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no-more-muffins

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by no-more-muffins

  1. Does taking an antifungal make the die-off worse? I am bracing myself for some bad days ahead. I am not totally eliminating all carbs. I have been eating a limited amount of corn tortillas, brown rice and quinoa. I plan to eat corn chips and mabye some pancakes made with brown rice flour. And a very limited amount of fruit. (like 1/2 per day) It...
  2. I see that there are several people here who have experience with candida. I think I have it. I don't have celiac and techincally I don't even have a gluten intolerance but I do know that I react to gluten. I have been sick for months despite being gluten-free for 3 months dairy and soy free for 2. Last time I at gluten accidentally I was sick for a week...
  3. Some people have used www.enterolab.com to test for sensitivities to gluten, dairy, eggs, yeast and soy. I am working through similar issues right now and I don't have a lot of answers. I am currently thinking peanuts and legumes might be a problem for me so I am doing some elimination trials of these foods.
  4. There is a medication they give to people with microscopic colitis to help them control their diarrhea. It's called entecort. The most common symptom of microscopic colitis is constant diarrhea. You might want to check out the MC support board (link below) and ask some questions there. I'd recommend having a colonscopy and biopsy to check for MC. Lots of...
  5. Have you done any research on Microscopic Colitis? Some doctors don't even check for it. Its main symptom is diarrhea. Many people with MC have intolerances to dairy and soy as well as gluten. You might consider doing some research on MC and perhaps doing some food intolerance testing at www.enterolab.com. I think about 4% of celiacs have mc and there are...
  6. I don't know much about the protein thing first thing in the morning but I do have to say that I am definitely one who has difficult mornings too. It is hard to get up most of the time and I feel like it is going to be a horrible day. I try to remember that I usually feel pretty decent by around 10:00 but sometimes it is just so hard to make it through the...
  7. Wow, it sounds like things have been really rough for you! I don't have too many answers but I did think that perhaps you have microscopic colitis. The constant diarrhea makes me wonder about that. There is a wonderful support board for MC and you could ask questions about that over there. Many of them use a medication called Entecort to help with their...
  8. Googles, I know that we can all empathize with you. It is so hard to see food that you love and you know you can't have. It is so hard. We feel your pain and know that you aren't alone. I try to remember that I am not the only one doing this because sometimes it feels like everyone else is normal and they take it for granted. I wanted to quickly comment...
  9. I had really bad anxiety before I stopped eating gluten. I developed it when I started seeing other symptoms. It has improved a lot since I stopped eating gluten 3 months ago but I still feel mildy anxious a lot of the time. It is a physical nervous/anxious feeling and it is accompanied by nausea about 90% of the time. I know that anxiety can be related...
  10. I dream about that too. It is sad that we can't even enjoy gluteny foods in our dreams.
  11. Sometimes trying a gluten-free diet is the only way to really know. All my tests were negative including sensitive stool testing from enterolab. I haven't done the gene testing. Even though all my tests are negative I know that gluten makes me sick. There could be a few explanations: I could have a sensitivity to something other than gliaden Test results...
  12. Yep, it sounds like you are having some withdrawl symptoms. I went through a similar thing. I was SO tired, anxious, nauseated and would also wake up sweating. I definitely felt worse at first. After a few weeks the bad fatigue and anxiety was gone and after another few weeks I *started* feeling better. It is still up and down and I am about 3 months into...
  13. My soy reaction involved massive bloating, diarrhea and cramps so bad I thought I was having a baby. It doesn't last as long, usually a day. My gluten reaction usually involves anxiety, nausea, sleeplessness, fatigue, shakiness and weakness. It usually lasts over a week.
  14. I think that 1. Actual intestinal damage can often be missed by doctors if it is not obvious enough and 2. Just because someone doesn't have villous atrophy it does not mean that they do not have a significant decrease in the function of the actual cells of the intestine. Just because they can't SEE atrophy does not mean that the function of the intestine...
  15. I was just reading through this old thread and I thought I'd resurrect it because it might be helpful for some of our new members. I was thinking about this thread becasue I still struggle sometimes with the fact that I am self-diagnosed. I think that some people don't take my diagnosis or my food intolerances seriously and I wanted to read this thread for...
  16. What an inspiring post. It has been a rough couple of days for me because I got glutened. I have been doing this for almost 3 months and I feel a lot better, but I still have a ways to go. And dealing with the emotional side of this is just as hard if not harder than living with the physical side. I love to come to this site when I feel people don't understand...
  17. Open Original Shared Link Call 1-800-446-1898, press 4 and you can get more info about which mixes are available in your area as well as sign up for future info on gluten-free products.
  18. There is a support board for people with microscopic colitis (which main symptom is diarrhea). Your post made me think you may have some microscopic colitis and/or celiac. (MC is usually diagnosed through colonoscopy.) Here is the website for that forum. They are wonderful over there. Many people with MC have gluten intolerances as well as other food intolerances...
  19. I think you should get some books from your local library or bookstore. Here are some I have read: "Celiac Disease" by Peter Green "Wheat Free Worry Free" by Danna Korn "Healthier Without Wheat" by Stephen Wangen "Gluten-Free Baking Classics" by Annalise Roberts There are many more books out there. As far as the diet goes, start with the...
  20. I hope so too. I just called her up and told her about soy too. Her baby reacted very badly to the soy formulas and I recommended that she take the soy out of her diet as well. I hope it helps here poor little guy. He is just miserable.
  21. I think the one I liked was mead brand, although I do have el cheapo Walmarto ampad ones as well. I am glad I licked the US brand. I won't be making that mistake again. I just rarely send letters anymore.
  22. You might consider testing with www.enterolab.com. A lot of people who have had negative blood and biopsies have found answers there with their stool testing. They dont' diagnose celiac per se, but they can tell you if he has an intestinal reaction to gluten, and you don't have to have him eat it to get the testing done. From your description, I would...
  23. I licked a Mead envelop and thought, "OH CRAP!". I hope it doesn't make me sick. I don't know tons about hidden gluten in products. Does anyone know if they still use gluten on envelopes? (Please, no.)
  24. My friend has a newborn who has terrible gas, bloating, reflux, irritablitiy etc. The baby is breastfed. They have tried all the different "hyopallergenic" formulas and they all made him sick. My friend wants to try the gluten-free diet and hopes this will help. She is already dairy free. How long does she need to eat gluten-free to see if that will help...
  25. I have a gluten-free kitchen. I and my 22 month old are gluten sensitive and my dh and 3 other kids are being tested. It is really hard wtih a toddler around to not be gluten-free since the other kids drop stuff and feed her things she shouldn't have. I think the other kids as well as dh will actually benefit from eating gluten-free at home. If they test...
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