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seashele2

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  1. seashele2
    Since my diagnosis 8 1/2 years ago and going gluten-free, I have had to take one food after another out of my diet: corn (which causes me gluten reactions/damage), dairy, soy, beef, pork, sulfites (onions, garlic, brussel sprouts, cabbage, and a hundred others). I can only do very few things with soy lecithin in them. I think it has to do with how the particular...
  2. seashele2
    That is totally disheartening. There is no way we can afford to buy EZ Gluten test kits, so I depend on manufacturers being truthful. I know when I have a gluten reaction to not buy it again but that is all I can go by. Michelle Western Washington state
  3. seashele2
    I have been diagnosed for 7 1/2 years. (Undiagnosed for 32 yrs before that.) My diagnosing physician, who is also celiac, said that any celiac who is gluten-free would have negative results on labs and endoscopes. Sometimes people who were undiagnosed as long as I was sometime have residual damage, but a young person should completely heal on a gluten...
  4. seashele2
    The app is designed for simplicity, but you can alter it to be a little more precise by adding, editing or deleting foods or symptoms. I took wheat off and added things like rice, potato, xanthan gum and guar gum. I am already soy-free, but sometimes eat something with soy lecithan, so I changed soy by adding lecithan. I am already MSG-free, so took that...
  5. seashele2
    I have been conversing with the app maker via e-amil this afternoon and the Food Allergy Detective app allows users to change the default/current time/date when entering foods or symptoms, so I am going to buy it. It is available for the iPhone, iPad and iPod Touch. So excited to get a handle on what's bothering my system. Before I was diagnosed, I seemed...
  6. seashele2
    Yes, that's the one I was talking about. The main reason I haven't gotten it yet is that you can not enter specific times for foods or symptoms. It relies on the user to be able to do that at the time they eat or have a problem. If I get a stomachache at 3:00am, I don't want to have to go put it in my phone, but if I wait until the next morning, that would...
  7. seashele2
    I am searching for something like this too. I found an app I might buy for iPhone for $2.99 called Food Allergy Detective. It has good reviews although not a great number of them yet. I think it was 9 or 10. Since almost everything I eat is at home, I'd be interested in a computer based one too. I look forward to seeing what anyone else recommends.
  8. seashele2
    I have three or four sets of toaster bags from the last 7 years. I don't travel often and it seems every time I need to go somewhere, I can't find where I put them so I wouldn't lose them. :-/ I think they are all different brands. The last pair of "Toast It" bags I got was on Amazon. I have never bought any that weren't full bags. I haven't even seen...
  9. seashele2
    Actually, in our state, we found the big universities really didn't care. Our daughter selected a smaller state school after visiting 4 schools that offered good programs in her major and they are wonderful. She also got a freshman exception to the first-year dorm rule, but for her corn allergy, not her gluten or dairy-free requirement. With her corn allergy...
  10. seashele2
    We're very lucky that my daughter's college in the fall does not use Sodexo. If they did, we would probably have researched longer to find another university! We met with the head of dining services and the campus dietitian last summer before she decided where to apply for transfer. We also met with the university's disability services office. Her college...
  11. seashele2
    Where I buy my hazelnut flour is: Open Original Shared Link . If the link doesn't post, it is from holmquisthazelnuts dot com. Bob's Red Mill also makes hazelnut flour and that brand is available in most healthfood stores and regular grocery stores around me. It can also be ordered online at Open Original Shared Link or on a m a z o n dot com. (The page...
  12. seashele2
    A study was done in the late 1970's that indicated that around 40% of celiacs react to corn, about the same amount as react to oats. Oats were out, but corn was not for some reason. (The corn lobby is a very powerful force.) My daughter and I both can not tolerate corn, but my daughter is corn-allergic. My reaction to corn didn't start until after I healed...
  13. seashele2
    My daughter and I both have microscopic colitis and we both have celiac. It is more of a case of correlation than causation though. Celiacs have a higher chance of having microscopic colitis than the general population. I'm not sure about "regular" colitis however, the kind they can see without a biopsy and microscope. Michelle Western Washington State
  14. seashele2
    Which Namaste products are you getting the reactions from? My 18 year old daughter, who has been allergic to corn since birth, hasn't reacted to any of the Namaste products we are using. I also react to corn, in addition to others, but not as strongly as she does, and I haven't noticed anything either. Maybe we're just not using the same products? ...
  15. seashele2
    They diagnose microscopic colitis via biopsies taken during a colonoscopy. It is not visible when they look around, but is under a microscope. My daughter (17) has it and so do I. We are both celiac too. Michelle Western Washington
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