
    Hi there! Wow, that is kinda weird that your doc looked at your results and came to that conclusion. I'm all for people listening to their body and doing what they think is right for them....but as far as I can tell, your blood work looks negative. That being said, I had negative blood work too. I also had a negative biopsy (well there was damage and inflammation...
  7. rubyred
    FWIW, I used Enterolab and tested positive for malabsorption too. But, I was told by 2 doctors that I don't have celiac, even though my endoscopy showed mild blunting of villi. I think soy was causing the villi blunting?? Leaky gut?? I really don't know, never got any real answers. I also had gastritis and my stomach lining was atrophied. I've been gluten...
  8. rubyred
    I did have blood work, but only the Ttg, which was 8 (0-19 normal range). I believe I had the celiac panel a year earlier, which came back negative as well but I don't have those results. That was before I was my sickest though. The second doctor looked at the biopsy reports and said it was most likely celiac b/c nothing else would cause that damage (my...
  9. rubyred
    I apologize if this sounds whiny. Ugh, I'm so frustrated...I was doing so well for almost a year! I went gluten free in Aug of last year and dairy and soy very light. I had even started introducing some cheese and yogurt and seemed to be tolerating that well. I should say, I'm not diagnosed with celiac. My endoscopy showed mild blunting of my villi, which...
  10. rubyred
    Wow, so many people here react to so many foods! I have intolerances to: gluten soy - I believe this caused my blunted villi, so not sure if this would make it an allergy or not. dairy dates and trying to figure out if I have an intolerance to legumes? I react (GI symptoms) to peanut butter and hummus (in addition to soy) and someone just mentioned...
  11. rubyred
    Thank you sooo much FarmCat and TFA............and sorry for taking over your thread Blondie. You guys have given me a lot to think about and really helped me see other possibilities that I was not considering. I now see the connection and am going to look into legume family intolerance. Also, I will look into fructose intolerance. Ugh, this is hard...
  12. rubyred
    Thanks. I did try googling but couldn't find anything about their seasoning/spices. I'm surprised they didn't respond...they seem to be good about food issues/allergies, but then again, I've never emailed them. I would just buy something else, but problem is, I already bought it! ugh..I thought it was McCormick's haha. ooops!
  13. rubyred
    Safeway is usually good about listing what products are gluten-free. But for some reason, I can't find out if their All Purpose Seasoning (salt free) is gluten-free. Does anyone know? Thanks!
  14. rubyred
    I feel your pain..I've been having some similar problems and I can't seem to figure out the link. It might be too much fat, or too many carbs?? I just don't know. I get excessive (and different than usual) gas and sometimes stomach pain when I eat peanut butter, dates, and now hummus, in addition to gluten, soy, and dairy. I don't know the connection...
  15. rubyred
    I don't react to nuts, although I hugely react to peanut butter. Peanuts alone do not cause reactions but whenever I eat peanut butter, I have the same GI reactions as when I eat dates. Do you have any idea what in the peanut butter I could be reacting to? It must be the oil(s) in it. Peanut butter doesn't have soy, right? It could be the sugar content...
  16. rubyred
    So after going gluten-free, I have obviously become very aware of what goes into my mouth. I react to soy and lactose too, so I try to avoid foods with those things as well. A few months ago, I used to eat a lot of Larabars without problem. Then all of a sudden, I began noticing that the bars were causing me lots of gas and stomach distress. So, I found...
  17. rubyred
    My endoscopy showed mild blunting of my villi - yet 2 different doctors who viewed the biopsies said I don't have celiac. So, something besides gluten was causing the blunting...... I'm thinking it was soy because I haven't eaten dairy in awhile and whenever I eat soy, I get major GI symptoms. I think because of this, it caused me to react to gluten in...
  18. rubyred
    So it's been awhile, but I saw Dr. Fasano in late Feb and was able to send him my EGD slides in March so that he could review them. When I first saw him, he read over my records and said that he felt it was most likely Celiac but he couldn't officially diagnose without seeing the slides. He sounded pretty sure; I asked him if it wasn't celiac, then what...
  19. rubyred
    For me it's usually at least 2 days, sometimes up to 4 or 5 depending on how much I eat. Usually, I only get glutened from CC issues so it mostly only lasts a couple days. For me, the worst is the horrible gas and D. Sometimes the gas happens within a couple hours but sometimes it doesn't show up until the next day. Then every time I eat anything, my...
  20. rubyred
    That's exactly what I had thought/hoped would happen - after going gluten-free, my hunger and thirst would go away or decrease at least....and they have a bit. Or I should say, at least my hunger did subside for awhile but just recently I never feel like I'm full. And I used to be able to go at least 4, 5, 6 hours without eating, but now it's like if I...
  21. rubyred
    Thanks for your responses! I forgot to add that I am between jobs and don't have insurance at the moment...hopefully by mid June I'll have insurance again. Also, I feel like a hypochondriac sometimes...my old PCP who thought I might have PCOS doesn't even believe that I should be eating gluten free. Even with all of my symptom improvements (including the...
  22. rubyred
    So I should start with the fact that I haven't been diagnosed (yet) with celiac. My biopsies from last year are being looked at by another, more knowledgeable GI doctor and he hasn't gotten back to me yet. From the endoscopy report, he said it's most likely celiac. Anyway, despite not having an official diagnosis, I went gluten-free last year and pretty much...
  23. rubyred

    Happy birthday and may God bless you today!

  24. rubyred
    I'm sorry you're going through this. I had a similar (kinda) experience with one of my GI docs. She thought I had Chrohn's, but 2 weeks later for my follow up, she was like, "well you don't have Crohn's. Do you have a boyfriend?" I was like, excuse me??? She totally just dismissed all of my stomach problems as stress/depression. I was sooo frustrated...
  25. rubyred
    My most noticeable symptom that completely disappeared was my constant gas. It was becoming a HUGE problem and was keeping me from many social situations. Also, my stomach would immediately start making rumbling/gurgling noises after eating, as if it just wasn't being digested properly. The gas stopped within 2 days...it was that quick. It came back here...
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