
llj012564
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Everything posted by llj012564
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ARCHIVED Hair Loss
llj012564 replied to Tutahl75's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I did have hair loss in the begining when I was really sick. My Dr said it was due to lack of protein and the fact that I was losing so much weight. I dont see the hair coming out as much any more ...gluten-free since Feb04 ..... but its also not growing back Thankfully I had thick hair to start with. -
ARCHIVED Soy Milk
llj012564 replied to BamBam's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Shayladad.... was the little girls diarrhea a frothy consistancy? if so I would have to say look at the casein foods ..... with it being foul-smelling and usually not happening for a few hours sounds a lot like how I react to casein. so just a thought but also sounds like your in a tough spot with her diet...... so good luck hope you find what is causing... -
ARCHIVED Lower Back Pain?
llj012564 replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I used to be on pain meds daily for my back and hip pain..... since going gluten-free have been able to use the meds on a PRN basis. I noticed that when I had an accident with something I shouldnt have eaten the back pain was back. My Dr thinks its the reaction in my intestines causing the pain. I would run it by your Dr and get their advice. Pain can indicate... -
Ive been gluten-free C/F egg free ...well you name it free since Feb04 ... I eat only fresh fruits and veg chicken and very little red meat . I have been lactose intolerent since I was born so Im pretty sure that the gluten-free diet isnt going to make that any better....would be great if it did but im not going to hold my breath. My Dr did say with some...
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yes no female
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ARCHIVED Joint Pain
llj012564 replied to I'm more celiac than you's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey jennifer casein is dairy ..... I have to follow a gluten-free C/F diet also no egg no soy amoung others if you are looking for a calcium sup go to www.GFCFDiet.com its a website for kids that have to follow both diets but they have lots of great vitamines. Lora -
ARCHIVED Polyps/tumors Of Small Intestine
llj012564 replied to debmidge's topic in Related Issues & Disorders
My Grandfather died from colon cancer , my father had had polyps removed , and one of my brothers has had them removed, both did not show cancer. My other siblings we all tested as was I ( the only one with confirmed celiac disease ) and none of us had any polyps. They tend to run in families. As someone with celiac disease we do have a higher risk of developing... -
ARCHIVED Joint Pain
llj012564 replied to I'm more celiac than you's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have thought about taking Glucosamine .... what brands are gluten-free? or what brands have any of you had good luck with? My left hip and knees give me trouble from time to time from all the years I was a catcher in fast-pitch softball Whats the deal with the apple cider vinager? Maggie your from the land down under right ..... My niece is going... -
Mostly German from both sides then its a mix of Northern Europe Grandfather died : Colon cancer Father : Colon Polyps Brother : Colon Polyps You think I can get them to even listen to the Idea that they may have celiac disease and should be tested...... Even though they both have many symptoms...
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ARCHIVED Joint Pain
llj012564 replied to I'm more celiac than you's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hey Karen I to have days that I feel like Im and 80 yr old .... Im not sure where it comes from ... I was very active in sports in my younger years and have physically abused my body in most of my jobs so I have always figured that I would pay for it some day.... Maybe for me that day is sooner than I had planed I can say that since I have been gluten... -
ARCHIVED Joint Pain
llj012564 replied to I'm more celiac than you's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
B4 going gluten-free I had joint pain that led my dr to Dx me with Fibro and put me on pain meds for almost 3 years. Now that I've been on the diet I'm off the meds and the pain is under control its not gone 100% but then like Deb im getting old and that could bet more the problem then anything. At leats now I dont feel like im ready for a wheel chair -
ARCHIVED Could It Still Be Celiac
llj012564 replied to esmee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with Deb , the diet wont hurt you but you have to be strict or you wont know if it is helping you. You may also want to do the genetic testing if you think that you have to know 100% . For me my blood test was positive and the diet made such a difference I didnt see a need for the other tests. Just an added note .... when I started the diet I went... -
Is Nausea A Symptom Of Celiac?
llj012564 replied to spaz-bubble's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had nausea all the time as well. I used to tell people it was like having the flu everyday for months. Been gluten-free since Feb04 and I can at least say that I dont feel like I have the flu everyday now. Still have the fatigue issue but hope that will get better soon -
ARCHIVED Help-what Is Wrong With Me?
llj012564 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
MSG ( Monosodium Glutamate ) , Its in alot of stuff just read the ingredients it will be listed if its in there. I get migraines from it and my guts react to it as well so I avoid it at all cost. -
ARCHIVED What Were Your First Symptoms
llj012564 replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was sick for years. My Dr went from one thing to another she tested me for everything, Chrons, Ulcers, Cancer, RA , and the list went on , finally she thought it was my gallbladder when that was neg and I started losing 5 pounds a week and couldnt eat anymore because everything made me so sick she ran the blood test for Celiacs. I should say that at this... -
ARCHIVED Frustrated - Advice Please
llj012564 replied to Finlay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If this has been going on for 2 yeras and your Dr hasnt made any attempt to get to root of the problem I would seek another Dr maybe try a GI Dr. Celiacs can present in different way in different people. My Dr missed it in me in the begining because I wasnt the typical Celiac .... I was very overweight... it wasnt untill I got so sick and started losing ... -
ARCHIVED Still Having Problems With Energy Levels
llj012564 replied to Carriefaith's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have been on the diet for 11 months and still find myself getting tired easily. I eat only fresh foods so no possibility of contamination. I have lost a significant amount of weight and am still losing so that may account for some fatigue but my Dr thinks it will eventually just pass given time. I know that Cronic Fatigue Syndrom can go with Ciliacs so... -
I have been gluten-free for almost a year and still not feeling well so you are not alone. I have gone over my diet with a fine tooth comb and reduced it to only fresh foods nothing processed in hopes that this would make a difference. So far not helping much but Im not giving up hope it may take time. If I were in your shoes, given the amount of time you...
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Ive been gluten-free since Feb04 and had all of those complaints and more. They did improve when I started the diet but I still find myself very fatigued all the time. I have to work hard at comsuming enough calories daily with the limited things I can eat.
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ARCHIVED Need Help With Foods
llj012564 replied to whitelacegal's topic in Coping with Celiac Disease
So if I understand you... Your just doing the gluten free diet now? If so ... I would start with only fresh foods first. Unless you know for sure you have no other food allergies. Once feeling better introduce new stuff one at a time. Some people have no problem with the gluten-free products that are out there. Be careful some of them arent gluten-free at... -
I dont do flu shots
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Northern Minnesota
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ARCHIVED Possible Celiac Disease?
llj012564 replied to a topic in Parents, Friends and Loved Ones of Celiacs
I have found the gluten-free diet to be less expensive in the long run only because I eat only fresh foods nothing processed . Its more time in preperation and usually I spend a full day once a month cooking then freezing stuff for later but it is worth it for me . I dont always suject my whole family to the diet but they eat much better now than b4 -
ARCHIVED Under Eye Circles
llj012564 replied to ham&ex's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have them as well. I have noticed a slight change since going on the diet. I only eat fresh foods and do drink lots of water but maybe the sleep thing is my problem. I work fulltime and have 4 kids and a husband that doesnt seem to think that this is really an illness. Keeps asking me how long I have to be on this diet:( So for me maybe more sleep would... -
I was on daily pain meds for Fibro for almost 3 years b4 my Dr finally found Celiacs. I have been gluten-free since Feb04 and off all pain meds since around Mar or Apr. I can't say for sure but I don't think I ever had Fibro at all. I think that it was the Celiacs the whole time. Now when I eat something I shouldn't I get the same pain back . When I first...