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chasbari

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Everything posted by chasbari

  1. chasbari
    Tested negative here as well. As to potatoes, they are a night shade and can cause inflammatory problems with RA. My RA has responded positively to strict gluten free. I can't touch potatoes, though, without becoming immobile for days. I miss them. If you have the option of getting an endoscope done I would proceed. My GP ordered one in spite of the negative...
  2. chasbari
    Rheumatoid Arthritis, Sjogren's Syndrome, high Lupus indicators, Reynaud's in addition to Celiac. All the other have responded positively to strict gluten free.
  3. chasbari
    I am completely grain,soy, dairy free and have had a difficult time gaining muscle mass. Trying to get enough calories while working out has been a challenge. I thought I was eating a ton of calories when, in fact, I was way short of my daily intake when I finally counted them accurately. I shoot for 4000 calories daily but found I was only taking in 280...
  4. chasbari
    I love the rational sanity here... as well as the well informed scholarly approach. I personally cannot tolerate corn products at this time but can only handle a small number of foods because the damage was so severe after a lifetime of gluten exposure. I wouldn't extrapolate my conditions and necessary treatment to all people though. I know it is hard to...
  5. chasbari
    When I tried the western equivalency gluten free sort of like normal diet in the beginning I experienced much of the same anxiety with label reading, etc. I also felt less bad but not really better. Within 48 hours of going paleo not only did my celiac respond in a much more profoundly positive way but my rheumatoid arthritis, er, should I say severe rheumatoid...
  6. chasbari
    I very rarely drink anymore. I tried wine but the last time I had that was what set in motion my initial diagnosis of rheumatoid arthritis (I was thinking gout.) That was before my DX for celiac several years later. Seeing as I had nothing but bad experiences with it I just pretty much gave up on alcohol in any form. The swelling and cracking of my tongue...
  7. chasbari
    back before I ever suspected celiac I would experience very painful swelling and splitting of the sides of my tongue if I ever drank beer or alcohol. It would happen faster each time I experienced it.
  8. chasbari
    I so agree with this. I just turned fifty and am now stronger and healthier than I was in my supposed prime. I am now getting results from workouts I rarely got when I was a teenager and I feel younger in so many ways. I can't wait to see what it is like when I am fully recovered! It was hard to learn the discipline of rest though. That's still the challenge...
  9. chasbari
    In the early stages of my diagnosis/recovery I couldn't tolerate any exercise at all. My body was too busy healing to have any resources left over for exercise. I can work out now.. 2 and a half years later but have to keep my volume reasonably low as I am still not totally healed and high intensity exercise can push me over the edge. The problem is I know...
  10. chasbari
    hope the call goes well! CS
  11. chasbari

    ARCHIVED Enteroscopy Biopsy

    chasbari replied to Susie A's topic in Doctors

    Yes, I stopped gluten before any testing.. I was dying. Yes I tested negative by bloodwork. Yes, the evidence was so overwhelming that my GP ordered an endoscopic biopsy anyway. Yes, the villous damage was so severe that I was positively diagnosed after being off gluten for more than six weeks. Yes, two and a half years later I, on my latest scope and biopsy...
  12. chasbari
    What about the Toyota Celica though... (just kidding.) I do find this plausible and interesting.
  13. chasbari
    I will get back with you in more detail a bit later but this radically brought me back into the land of the living and yes, there was weight loss, major body composition change involved. Good luck with the book! CS
  14. chasbari
    I went gluten free at the first realization that I was likely dealing with Celiac. I knew I was not supposed to before the blood tests but I was so desperately ill I felt I had no choice. The thought that the gut could heal that quickly from such severe damage seemed improbable to me and I knew I was in very bad shape. In spite of testing negative with the...
  15. chasbari
    Couple of things. I agree about not overdoing it... hard to do when you start healing and feeling so much better. It's easy to forget just how bad things were and be tempted to overdo it. Some of your pain sounds a lot like my RA flares which were easily triggered when I overdid it. I can't tolerate corn and have also noted that fat and protein intake has...
  16. chasbari
    I was diagnosed with RA ten years before my celiac diagnosis. The RA was so severe by the time of my celiac DX that I could barely walk anymore and was having many other complications. Within forty eight hours of going strictly gluten-free and grain free and dairy and soy free my RA just seemed to melt away. I went from two plus hours gel time in the morning...
  17. chasbari
    Yeah, negative blood work here but brutally positive endoscope. Blood work is not always a good indicator. Don't minimize your response to the dietary restrictions. I would suggest you follow gluten-free carefully... like you are by checking things out here. There is a learning curve so write this one off to a learning experience. Hard to be cautious when...
  18. chasbari
    awkwardly written, a bit condescending in tone and generally too general with some dangerous assumptive conclusions. Lack of clear understanding of cause and effect towards the end. I give the writer a D-. CS
  19. chasbari
    She doesn't really HAVE to leave... does she?
  20. chasbari
    Yay! Good going... someday I may too eat at a restaurant again... one step at a time. Thanks for blazing a trail.. helps to hear what works and what doesn't.
  21. chasbari
    Right before my diagnosis and for the years leading up to it I pretty much had to know where the bathrooms were. I could never get enough to drink but always felt dehydrated. Once I went strict gluten-free I was amazed at the change and would actually be able to go hours ...up to six or more without having to go. I am intentionally hydrating a bit more now...
  22. chasbari
    After my first blush reaction of a glimmer of hope.. and I am the ultimate skeptic.. I settled down to reality and can only say "Amen!' to the above. Ameliorating symptoms is what delayed the proper diagnosis in the first place.. "Western Medicine's trade off game." I reserve the right to use that phrase over and over. So right on!
  23. chasbari
    All I can think of is that old T-shirt that said something like "weather is here.. wish you were nice" or something like that. Hard to judge what to say to well intentioned morons as they usually are saying that in reaction to the fact that you are standing there not looking dead to them. For many, this alone is bonus time. I graciously do acknowledge that...
  24. chasbari
    I think they miss some very key points in the telling of this. Yes, the big D but.. is he having a tumor removed as a result of a lifetime of celiac disease? If so, the very food that causes the potential problem is much more than a trigger for D. How about the fact that it would put him into a cycle of autoimmune response that might take weeks or months...
  25. chasbari
    No glee for me yesterday at the picnic/covered dish event. I packed my own food and stayed clear of the flutens (flying glutens) table.
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