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PattyBoots

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    Glorious West Virginia

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  • PersianCeliac

    PersianCeliac

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  1. Which is why I have a list of questions I have to "interview" a doctor I've been told is good before I even get into his "practice". Top of the list is, "Can you listen to a question I have without using that time to think about what you're going to say next?"
  2. I got an email on April 19 from Prometheus stating that they will discontinue the genetic testing as of April 30 and the myceliacid.com address will be shut down on May 18. Also, directly from the email: "Prometheus will continue to offer celiac genetics testing which can be ordered by your healthcare provider." IOW, you'll no longer be able to order it...
  3. Went to dermatologist for ugly, itchy, weepy rash, particularly around my midsection and chest. Doctor walks in and takes one look. Conversation goes as follows: Doc: Nasty lookin' rash. Bet it itches. Me: Uh huh. What is it? Doc: *shrugs shoulders* Dunno. Here's some cream. Probably won't help, but that's all I can give you. Me: *boggles...
  4. Hubby loves me; this I know. But, he's not especially educated and so doesn't understand the need for COMPLETE adherence to the diet. He doesn't "get" that I don't want to (forgive me) slap tongues with him after he's been drinking beer. He's all for me feeling better, but doesn't understand "just a little bit won't hurt you" WILL. I intend to try to...
  5. Pacific Natural is gluten-free. It is very cost-friendly at Costco but can be purchased at Walmart. It comes in a resealable carton and is delish.
  6. I wonder if this is why I got to be this old (46) before REALLY having problems. I remember telling one doctor that my idea of convenience foods was frozen vegetables. We've always eaten at home, and FAIRLY simply. I can't do the "cook for the week" thing because if it's not fresh, I can't eat it. Can't stand leftovers unless I turn them into something...
  7. Please don't think I'm flippant, BUT - Since you're already in Baltimore, perhaps you could call the UM Celiac Center and see if they can help you.
  8. I'm reasonably certain I've had outbreaks of DH. Several years ago I had an awful, suppurating rash all across my stomach and down my arms, and another time on my sternum. I went to the derm, who looked at it and said, "Oooh. Nasty rash. Bet it itches." My reply was, "Uh huh. What is it?" He literally shrugged his shoulders and said, "I dunno. Here...
  9. I guess since I LITERALLY have no family - they've all died, and I suspect my mother from undiagnosed gluten issues, I really don't give a rat's ass if anyone is offended anyway. Having worked in the food service industry years ago, I don't like going out to eat anyway just because of the filth. Although, there is ONE pizza chain I'm partial to and that...
  10. I'm new to the gluten-free diet, but not new to the "picky" diet. Whenever anyone has ever offered me anything I didn't want/didn't like/gave me troubles, I just said "No thank you." I never offered a diatribe. I never tried to educate anyone. I just said, "No thanks." They moved on. No questions asked, no questions answered. Even when they "pushed...
  11. I was hoping that my GYN having trained in Canada would make him be more open/sympathetic to ordering the panel. I'm 46 years old, so I suspect I'm probably a good way along the way to ruinous damage if I do have the disease. I forgot to mention a few things - I also have scalp lesions and neuropathy. The neuropathy pretty much came on suddenly a few...
  12. I had the gene test done and came back DQ2 Homozygous. Alleles detected: DQ2.5 (HLA DQA1*05:DQB1*0201) and DQ2.2 (HLA DQA1*0201:DQB1*0202) From my rudimentary genetics classes in the 80s, along with the Wiki entries, that in and of itself is pretty damning. My teeth are horrendous. My mother, her mother, and her mother before her all...
  13. I'm in the midst of baking a loaf of Gluten Free Pantry French Bread and Pizza Mix and the smell is horrific. Forgive me, but it smells like vomit and my stomach is rolling over. I can't open the windows and air it out because it's 90+ degrees here and I do enough air conditioning the outside with three dogs wanting in and out all day This is my first...
  14. Cherry tomatoes aren't just for salad - sautee them quickly over high heat in butter or olive oil (or a combination - YUM), seasoning liberally with basil (fresh if you have it) and salt and pepper and garlic, until the skins crack. Great by themselves or on pasta.
  15. I suspect the "don't eat the freaky gluten-free bread" comes from not wanting folks to pay $5.00 for a loaf of bread just to find out it doesn't really taste like bread. Don't get me wrong - I LIKE Pamela's pancakes. But they'd be a "choice," not a "requirement." They're too damn sweet.
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