Mysh
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Latest Celiac Disease News & Research:
Everything posted by Mysh
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ARCHIVED Anyone Catholic?
Mysh replied to Luvbeingamommy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I believe that there are options available - gluten-free wafers which can be ordered in or the option of making your own and getting the pastor to bless them. Definately dont feel embarressed, I'm sure they would want to help you if they can. -
ARCHIVED Having Chocolate Cravings Bad
Mysh replied to txplowgirl's topic in Coping with Celiac Disease
You could try adding a multi vitamin that has Chromium in it. Chromium assists with cravings. I have to say however, a bit of chocolate everyday sounds like a plan to me! -
ARCHIVED I'm Going Crazy.
Mysh posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been gluten-free now for a little over 3 months and although I started out quite positive (pure relief to have a "name" to what's been going on) I have become exceptionally frustrated and I'm honestly wondering if things have taken a turn for the worse and not the better. Since going gluten-free I have developed DH. I'm at the point where I am itching... -
ARCHIVED Need Help Shopping Gluten Free On A Budget
Mysh replied to erinmomof2's topic in Parents, Friends and Loved Ones of Celiacs
I have found that most kids will eat rice cakes with their favorite spread if that helps. -
ARCHIVED My Daughter Has Celiac Disease, Now What?
Mysh replied to asteria's topic in Parents, Friends and Loved Ones of Celiacs
I also recommend Karinas blog - it has some great ideas on it for meals. Depending on where you are you may also be able to get a hold of a book called "4 Ingredients Gluten free". Its recipes call for 4 ingredients or less and there are some really good ideas for snacks. -
ARCHIVED Mmr Vaccine/celiac Disease/autism
Mysh replied to EmilyR83's topic in Parents, Friends and Loved Ones of Celiacs
I did point out in my post that I believe in vaccines, but rather not on current schedulaes and doses. I have not found a signle study as yet that can 100% identify the cause of autism. Personally I believe it sa combination of factors. Vaccinating a child with a compromised immune system IMHO clearly doesnt assist with this. I also find it insulting when... -
ARCHIVED Mmr Vaccine/celiac Disease/autism
Mysh replied to EmilyR83's topic in Parents, Friends and Loved Ones of Celiacs
I'm on the fence as far as immunisations go. I don't know if they do or dont cause autism. I have two children with autism. Big regrets for me:- Not knowing more about the risks of giving a premature baby vaccines. Not waiting until he was much older to vaccinate. Not spreading vaccines out Not asking for single doses. I am a believer in vaccines... -
Thanks again everyone - just had a call from doctors office - she wants me in to discuss results. Metallic taste has gone, but I'm still very sore and very tired.
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I'm struggling too - not becuase I'ver given up gluten, but like you, I don't feel any better. We just have to keep at it I guess. One thing I do do for myself was to go out and buy some specific gluten free cookbooks. Cooking has always been a source of joy for me and I didn't want something else to be taken away from me and I often spend the evening...
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ARCHIVED Piercings Rejecting-related To Gluten?
Mysh replied to pdx.lila's topic in Dermatitis Herpetiformis
wow! interesting! I'd had my ears pierced since I was a little girl but have had numerous times when my body just rejected them. I'd wait a few months and get them repierced. I always thought I just couldn't wear "cheap" earrings. I took my earrings out a few years ago when my youngest took a fancy to them and let the holes close up. Since then, I... -
I don't know what happended then - but I've done the same thing I've been doing for weeks and it changed my signature!! Go figure! Thanks for replying!
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I'm logged in. Can navigate my way to my signature panel. Make the changes. Won't update. I keep getting error message. Any hints?
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Shortness Of Breath (the "sighs")?
Mysh replied to soulcurrent's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I oftn feel like I just can't get enough breath and have to do a really big breath in but put this down to anemia. -
Thanks for your reply. I'm not currently on any medication and am I'm pretty sure I'm eating totally gluten-free - but I guess of course cc is always a possibility. Like you said, DH may be because I am getting cc and not realising it. I have a horrible metalic taste in my mouth today and I know that can't be dental fillings etc - I have no mecury fillings...
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Shortness Of Breath (the "sighs")?
Mysh replied to soulcurrent's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
shotness of breath for me is most likely to be anemia. I've even had it so bad, i thought I was having a heart attack. -
I've been doing gluten free now for a few months (also keeping dairy to a bare minimum) but can honestly say I feel awful. I went back to my doctor on Friday and she's running a few tests (the thinking is that I am still anaemic). Since going gluten-free I have also added a few things into the mix that I didn't have before going gluten-free. Bowel...
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As you can see in my signature - I've had all my teeth crowned due to emanel erosion. It gets very waring doesn't it? all the dental work along with celiac stuff. I hope you will feel confident enough to insist on the proper tests. Would it help to bring someone with you? I go with my daughter (17) to her doctor and dental appts.
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I've never had a skin rash in my life (now 40) until I went gluten free recently. Now I have this incredibly itchy blister like cluster on my neck/shoulders. It even went right through onto my scalp. My doctor told me to take some allergy tablets and use a topical cream, but even weeks later it's still there, less itchy but still there. If I scratch it, it...
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ARCHIVED Great Gluten-free Info From Disney World
Mysh replied to Lynayah's topic in Coping with Celiac Disease
wow! thanks for doing such a detailed review. I'm planning on a trip with my kids (so far I'm the only gluten-free diner) and your notes will come in so handy! TFS! -
ARCHIVED Australians And New Zealanders Hellooooooo :)
Mysh replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
Mushroom - Thanks for sharing that! You're in good company - Ratatouille is one of my most favourite dishes! Wow what a journey you've had. I'm ashamed to say I've never really paid much attention to what has been going in my mouth, I simply ate what I liked. I did know that I had an issue with "carbs" but put that down to all carbs, which may or may... -
ARCHIVED My Heart Is Breaking
Mysh replied to elle's mom's topic in Parents, Friends and Loved Ones of Celiacs
I think the easiest way around that is to make up a list of suitable snacks and get the teachers to send it home with the kids explaining that there is a child in the class with an allergy. Long before I even knew I was celiac, I was catering for a child in my sons kinder class who was gluten-free/df. Most parents wont even be aware of other childrens... -
ARCHIVED Australians And New Zealanders Hellooooooo :)
Mysh replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
Mushroom, Can you share how you found out about your additional allergies/intolerances? I am contemplating giving up dairy (so far have stopped adding milk to coffee etc, but still eat it within certain food stuffs). I also have no idea about going about getting tested for additional allergies. One of the blood tests I did see was $950 which I thought... -
ARCHIVED Australians And New Zealanders Hellooooooo :)
Mysh replied to Aussie Peg's topic in Introduce Yourself / Share Stuff
Hi Jules, so good to see another Aussie on here. I love Tassie. Mushroom - I'd love this thread to be a lot more active! The problem will be shutting me up. -
ARCHIVED Are We Entitled To A Disability Payment?
Mysh replied to UnhappyCoeliac's topic in Introduce Yourself / Share Stuff
I'm not sure about a disability payment but I am wondering if a partner could claim a carers allowance for us? I have to go to centrelink this week and will ask about it. -
ARCHIVED Autistic Daughter W/ Strange Bowel Problems, Tooth Decay, More
Mysh replied to darlenevile's topic in Parents, Friends and Loved Ones of Celiacs
It sounds to me as there is definately dietary issues coming into play. Autistic children even if not celiac often benefit from a gluten free diet. I have 2 autistic children and both have had bowel issues. Dairy is a major concern as often too there is an intolerance or allergic reaction to the casien in milk. I'd keep a food diary or seek the guidance...