Jump to content

tunibell

Advanced Members
 View Profile  See their activity

  • Posts

    24

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by tunibell

  1. tunibell
    I'm not sure what my TTG IgA was at diagnosis (the doctor who diagnosed me via blood/biopsy used a different testing scale than my current celiac specialist). My level at 6 mo gluten-free was 41, and at 12 mo was 27 (with <20 as normal). I have been extremely strict as well (never eat out, minimal processed food, etc.)
  2. tunibell
    I think you and your daughter are doing a great job! I've been meticulously gluten-free for one year now, and my TTG IgA is steadily declining but still positive (28 at my last visit). All my other tests (IGG, DGP) were negative. I just think it takes more time in some folks.
  3. tunibell
    I'm not sure how long I have had celiac disease; if I had it prior to February 2009, it was completely silent. CT scan came back normal, thank God!
  4. tunibell
    I seriously don't see how there could be any gluten in what I eat. I'm meticulous to the point of paranoia. As far as medicines, all I ever get is "we don't actively put any gluten in but we can't guarantee that the raw materials are gluten-free." I never eat out, and I replaced half my kitchen after diagnosis. I only use gluten-free shampoo and conditioner...
  5. tunibell
    I just got my repeat endoscopy results back. After 8 months on the diet, my biopsy revealed "partial healing." My doctor seems to think the celiac should have totally reversed at this point, and now wants to send me for a CAT Scan to rule out lymphoma. I am, naturally, freaking out. Anyone go through something similar???
  6. tunibell
    I was diagnosed with celiac disease in 5/09 after being symptomatic for a mere 3 months. At the time, my endoscopy/biopsy showed mild gastritis, duodenitis, scalloped intestinal folds, and mildly blunted villi. I have been meticulously gluten-free ever since. It took about 4 months for me to feel all better. At around the 6-month mark, I started to get...
  7. tunibell
    I think most docs have this one all wrong...tTG seems to take time to fall to normal levels in lots of people, despite the gluten-free diet. I recently read an article in the Digestive and Liver Disease Journal, which followed biopsy-diagnosed celiacs in the first year of recovery; at the end of the year, most of the subjects still had elevated tTG IGA levels...
  8. tunibell
    I think it might just be part of the healing process. I had a lot of issues with painful gas in the first 5 months or so. I haven't made any major changes in the last few months; I think these things just take time.
  9. tunibell
    You might want to ask your doctor about testing for microscopic colitis. It's another autoimmune disease that can often occur in tandem with celiac disease. It requires a colonoscopy to diagnose (fun, I know), but it is very treatable.
  10. tunibell
    It took two weeks before I felt ANY better, and more than two months before I felt significantly better.
  11. tunibell
    I actually just read a study that showed that 61% of folks with diagnosed celiac disease on a gluten-free diet still had positive TTG IgA readings after one year. This number included both people who were extremely strict and those who were only mostly compliant. Let me know if you'd like me to send you the study; I know it made me feel a lot better!
  12. tunibell
    Personally, I can have the exact same meal and get gas/bloating at least part of the time. I think it depends on a lot of factors (time of day, speed of ingestion, etc.)
  13. tunibell
    There should be a scale associated with your TTG numbers. Different labs use different ranges, so the numbers in and of themselves are impossible to evaluate without the range.
  14. tunibell
    I was diagnosed (via endoscopy/biopsy) in May 2009, and I can honestly say it took a full two weeks before I felt any better, and two months before I felt much better. I had the same sensation, by the way - it felt like someone was clenching my stomach in their fist. This was the symptom that drove me to the doctors (all five of them) in the first place....
  15. tunibell
    They are dropping...just not as quickly as I (or my doctors) would like.
  16. tunibell
    No to all - my lotion and shampoo are gluten-free, as is the cat food. I'm a SAHM, so my work environment is the whole geographical area, so to speak, but I do wash my hands before meals. I've also replaced all my cooking products (salt, cornstarch, spices, etc) and always chose certified gluten-free products when at all possible. My vitamins are all from...
  17. tunibell
    I was diagnosed with celiac disease via endoscopy/biopsy in 5/2009. Since then, I have maintained a strict gluten-free diet. Currently, there are only three products containing gluten that are even cooked in my kitchen (my husband has toast every morning in his own oven toaster, located on a dedicated counter top, and my daughter has frozen pizzas toasted...
  18. tunibell
    My symptoms showed up out of the blue after my second daughter was born (at age 34). I never had a single issue (digestive or otherwise) until I began feeling a dull, tight ache right between my ribs. I was diagnosed with celiac three months later.
  19. tunibell
    Hi there, Abdominal pain (which felt like a dull, tight ache between and under my ribs) was the symptom that drove me to the doctor's office. I'd never had a single digestive disorder symptom before that time. I also had my gallbladder scanned because of the location of the pain and I also have (mild) psoriasis, which showed up out of the blue three...
  20. tunibell
    Here's my favorite: Rinse 1/4 cup quinoa. Boil 1/2 cup water, and add the rinsed quinoa. Add a banana and blueberries (or whatever other fruit you have on hand; peeled apples work nicely). Stir once, cover, and turn down the heat all the way. Cook for 15 minutes. Remove from heat and sweeten with honey or agave nectar, if desired. I also like to add chopped...
  21. tunibell
    I've been gluten-free for 5 weeks now (diagnosed via biopsy last month) and I totally hear you - I feel more tired now than I did when I was happily munching on Autumn Wheat cereal. I actually felt systemically great when I was diagnosed; what drove me to the doctors (all four of them) was just a tight, dull stomach ache and a mild burning sensation in my...
  22. tunibell
    I was totally worried before mine, and honestly, it was a slice of gluten-free cake. You'll be just fine.
  23. tunibell

    ARCHIVED Struggling

    tunibell replied to K-Dawg's topic in Coping with Celiac Disease

    May I ask how it was determined that you are allergic to rice? Was it via bloodtest? IgE or IgG?
  24. tunibell
    I am a 34-year-old mother of two (ages 3 & 5 months). About three weeks after the birth of my second child, I started having dull stomach aches that would come and go. They were never particularly painful, just annoying and lingering. Two months later, I started having light bowel issues, just bouts of loose stool, and a general sensation of inflammation...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.