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chasbari

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Everything posted by chasbari

  1. chasbari
    Omigosh, I just wrote a book over there and submitted it. Interesting to see what becomes of it and how they treat the story overall. CS
  2. chasbari
    I have gone grain free since January and have found that it makes gluten-free compliance so much easier. I pretty much stick with the antiinflammatory recommendations of the Paleo diet to help lessen my rheumatoid arthritis and it has worked quite nicely. I, too, tried rice and alternative grains initially and only felt less worse. When going grain free and...
  3. chasbari
    My family thinks I am a bit loco because I see symptoms of this everywhere now. I. too, have become an activist of sorts and take any chance I can to educate those willing to listen as long as they don't get that glazed over look in their eyes (is that the gluten glaze talking???) Even though people want to have pity on me for having to "give up so much"...
  4. chasbari
    I understand your joy! A year ago I could barely get out of a chair and wore slippers everywhere to lessen the extreme pain and gelling from my RA. Once gluten-free I found that the RA just started to melt away. It's hard for me to realize that a bad day now is still ten times better than my best days used to be. Hey, the Chicago Museum.... big place... lots...
  5. chasbari
    Just thinking out loud here and have not done any further inquiry as of yet. I got to thinking and wondering, would the same mechanism that causes villus blunting and atrophy also be responsible for the same response of the oral mucosa/epithelium? It seem that it would make sense since it is the gateway to the digestive system that there might possibly...
  6. chasbari
    I was dealing with severe RA before I was ever diagnosed with celiac. My rheumatologist wanted to put me on Dmards and antiinflammatory drugs. I resisted. When finally DX'ed with celiac I first tried the standard gluten-free diet which made me feel less worse but not necessarily that much better. I used to have two or more hours of gel time in the mornings...
  7. chasbari
    Now that's a cooking show I would watch! Sounds great. CS
  8. chasbari
    Unfortunately I see denial even with this. I am in better health than I have ever been. Yes, I lost a lot of weight initially and yes, I am still hungry and healing ...but... I would have never imagined that I could be healing from such significant damage and see my other autoimmune diseases disappear and yet now everyone seems to think I am so sick and that...
  9. chasbari
    So much of what you have experienced mirrors my experience, especially with post meal symptoms. Once I was diagnosed and went on a very strict gluten free diet the turnaround was incredible. I found I could not tolerate many of the gluten-free alternate grains and have had great success on a Paleo diet. I just added in goat's milk yogurt after 6 months without...
  10. chasbari
    I spent the first four and a half decades of my life getting progressively more ill and have been dealing with three autoimmune diseases. I could barely walk by this past December. I have found that every attempt by medical doctors was in the direction of masking or ameliorating symptoms at the expense of proper diagnosis. There are certainly worthwhile drugs...
  11. chasbari
    Well, I don't run...but I could if I had to now. 9 months ago I could barely get out of a chair because my RA was so severe. Once properly DX'ed for celiac and on the gluten-free regimen my RA rapidly began to disappear. As a result I am able to workout like I was never able to even when younger. I have to feed the workout similar to you having to carb load...
  12. chasbari
    No. Your Hometown team would now be in Indy.. My Hometown team is now in your town which was formerly the hometown of the team that is now in another state as is mine which is a sad state as your new hometown team is still far better than what the NFL foisted on us in its stead. And ... you get gluten-free beer and pretzels to boot! My new lousy hometown...
  13. chasbari
    I have been able to ride my bike as well as the heavy workouts with weight equipment. I spent years developing various prototypes but had all but given up using them the last fifteen years because I would take forever to recover from a single workout. Now, as long as I get enough protein, I can tolerate much work. I make it a habit to "feed" my workouts....
  14. chasbari
    I have had much the same experience over the last nine months. I thought all had settled down to where it was at least manageable until the last ten days when I couldn't eat enough to make myself not be hungry after eating platefuls of food. Even with all the eating I lost five pounds I thought I had managed to recapture from the forty I initially lost. Body...
  15. chasbari
    Have you ever read Dr. Weston Price's "Nutrition and Physical Degeneration?" I would suggest you look into it. Way ahead of its time right at the intersection of western impact on many simpler diets. Not likely to be repeatable in our day and age. Might help you better understand where you are going with your thoughts. CS
  16. chasbari
    Gee, not to be flippant but my treatment has been relatively simple. Never eat gluten again. In adhering strictly to this my health has returned, or should I say, reached a level that I never enjoyed in my entire life. I now chose to live this way and the physical benefits are beyond my comprehension. Is it hard to be in a gluten eating household in a gluten...
  17. chasbari
    My initial reaction was immediately "Another excuse to prescribe a drug for intervention." I am at odds with my rheumatologist about this issue at present as my bone scans showed loss enough to be of concern. He immediately wanted to put me on Boniva or Fosamax to which I declined. It took me decades to reach this point and I told him I was going to wait...
  18. chasbari
    It would be helpful to know the specific ingredient list from the mix in question. CS
  19. chasbari
    trust your gut instincts and here's hoping for much strength for you so you can do what is necessary regardless of whether you get family support or not. Keep hanging around here where it is perfectly ok to voice your frustration. No one sees through the eyes of a celiac like a celiac and even though many try to understand it just isn't the same as living...
  20. chasbari
    Can you tolerate eggs? If so, can you gain access to some means to hard boil a bunch. I know when I am running a protein deficit and am too weak or tired to fix fish or burgers I just resort to eggs and it helps me to get to a point of functioning a bit better. Good luck. I hope you find something that works quickly and that you have plenty of strength for...
  21. chasbari
    Before being dx'ed with celiac I was first dx'ed with severe RA. Within 48 hours of going on paleo I was able to walk with almost no morning gel time whereas it had been as long as two hours. In following the anti-inflammatory recommendations of no nightshades and no legumes my RA has been melting away and I am now able to tolerate hard workouts, I can walk...
  22. chasbari
    When first diagnosed I tried to go with the celiac almost like normal western diet foods and started to feeel less worse...just not really better. I then switched overnight to Cordain's Paleo diet and within 49 hours my celiac started to feel better... and so did my rheumatoid arthritis. I now eat nothing but fresh fruit, fresh vegetables with no beans...
  23. chasbari
    They are good. Funny though, the only gluten I received in the last half year was from their pork chops in the meat package which were processed with some sort of gluten. I read it on the label, stored them for other in the family and they came back to haunt me... lack of due diligence on my part, not theirs as it was properly labeled on the box. great value...
  24. chasbari
    So that's why this is one of the most compassionate and giving sites on the internet.... I knew there was a reason! CS
  25. chasbari
    I basically second all that Riceguy just said and offer words of encouragement. I remember the first three or four months as being absolute agony. I ended up going paleo and felt like I was starving all the time. I still feel that way but now I am actually starting to feel better from day to day. I am dealing with rheumatoid arthritis and it is slowly getting...
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