Leper Messiah

Yes I think this was the problem for me notkuroda, a lot of sensitivies to other foods, namely corn, soy, dairy, nightshades. As you can imagine this limits my food options considerably. The good thing is that once I eliminated them all, I felt better within 1-3 days as opposed to 2 weeks with gluten. Best of luck.

No it wasn't the water per se, it was the fact there was likely to be gluten on my sleeve which was then transferred onto my mouth and then swallowed by drinking the water. I stopped cleaning so hard at home, and instead rely on plastic plates, cups, disposable everything basically as I tried the cleaning route but I was getting glutenned on average twice...

Oh man, I must have the most sensitive reaction to gluten ever. I went to work today in a positive frame of mind, it's been two weeks since my last glutenning so this is when improvements start, and continue dramatically over the following week. So of course I was anticipating this and walking to work with a . It was a cold day so wrapped up and...

I agree, they're pretentious know-it-alls!! Experienced or not...you're are very lucky indeed if you've not experienced the inadequacy of modern medicine. Otherwise I would suggest your symptoms can't be that bad! Mine make me feel like death and not one doctor has eased that, in fact they have prolonged mine substantially. If I had been accurately...

I think this depends on how long you went between it starting (for some very difficult to pinpoint) and beginning a strict gluten free diet. After a long period my theory is that your GI tract tries to work out what's causing the inflammation itself and wrongly identifies a selection or one (if you're lucky) of the common allergens such as dairy, soy etc...

Same issue for me. I stick to bottles and only drink from the bottle, magners, etc. No bottles = no drinking for me. It's fine if you're at home because it's likely unless you live in a really small place that you'll find a pub with at least one bottled cider option. I've risked cider in a glass and got away with it but I would only do this if absolutely...

Depression is a tough one exactly because of this. It is a separate serious illness in its own right from which I have no experience as I have never had depression as a standalone illness. I only have asymptomatic depression symptoms when I get glutened because I know what this means for me. Just as an aside I've went to the docs and been giving the...

I'm exactly the same. The only way I get through it is tell myself it's just 2-3 weeks. And ok that's not great but from a background of having been diagnosed with ME/CFS, 2-3 weeks is a drop in the ocean. I'm not downplaying it at all though, you need a lot of mental strength and an ability to focus on the positives that you are going to achieve when...

Absolutely no. Separate all the way.

I agree this completely limits your options - I have to avoid dairy, soy, gluten obviously and bloody corn too which is even worse than dairy at limiting your food options as almost all gluten free foods contain at least some 'maize' or other corn derivative and that includes multivitamins. So in essence, I empathise entirely!! Just out of interest how...

In all seriousness though, I think it's difficult for anyone without celiac/gluten intolerance of any kind to fully understand just how meticulous you need to be when cooking food for us. One misplaced sticky gluten protein and it's game over. I would only ever eat something from someone else I wholly, totally trust. I often watch Masterchef (UK) - yes...

Initial reaction with brain fog, feeling spacey etc. This lasts max 24 hours then brief respite for a day or so before the fatigue sets in and doesn't leave me for 2 weeks, almost exactly to the day.

Think it's all up to the individual both in terms of what they believe and how they react. It's widely reported that the gluten protein is too large to be absorbed through the skin and secondly, if you had broken patches of skin and rubbed a weetabix into it then it's unlikely to cause an atypical autoimmune reaction, however this is not to say you won...

Thyroid ok?

Slow onset of gradually worse fatigue to the point of not being able to go into work for me.