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chasbari

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Everything posted by chasbari

  1. Not sure. I do know that I cannot count on being able to schedule to rigidly as I have to respond to how my body is doing that particular day. I overdid the physical work yesterday and today was supposed to be a workout day. I will see how things are later on. I have to be careful with any exercise within two hours of eating with the whole leaky gut as it...
  2. Once I went gluten free I started to feel not worse. When I went very strict paleo I began to feel better. I was crazy hungry at first and, in fact, am going through a patch where I can't get enough to eat regardless. I know that I began to feel everything in my gut once I began gluten-free including raging hunger. It had been about ten years since I had...
  3. Oooh..sequins... I'll have to work on the big hair though. Now that I am gluten-free my stand up straight straw mop has calmed down and is all silky smooth and flat....
  4. I really suspected that was your take as I have noticed you are extremely perceptive and I would have also made that assumption based on his treatment of me had I read it not knowing who I was. As I replay the incident I also recall that he was being very aggressive in pointing his finger right in my face. I really had to restrain myself as I was ready to...
  5. But it isn't a bad place to begin an anecdotal inquiry as a point of departure for future study. I am dealing with this issue with my FIL at present and suspect he might be dealing with this very complication. CS
  6. Your skin reaction to cold sounds like it might be Reynuad's Syndrome which is autoimmune. Same with the joint pain. My RA and other autoimmune diseases were diagnosed 5 years before they finally made the correct diagnosis of celiac. I have had terrible dental health with many root canals and lost my first tooth to being pulled shortly before getting on the...
  7. Thanks to all of you for your observations and links. I just re-read the article on RA and celiac. I have been thinking through what happened yesterday and why I was so down about it. A common theme with most everyone I read about in their journey to diagnosis seems to involve the element of incredulity on the part of one or many physicians. This was certainly...
  8. Wait...when did I have a sex change operation? I am a bass-baritone.... But I am still patient! The more I think about it the more I am surprised I stayed. I wanted to be able to have a dialogue and he was unwilling to hear me. He kept citing that "studies show.." How many studies and which ones and how many have been done on the exclusive dietary...
  9. Tuesday March 10th, 2009 Just returned from my appointment with my rheumatologist. I am not sure where to start or how to best sum up my disappointment in how this all went today. When I last saw him on January 9th I had not begun the paleo diet and was having a reaction to some foods that were supposedly safe for my celiac. I had also not gotten my formal...
  10. I think so as well. If the corticosteroids are bad for you the anabolics will be even worse. I used to have to talk young trainees out of trying to take the easy way out because the side effects of them were so bad. Hard to reason with seemingly indestructible youth at times, especially when they see a friend get all the apparent results with the same or...
  11. Uh, yeah, that's an understatement having just finished my first road trip since being diagnosed. Flew down to Florida to bring a car back home and nothing worked out as planned. I stopped at a place at the airport to ask if they grilled their bread on the same area as the meat as I was starved and hoping to get something besides the fruit I already had with...
  12. I notice that a lot of the foods you mentioned have soy, soy lecithin, high fructose corn syrup and salt. These all might be causing problems while you heal. Good for starting to take small steps again. I was used to my wife doing all the food prep and sometimes I get so discouraged that I am having to fix almost everything I eat after 23 plus years of being...
  13. LOL... Good answer. Personally, a number of years ago before my diagnosis, my ENT took me off all forms of steroids that my GP had been treating my respiratory ailments with as he said it was screwing up my immune system big time. Turns out he was pretty much right on as I continued to deteriorate with rheumatoid arthritis and other autoimmune problems. He...
  14. I thought I was being extra careful about adding new things. When I searched the forum after I ate it and was having my troubles I discovered that others also experienced problems. I thought for sure I was going to get someone posting about my "pronunciation" of it in the title but it was as much a tribute to everyone's glazed looks when I would say "keen...
  15. Well, the title sums it up. I have been having a great two or three weeks. Have been strict with my diet. tried some Cassava chips the other day... didn't like them and reacted poorly to the salt but nothing too terrible. Thought I would try some prewashed quinoa with my fish and steamed veggies and fresh fruit for dinner. Cramps, blurred vision, extreme...
  16. This is a very good point that I am mentally filing away for that day when I am all healed up. I used to be able to eat anything in spite of all my difficulties and once this is all better I have to remember what the suffering was like so I don't go back. I hope I am of the mindset that my new way of eating is bringing me such good health that I will chose...
  17. Well, that's kind of cool in a weird sort of way. Until I went gluten-free I was never aware of it...of course I was also not as obsessed with poo-poo and pee pee either.. Help, I am regressing as we speak... I just typed poo-poo and pee-pee. Anyway, thanks for the info. Chuck
  18. As a relative newcomer here and newly diagnosed I know I have been going through all the spasms of emotion when it comes to food prep... feels like I am going through a food divorce with my wife and children sometimes. Reading some things here almost made me paranoid about CC. I have had more trouble with soy and corn than with CC issues. I have my own little...
  19. I notice it most with asparagus. really changes the smell of it as well. CS
  20. I agree. I have been strict paleo for nearly two months now and the two times I added salty food were miserable for my arthritis the next day. There wasn't really any accompanying D so much as the hands and feet were pretty bad compared to how good they have been. My last episode was Sunday when I tried to add a little treat to my diet with some Cassava,...
  21. While everyone's circumstances are a bit different, I will relate my experiences thus far after being newly diagnosed in February. I had been struggling with what my rheumatologist was certain was primary rheumatoid arthritis for the last 5-6 years (Symptoms of flares and muscle weakness for at least 20 years prior!) By this past November I could barely...
  22. Various signs for most of my life including Gastro problems back in high school. Spent three decades running the gamut of tests for everything else. Finally thought we had the answer with a diagnosis of rheumatoid arthritis 5 years ago. Wife finally put the pieces of the puzzle together this past November and I got my formal diagnosis this February at age...
  23. Hello to Michelann, Mimzy and Janice Kelleher, I am in the North Canton area. Just an FYI, we have a Raisin Rack that has a gluten free section. It's easily accessed from 77 south if you are at all interested. Take the Everhard Road exit. Turn left at Everhard (you will be staring at Westfield/Belden Village Mall) follow Everhard to Main Street and take...
  24. Well, that is something I don't want to encourage anymore! I think I will just stick to some basic D3, calcium and magnesium supplementation for the time being and see if that doesn't help. Even though my iron numbers aren't of concern I have found that spinach the last few days has made things much better. I don't feel as strong as Popeye though..maybe it...
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