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Twister2

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Everything posted by Twister2

  1. Twister2
    Hi all, Just wondering if anyone else suffers from Kidney pain and frequent bladder infections with Celiacs. I seem to constantly have sharp pains around my sides and kidney area as well as 2-3 bladder infections a month. My GP doesn't seem overly concerned about it even though I have the pain when I don't have a bladder infection. Do any of you know...
  2. Twister2
    Hi there, my daughter has also been sick for months and we FINALLY found the world best Peds GI. He STRONGLY advises against gluten challenges for diagnosis. Mainly because this can in fact, in some cases, cause an anaphlactic reaction or severe ilness. He feels this is not ethical to make a child suffer when other diagnostic procedures mainly an endoscopy...
  3. Twister2
    Congratulations!! You must be sooo excited! I am due Oct 15th, but because of problems with my last labor my doc is inducing me on the 3rd. As far as the big C goes, I had it really bad a few weeks ago and what really worked for me was to eat alot of grapes. Don't ask me why, but it worked. If you get really bad you can always ask your doc for some colace...
  4. Twister2
    She's beautiful Kayjay!! Congrats! How are you recovering from your C-section?Our little guy is due on Oct 15th, but apparently he's a little anxious to get out early. I have been on bedrest for 6 weeks for preterm labor. I have one week left of bedrest then we should be ok if he's born then. I can't wait to see him! Hugs, Twister
  5. Twister2
    Hi there! Sorry you are so sick! I was like this with my last child and it was pure hell. Especially if you have other kiddies to care for. Just a warning about Phenergan, it will knock you on your butt and if you have other small kids I would probably opt for Zofran even though it is more expensive. I took Phenergan, but only when my husband was home because...
  6. Twister2
    Medic alert tags are generally for emergency personnel such as Paramedics and ER staff, to alert them of potentially fatal allergic reactions or medical conditions that may affect their course of treatment when a patient is rendered unconsious or unable to speak for themselves. As a former Medic, I don't believe Celiacs falls into these categories. Although...
  7. Twister2
    Hey all, anyone else ever been accidently glutened by a friend??? We had friends over for dinner, and my husband was making homemeade burgers. A friend of ours was mixing the meat up and put a beer in there to add flavor. I ate the burger and have been sick for two days and itching like crazy! I told my husband the next day that I couldn't figure out what...
  8. Twister2
    Hey there, and welcome! I hear ya about being tired. I would love to just sleep the next few months away if I could. I have two other kids aged 3 1/3 and 1 1/2 so my naps are few and far between. I still feel pretty tired despite being gluten-free and taking vitamin B-12 shots. I wish I could tell what symptoms are pregnancy and which are Celiacs! I wish...
  9. Twister2
    First let me say how sorry I am for your loss. Our second pregnancy was twins and we lost one of them in the 11th week. I was an undiagnosed Celiac at the time. I know that hormone imbalances can cause miscarriage. Particularily progesterone deficiency. Have you had your vitamin and progesterone levels checked? I will keep you in my prayers to conceive a...
  10. Twister2
    I know EXACTLY how you feel. Right now I am pregnant, and I would KILL for a hawaiian pizza. When I was first diagnosed, I felt horribly depressed. My husband is an AWESOME cook, and we just love to cook together, its our "thing". I felt like all of that would change, and while it has in some ways, we just work around it. He doesn't mind eating gluten-free...
  11. Twister2
    Hi all, hubby is a golf nut and we have booked a week in Miami at a Doral golf resort. Does anyone know of any good places to eat gluten-free?
  12. Twister2
    I forgot to mention that ALL of the tests for Celiacs were run on her, they have a "Celiac panel" test at Promethius labs in California that tests for everything. She was negative on all accounts.
  13. Twister2
    HI all.....her sweat test was negative and we have done the fecal fat absorbtion test and are waiting for her results. I am going to put her on a gluten-free diet if these also come back normal because I KNOW something is not right with her. It sounds to me like Celiacs, but tell that to her doc!!!!
  14. Twister2
    Even though its a little pricey, Haagen Daz Strawberry Ice Cream is the best!!!!
  15. Twister2
    Here's my favorite gluten-free chinese style recipe. My dad once took a Cantonese cooking course and I learned this from him. Everyone loves this recipe, Celiacs and Non-Celiacs alike! Chicken and Snow Pea's -Cooked white Jasmine rice ( or whatever rice you like) -4 chicken breasts cut into thin strips -Fresh Snow pea's ends trimmed and washed -...
  16. Twister2
    HI all, I posted a few weeks back about our 16 month old daughters 3 month long bout with diarrhea. I have Celiacs, and we thought for sure that she did also. She has light colored stools that appear oily when solid or diarrhea all the time. Our Pediatric GI doc did the Celiac panel and she was totally negative. He now thinks that she may have Cystic Fibrosis...
  17. Twister2
    Hi all, here's a recipe I found that I modified to be gluten-free. I tried it on my family and they loved it!. Chicken Avocado Pizza Sauce: 2 ripe avocado's 1 Tablespoon fresh lime juice 1 Clove fresh minced garlic chopped fresh Cilantro to taste Crust: 1 amy's brown rice pizza crust baked 5-10 minutes to firm it up Toppings: Finely...
  18. Twister2
    HI Kayjay...my OB seems to know very little about Celiacs, he asked me if I was seeing a GI and because I said yes he did not seem concerned. He has not suggested any extra care for me due to the Celiacs. How are you feeling now? Do you know what you are having? We are havng a boy this time! Cheers, Twister
  19. Twister2
    My cycle has always been very irregular. I always had horrible cramps and heavy bleeding too. I had spotting between my cycles very often and my doc finally put me on the BC pill to help regulate me. It worked wonders for me! Of course all of this was before I knew I had Celiacs and I have only known I'm Celiac since October and now I'm pregnant again so...
  20. Twister2
    Hi there, there is a good whole foods store in Anchorage called the Natural Pantry, its a good spot to get some gluten-free stuff. Are you driving up the AlCan Hwy? I've driven it four times over the past few years, its great...except for the construction areas.
  21. Twister2
    How are all you pregnant ladies doing on your diets? I am hitting myself right now because I gave in and ate at McDonalds today. I know I am going to be a permament fixture on the couch or the toilet by tonight. I am finding it so hard to gluten-free right now because my nausea has subsided and now I just seem crave everything! Arrgghh!
  22. Twister2
    Hi girls! I am using a gluten-free over the counter prenatal vitamin, but I would like to get a prenatal vitamin prescribed by my doc. He wrote me a script for "prenatal vitamins of my choice" because he was unsure about which ones were gluten-free. Which prenatal vitamins are you using?
  23. Twister2
    I pretty much hated rice bread period, and had given up on gluten-free breads altogether until my sister forced me to try the Glutino white bread toasted with peanut butter on it. Its great and I actually eat rice bread now! Their flax seed bread also makes great sandwiches...gotta be toasted though!
  24. Twister2
    You can also get the Bare Escentuals stuff at Sephora Online if you don't have a store in your area.
  25. Twister2
    The passing gas one is hilarious! Lets add on that one..... -You might be a Celiac if you have ever thought you might explode from holding in a fart too long while in public.......... AT least that been my experience... Here's some more: -You might be a Celiac if you have ever had nightmares about being trapped in the bread aisle in...
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