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Leiana

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Leiana

  1. Leiana
    Hi and thank you for your kind reply. yes i have tried all the foods you suggested and then some. and every protein drink on the market. Eat a full meal every two hrs for i am starving and if i dont get to eat i get really dizzy and feel like i am going to pass out. i tried the ensure and boost and i end up on the toilet. i have even tried the prescription...
  2. Leiana
    Hi that is a good question that i have trying to find out for 2 years and what to do about it. i have posted on this forum and lots of different forums also and dont get an answer. I have lost 30 pounds and loss of muscle mass...really just a bag of bones. i eat all the time and dont gain a ounce. drs are no help. have had 3 endoscopes and nothing except...
  3. Leiana
    Hi i take prescription enzymes....96,000 units a day. its called Creon and expensive and hard to find at pharmacies. I recently bought some ENZYMEDICA gluten ease with DDP-IV ACTIVITY AND BOUGHT LYPO GOLD ENZYMES. wondering if anyone knows if i can take these two different products on top of the prescription strength. I read that the GLUTEN EASE eliminates...
  4. Leiana
    WOW thats cool. i remember them back in the day. Excellent pizza. Would like to know what the dough is made of first before i bought one. Miss eating pizza!!!! thanks for the tip.
  5. Leiana
    then it is not curable. just treatable to a certain extent. if you dont know which autoimmune disease is causing it then what??? all this testing is almost getting pointless it seems. i have low cortisol levels, take cortef and lost tons of weight and muscle. cant wait years to find out what is causing this. its scary.
  6. Leiana
    so confused. can anyone explain lipase levels and how it is associated with weight loss? have lost 30 pounds with extreme loss of muscle mass. blood test came back the lipase was 75 and out of range. i notice others here that the lipase levels are into the hundreds. does the 75 really mean 750? i am so desperate to gain some weight!!!!
  7. Leiana
    oh yes he has been my guiding hand. he is all i have...really truly he is.
  8. Leiana
    correction.....he b%$@#ed all the way there. ( dont know what the jerk meant except he is one)
  9. Leiana
    wow my family is literally falling apart because of my illness. husband has got to be the most ignorant and stupid male on this planet. he just dont get it or he dont care. i think it is the latter with a little bit of the other thrown in. this illness might very well cause the end of our marriage. soooooo extremely non-supportive. i am totally going...
  10. Leiana
    YESSSSSSSSSSSS!!!!!!!!! That picture is me, except for the big belly. upper body, arms, chest are just bones. blood test showed that the LIPASE WAS OUT OF RANGE at 79. dont know what that means. dr. said i am gluten senstive and also had the endocope two days ago and waiting for biopsy report. he did say i had a ulcer and put me on prevacid and...
  11. Leiana
    Hi again well get this the drs. are finally concerned!!!!!!!!! now want me to have go thru the biopsy of the growths on the adrenal gland. and then have a pet scan checking for cancer. hmmm well i knew about the adenomas on the gland for years and was told it was benign. now it seems it has grown and they want to check it out. the adrernals have...
  12. Leiana
    this just in two minutes ago. got a phone call from dr and said it is the adreanal glands have adenomas (tumors) sitting on the kidney which is related to diabetes!!!!!!!!!!!!!!!!!!!!!!!!. wow. it is al related. i am in shock!!!
  13. Leiana
    hi wow you really know this stuff. i can tell you have really done some investigating. this is alot to understand. its really maddening when drs seem to not want to help and you feel like you are dying. how dare them!!!!!!!! i had that glucose test years ago and they said i was boderline diabetic. is there such a thing? lol lol i so appreciate...
  14. Leiana
  15. Leiana
    hmmmmm same problem and now it is to a point i dont think i am going to make it. drs. cannot find out what is wrong. i am shrinking. mass muscle loss. went from size 12 misses size to little girls clothes which some are too big. sooooo i am giving up. stuffing my face does not work, digestive emzymes dont work. there is nothing left to try. only thing...
  16. Leiana
  17. Leiana
    wow ohio i was going to ask the same thing. been gluten free (i think) for about 3 weeks now. i do feel alot better and have been able to add foods i have not eaten in years like gluten free pizza!!!!!!! i would like to know when the stomach and intestines start to heal and how do you know when they are ok. i lost alot of weight and was told it is a malabsorption...
  18. Leiana
    Hi michigan here too. another one is Hillers grocery at 6 mile and haggerty rd. also Krogers has started to carry items but are limited. been gluten free only about 10 days. its hard trying to figure this out and expensive. Thanks.
  19. Leiana
    yeah muscles are gone and rail thin too. need to gain about 50 lbs. do you mean that we will always look like this.....a skelaton, never to put back on muscle mass????? i hope this is not true. there has to be something out there to help with this.
  20. Leiana
    well yesterday i go to my MD and ask for a antidepressant to gain weight. years ago i was on trazadone and gained 25 ilbs. i was thrilled. this dr. though wants to use this type and you rapidly gain weight. he told me to be careful cause i will get fat...meaning it litereally puts layers of fat on you. so i looked it up on google and what he said is...
  21. Leiana
    yep heard about this tonight. she went undiagnosed for 10 years. Elizabeth was skelatel until she put herself on the diet and healed up. she looks great and healthy. i also heard some of these actresses are celiac but will not go on the diet so they can stay thin. what a shame. if only they knew what this is doing to them. such vanity. i rather be...
  22. Leiana
    HI thanks for the reply. lol lol ya me too i would fast all week than go for that prep. well one good thing about the gastro drs. appt i had is that he actually listen to me. YOOOOHOOOOOO. lol lol i told him how sick the prep makes me and he said he does not want to do a colon test until i get more stabalized. i asked him about the colonic thing...
  23. Leiana
    well went to my first gastro appt and told him my symptons and he said that it is kinda strange that someone my age would now be celiac or gluten sensitive etc etc. told him that i always had these symptons all my life and knew i had colitis and diverticulous (SP). so now he wants to do the endoscope to look for other things and to see if i am celiac. ...
  24. Leiana
    oh boy i am having one next week. still dont understand the difference in sedation and anestethia. dr. told me i would be knocked out....ii dont want to feel and know anything that is going on. who should i talk to to know which kind i would get before i even go in for this appt. i lost weight too...does it make a difference. it seems the anestheia...
  25. Leiana
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